Member Countries

  • Albania

    National Representative: Diana Myrto

    Email: albania-breastcancer@hotmail.com

    Highlights of 2012

    • A national awareness campaign for early detection of breast cancer through screening
    • Nation-wide distribution of a brochure with basic information on breast cancer prepared by national experts in the field of public health and communication
    • Distribution of information materials to the media
    • Creating a banner on routine breast examination, prepared by experts in the field
    • A training workshop for the staff at the Tirana Health
    • Centre, including 20 physicians
    • A one-week health fair organised by the Ministry of  Health and held in the country’s 36 districts

    Activities for 2013

    • An awareness campaign through schools in Tirana with the possibility of expanding through different regions of the country
    • Training with the nursing staff of the oncological hospital ”Mother Teresa” in Tirana
  • Armenia

    National Representative: Nvard Kocharyan

    Email: nvardkocharyan@gmail.com

    Activities for 2015

    • For 3 weeks in March, free breast examinations for 137 women at the National Oncology Centre
    • A lecture on breast health, the advantages of early detection, the correct approach to self-examination, and free examination for 50-60 women at the Hospital of Ejmiatsin and the Regional Hospital “Narek” in Vanadzor, in May and June respectively
    • In June, participation in a TV project called “Ambulance”
    • Starting in July, regular consultations and information sharing about BC, and the advantages of early detection at the ED Armenia office
    • In July, participation in and a presentation at the Cancer Forum
    • In October, a charity concert “Fighting for Healthy Breasts” with stars from Armenia
    • In November, the ED Armenia forum meeting
    • Throughout the year, preparation of leaflets and brochures; holding online meetings and consultations for women and their families; and working on national screening projects and developing early detection projects
  • Austria

    National Representative: Mona Knotek-Roggenbauer

    Email: info@europadonna.at
    Website: www.europadonna.at

    Highlights of 2014

    • 1st Austrian Breast Cancer Patients Congress
    • Film on breast self-examination
    • Online petition for part-time sick leave for patients
    • Lobbying, including a discussion with the Minister of Social Affairs
    • Information events in hospitals
    • Public relations activities
    • Using social media
    • Participating in conferences

    Activities for 2015

    • 2nd Austrian Breast Cancer Patients Congress
    • Contributing to a study on cancer and work
    • Lobbying, including a discussion with the president of the Chamber of Employment
    • A TV appearance on part-time sick leave for patients
    • Holding a “Day of Movement”
    • Information events in hospitals
  • Belarus

    National Representative: Palina Soldak

    Email: polinsoldak@mail.ru
    Website: www.europadonna.by

    Highlights of 2014

    • Monitoring the breast cancer screening pilot project
    • Disseminating ED educational materials
    • Developing a partnership with Harvard Medical School
    • In May, a pain management conference for patients with cancer
    • Monitoring outcomes of educational efforts in BC
    • Discussing quality improvement methods for BC services with public health officials

    Activities for 2015

    • In April, a webinar on pain management
    • Preparing people for ED training sessions
    • Translation of “Quality Improvement Principles for Health Care
    • Organization” from the European Breast Cancer screening consultant visit to Belarus, including fund-raising and coordination with health authorities
  • Belgium

    National Representative: Rita De Coninck

    Email: info@europadonna.be
    Website: www.europadonna.be

    Highlights of 2014

    • In March, the ED Belgium general assembly
    • In May, an international congress “EBC: State of the Art and Treatment of Inflammatory Breast Cancer” in Antwerp
    • In May, an informal meeting in Brussels with cancer registries to present a project for evaluation of quality indicators for care for breast cancer patients
    • In June, a symposium on nutrition and cancer in Brussels
    • In October, BHD activities

    Activities for 2015

    • In May, the ED Belgium general assembly
    • In June, a symposium in Brussels on following up women after breast reconstruction
    • In September, sending a letter to the Minister of Health concerning the needs and quality control in specialist breast units
    • In October, a “Breast Action” symposium
    • In November, the Belgian Breast Meeting

  • Bulgaria

    National Representative: Mila Nenova

    Email: eudonnabg@abv.bg

    Highlights of 2014

    • Participating in EBCC9 in Glasgow
    • Meetings with parliamentarians to present breast cancer issues in Bulgaria and ED activities
    • Meeting with health professionals to promote best practices
    • Participation in the activities of APOS, a patient organisation for different types of cancer
    • Participation in 2 radio shows and 1 TV talk show. The main topics were breast health, prevention and breast health in young women.

