EUROPA DONNA – The European Breast Cancer Coalition
is an independent non-profit organisation whose members are affiliated groups from countries throughout Europe.
The Coalition works to raise awareness of breast cancer and to mobilise the support of European women in pressing for improved breast cancer education, appropriate screening, optimal treatment and increased funding for research. EUROPA DONNA represents the interests of European women regarding breast cancer to local and national authorities as well as to institutions of the European Union.
WRITTEN DECLARATION ON THE FIGHT AGAINST BREAST CANCER IN THE EU (0017/2015) ADOPTED
On 22 July 2015, the European Parliament adopted the written declaration “On the Fight Against Breast Cancer in the EU” (0017/2015), which calls for the implementation of measures across Europe to fight this disease, the leading cause of death in European women aged 35 to 59. A majority of MEPs signed the declaration, which was co-authored by 10 Members of European Parliament and backed by EUROPA DONNA – The European Breast Cancer Coalition. See here for more details.
EUROPEAN COMMISSION INITIATIVE ON BREAST CANCER – JOINT RESEARCH CENTRE (JRC)
EUROPA DONNA has been advocating for the development of an accreditation scheme for breast cancer services as well as a new edition of the European Guidelines for quality assurance in breast cancer screening and diagnosis. This European Union project is now under way and is being managed by the European Commission’s Joint Research Centre; it is called ECIBC (European Commission Initiative on Breast Cancer) and is overseen by DG Sante. ED’s Executive Director Susan Knox takes part in the Guidelines Development Group and Deputy CEO/Head of Public Affairs Karen Benn takes part in the Quality Assurance Scheme Development Group. ED is a stakeholder and will continue to be invited to make presentations and to participate in other meetings regarding the development of this project, which began in September 2015 is expected to take about 30 months.
The European Code Against Cancer is an initiative of the European Commission to inform people about actions they can take for themselves or their families to reduce their risk of cancer. The current fourth edition, prepared by cancer specialists, scientists, and other experts from across the European Union in a project coordinated by the International Agency for Research on Cancer (IARC) with financial support from the EU Health Programme, consists of twelve recommendations that most people can follow without any special skills or advice. The more recommendations people follow, the lower their risk of cancer will be. It has been estimated that almost half of all deaths due to cancer in Europe could be avoided if everyone followed the recommendations.
There are some travel grants available for patient advocates. See brochure
Link to info on travel grants: http://www.eso.net/events-2.html?e=3rd_Breast_Cancer_in_Young_Women_Conference_(BCY3)