    Activities for 2015

    • Participating in 2 radio shows and 1 TV show and planning further such participation
    • Carrying out activities in co-operation with other cancer organisations
    • For BHD, participating in a national morning TV show and promoting the BHD video on Facebook
  • Croatia

    National Representative: Vesna Ramljak

    Email: vesnaramljak@yahoo.com

    Website: www.europadonna.hr

    Highlights of 2014

    • Daffodil Day“ in more than 30 cities
    • Attending meetings such as EBCC and European patient organisation meetings
    • A gathering and a picnic with citizens and the president of Croatia
    • A diving event in memory of the 1010 people who died of BC in Croatia in 2013
    • Publishing the “Pink Story” magazine, and participating in TV shows throughout October
    • On Pink Ribbon Day, a parade where 1010 pink balloons were released
    • A fashion show to celebrate 20 years of ED
    • A conference on multidisciplinary approaches to BC diagnosis
    • Acquiring a device used for sentinel node biopsies for the university hospital

    Activities for 2015

    • “Daffodil Day“ in Zagreb and in 33 cities
    • Attending the meeting “International Experience Exchange for Patient Organizations”
    • A Pink Week where ED Croatia received donations to purchase a single treatment radiation device
    • BHD and Pink Ribbon Day activities
    • Organising a conference on the multidisciplinary approach to diagnosis of breast diseases with the Croatian Public Health Institute
  • Cyprus

    National Representative: Stella Kyriakides

    Email: info@europadonna.com.cy

    Website: www.europadonna.com.cy

    Highlights of 2014

    • Meetings with Minister of Health and MPs for the implementation of breast units
    • Advocacy for EU guideline implementation
    • BC lectures
    • Meeting with the president of Parliament about setting up another oncology centre
    • Participation on the steering committee and follow-up of the national screening programme
    • Pink Silhouette walk with over 7,000 participants
    • Summer party for women with BC
    • Group and individual meetings with an ED Cyprus psychologist
    • Continuation of the Bosom Friends programme, giving free prosthesis, bras, wigs and financial support to women with BC
    • Support and participation in an art campaign “I Am Not the Cancer” on MBC awareness
    • Co-organisers for Cancer Day event with other cancer fora
    • BHD events
    • Lecture “Living with MBC”
    • Participation in conferences such as EBCC9, ABC, Advocacy Leader Conference
    • “Look Good, Feel Good Day” activities in all ED Cyprus Houses

    Activities for 2015

    • Continued meetings with Ministry of Health about breast units
    • Participation on the steering committee of the national screening programme
    • Lectures on BC
    • “Woman on a lifelong journey”, a conference for Women’s Day
    • Joint event with the Institute of Genetics and Neurology announcing the results of a study on local genetic testing
    • Annual activities: Pink Silhouette walk, BHD events, the Summer party, meetings with the psychologist, Bosom Friends programme, Cancer Day event, and “Look Good, Feel Good Day” activities
    • 2 fashion shows
    • Christmas and Easter family food packages
  • Czech Republic

    National Representative: Marta Kostrovà

    Email: aliance@breastcancer.cz

    Highlights of 2014

    • Educational seminars for patients’ organisations
    • Projects on BC prevention
    • “You Can Also Do It” event
    • The “Invisible Women” project on MBC with a pilot educational seminar for volunteer caregivers
    • Translation and printing of the MBC Annex to the “Short Guide to the EU Guidelines”
    • Two outings for young women with BC and their children
    • Publishing of the 2015 Calendar with photos of young women with BC
    • Alliance of Women with Breast Cancer Annual Conference

    Activities for 2015

    • Annual activities: educational seminars, “You Can Also Do It” event, 2 outings for young women with BC and their children, and professionals, annual
    • Alliance of Women with Breast Cancer conference
    • An Alliance of Women with Breast Cancer Day in Brno
    • Projects focused on BC prevention (Mammography Day, a walk, lectures on prevention for secondary schools, “We Are Swimming the Breast Stroke” for BHD)
    • An educational seminar for volunteer caregivers
    • A national meeting of women with MBC in Prague
    • A fashion show
    • Participation in the 50th International Film Festival in Karlovy Vary as a non-profit partner
  • Denmark

    National Representative: Felicity Pors

    Email: felpors@gmail.com

    Highlights of 2014

    • A gathering on the island of Bornholm in June
    • A meeting on the importance of early intervention on late sequelae and reconstruction after BC surgery in Aabenraa in September

    Activities for 2015

    • National conference in October

  • Estonia

    National Representative: Tiuu-Liis Tigane

    Email: tiiu.tigane@regionaalhaigla.ee

    Highlights of 2014

    • Monthly meetings with lectures; in May a geneticist, an oncologist and a lymphoedema therapist introduced their fields and answered questions
    • In May, “Breast Awareness Month” activities, including a press release, TV and radio interviews, articles in print media, and a popular run for women in cooperation with a cosmetic company
    • Annual summer camp at a seaside resort in Pärnu
    • A bus tour to the country studio of the famous sculptor Kangro and a visit to a restored manor
    • In October, the annual charity concert
    • Christmas celebration party

    Activities for 2015

    • Continuation of the monthly meetings
    • In May, annual Breast Awareness Month activities, including a mobile breast unit being present at run for women as a reminder of the importance of screening
    • Pink Ribbon campaign across the country
    • Annual summer camp for all cancer support groups
    • Charity concert in October
  • Finland

    National Representative: Anu Niemi

    Email: puheenjohtaja@europadonna.fi

    Website: www.europadonna.fi

    Highlights of 2014

    • Hosting 61 peer support meetings in 5 cities, with separate groups in Helsinki for young women and MBC patients
    • Providing peer support at the surgery ward of Helsinki University Hospital together with the Finnish Cancer Society as part of the “TOIVO” (hope) programme
    • Organising a sports weekend, a psychodrama weekend and an expressive art therapy course, among other group activities
    • Public lectures at the “5000” bra art exhibition in 5 university hospital cities
    • Educational lecture on emotional eating

    Activities for 2015

    • 10th anniversary celebrations and events
    • Expanding peer support meetings to new cities such as Lappeenranta
    • Training new peer support specialists
    • Holding a sports weekend, art therapy, and recreational activities for women with MBC
    • Educational lectures
    • BHD events
  • France

    National Representative: Martine Castro

    Email: martinecastro@gmail.com

    Website: www.europadonna.fr

    Highlights of 2014

    • Participating nationally in the third Cancer Plan “Right to Oblivion”
    • In 8 cities, monthly meetings among patients held in a cosy place
    • Different sporting events in the ED France regional delegations, where women can share their experiences
    • “MBC gatherings”
    • Pink October across the country with events, races, booths in hospitals, conferences, with a focus on screening

    Activities for 2015

    • Hosting the ED Pan-European Conference in Paris
    • Holding special events, such as theatre shows and concerts, on 8 March for International Women’s Day
    • In November, the Annual Conference at the French Senate
    • Monthly activities at ED France delegations, such as Café Donna meetings for women and sporting events
  • Georgia

    National Representative: Nino Kartvelishvili

    Email: nin_ka@hotmail.com

    Highlights of 2014

    • In August, two charity concerts, one in Batumi and another in the hall of the public library of Georgia, with opera singers in support of ED Georgia
    • In October, participation in 3 central TV channel talk shows and a sporting event at a sports complex to promote healthy lifestyles
    • In November, a charity event with opera singers, and a fashion show featuring BC patients in evening dresses

    Activities for 2015

    • In January, a special project for visiting regions
    • In February, the “Target Therapy” campaign involving a pneumatic gun competition, where a petition was signed demanding government financing for trastuzumab treatment
    • In March, at the City Hall of Tbilisi, an exhibition called “H.I.T.” – Hope in Time
    • In May, informative talks on BC for university students
  • Germany

    National Representative: TBC

  • Greece

    National Representative: Elizabeth Meier

    Email: lizameier85@gmail.com

    Activities for 2014 and 2015

    • Important fund-raising initiatives
    • Attending and participating in numerous BC events and conferences such as the Breast Cancer Conference, Breast Cancer W4O (Women for oncology organisation) conference, Athens Breast Cancer Conference and the National Cancer Registry Meeting
    • Following extensive advocacy efforts, the formation of the Breast Cancer Committee in the Greek Parliament
    • Participating in ED conferences, meetings and training courses
    • Working closely with the Breast Cancer Parliament Committee to bring new bills to parliament that will improve care for women with BC
    • Working closely with the scientific community in organising breast care health campaigns and awareness events
    • Encouraging doctors to participate in global protocols and clinical studies
  • Hungary

    National Representative: Zsuzsanna Péter

    Email: info@rakszovetseg.hu

  • Iceland

    National Representative: Gudrun Sigurjonsdottir

    Email: samhjalp@krabb.is

    Highlights of 2014

    • Lectures for women, their friends and families about BRCA1 and 2 mutations
    • A conference about BC and the BRCA mutations
    • A lecture for members about the surgical treatment of BC, and the current and future situation in Iceland
    • In October, a “Pink Forum” on access to the best cancer treatment
    • “Casting for recovery” where 14 women after BC treatment went fishing together
    • In September, participating in the Nordic Breast Cancer Conference in Oslo
    • On BHD, a walk around the Reykjavik pond in pink clothes carrying pink balloons

    Activities for 2015

    • The 6th “Casting for Recovery” fishing event
    • Participating on a committee with the university hospital about a breast unit
    • More lectures about BC
    • Organising the Nordic Breast Cancer Conference in Iceland for September 2016
    • Pink Forum and Pink Day BHD activities in October
    • Creating a website
  • Ireland

    National Representative: Tara Byrne

    Email: info@europadonnaireland.ie
    Website: www.europadonnaireland.ie

    Highlights of 2014

    • Dragon Boat Road Show promoting healthy lifestyles
    • BHD 2014 breakfast with public representatives at government buildings
    • BHD activities nation-wide
    • Public talk by Dr Susan O’Reilly, Director National Cancer Control Programme Ireland
    • Participation of the ED Ireland Team in the International Dragon Boat Regatta in Dublin

    Activities for 2015

    • Dragon Boat Road Show with a trip to west of Ireland to show healthy lifestyles and establish a new team
    • Team participation in the International Dragon Boat Regatta in Dublin
    • Launch of an ED Ireland leaflet on lymphoedema and live radio interviews to promote it
    • Lymphoedema Awareness Month in March with stands in 2 public hospitals
    • Update of ED Ireland “9 Things” leaflet
    • Public talks at various cancer support and family resource centres
    • Creating 2 new leaflets on psycho-oncology and communicating with physicians
    • BHD activities
  • Israel

    National Representative: Miri Ziv

    Email: miriziv@cancer.org.il
    Website: click here

    Highlights of 2014

    • A press conference on new statistics and research studies, in collaboration with the National Cancer Registry of the Ministry of Health
    • “This is a Pink Shirt” project in collaboration with a cosmetic company
    • Activity on the “On Life” portal for women
    • Articles published in leading newspapers
    • Posting public service announcements, personal stories and ED materials on the website and Facebook page
    • A journal for professionals written by multidisciplinary medical experts in BC
    • “Celebrating Life” annual seminar featuring leading experts and attended by hundreds of breast cancer patients, survivors and their families
    Activities for 2015
    • A press conference in collaboration with the National Cancer Registry
    • Continued posting of public service announcements, articles, personal stories and ED materials on the website and Facebook
    • Collaboration with a cosmetic company, and other partners
    • The “Celebrating Life” seminar
  • Italy

    National Representative: Rosanna D’Antona

    Email: segreteria@europadonna.it

    Website: www.europadonna.it

    Highlights of 2014

    • For ED’s 20th anniversary and the imminent launch of the law on breast units, 3 public events in Milan, Catania and Rome with national authorities, European delegates and scientists
    • 2 training sessions for ED Italy associations on interpersonal skills and health policy
    • A survey about protection of women with BC by employers, administered to workers and companies
    • A blog dedicated to women with MBC to offer them support, sharing and information

    Activities for 2015

    • Promotion of the breast unit law with 2 public events in Bologna and Cagliari
    • An interactive library with 3 chapters, prevention, breast units and MBC
    • Training sessions for ED Italy associations on fund-raising and breast units
    • Proposal for legislation to protect working women with BC signed by trade associations and unions
    • 2nd survey on MBC patients’ needs and a presentation at the ABC conference
  • Kazakhstan

    National Representative: Nagima Plokhikh

    Email: zdorovayaaz@gmail.com

    Website: www.fza.kz

    Activities for 2014

    • In March, the first “Pink Tape” charity ball, organised in the framework of the international programme for the fight against BC
    • On the streets of Almaty, billboards encouraging BC screening and diagnosis with the participation of Kazakhstan celebrities •
    • In October, a Zumba party in support of the movement against BC
    • In October, an “Always a Woman” event devoted to BC awareness
    • Printing more than 32,000 booklets about BC
    • Purchasing prostheses and lingerie for women after mastectomy

    Activities for 2015

    • Holding the first “White flower” charity ball in Almaty
    • BC awareness activities in schools
    • Producing 40,000 booklets about BC
    • Holding a concert dedicated to women with BC
  • Kyrgyzstan

    National Representative: Taalaigul Sabyrbekova

    Email: sabyrbekova2011@gmail.com

    Highlights of 2014

    • In February, a forum, “Movement Against Cancer”
    • In February, launch of the Mammography Examination Room
    • BC patient support including psychology consultations, rehabilitation and prevention of lymphoedema, and provision of prostheses
    • Pink October events and fund-raising
    • Awareness-raising activities, including TV and radio programmes, articles in newspapers and e-publications, printed materials on early detection of cancer and healthy lifestyles
    • Training of Kyrgyz specialists to work on the full digital mammography equipment by specialists from Switzerland
    • Parliamentary Hearings on reconsideration of Law No. 84 on “oncology assistance” to make the provision of medical services accessible and transparent

    Activities for 2015

    • Running the Mammography Examination Room
    • Participation in the ED Pan-European Conference in October
    • Pink October Events and fund-raising
    • Participation in the ED Advocacy Training Course in November
  • Latvia

    National Representative: Gunita Berke

    Email: europadonna@dzivibaskoks.lv

    Webmail: www.dzivibaskoks.lv

    Highlights of 2014

    • For Pink Ribbon month in October, an “I Love Life” information and public awareness campaign
    • Patient advocacy activities related to psychosocial support and rehabilitation after the BC active treatment phase
    • “The Spring of Strength”, three psychosocial rehabilitation programmes for survivors
    • A health conference, “Oncology in the 21st century: Learning to Cope with the Diagnosis”
    • A video stream, “Breast Cancer Prevention and Early Diagnosis – Myth or Reality?”

    Activities for 2015

    • “The Best Life After Cancer” theme for the public awareness campaign in October
    • ED Latvia website: www.europadonna.lv
    • Continuing lobby and advocacy programmes for patients and health care professionals
    • “The Spring of Strength”, 3 psychosocial rehabilitation programmes for survivors
    • Fund-raising activities for a psychosocial rehabilitation centre for cancer survivors and their relatives
  • Lithuania

    National Representative: Juventa Sartataviciene

    Email: juventa.sartataviciene@nvi.lt

  • Luxembourg

    National Representative: Mariette Fischbach

    Email: mariettefischbach@yahoo.de

    Highlights of 2014

    • “Hymne à la Beauté” exhibition with presentation of ED Luxembourg activities
    • Participating in the run “Dames de Coeur” in Thionville, France
    • Organising the 12th “Broschtkriibslaf” annual run
    • A conference in Marnach
    • A “human solidarity chain” together with employees of banks in Kirchberg, the banking district of Luxembourg
    • Presenting the film “Rope of Solidarity” followed by a discussion with experts and young patients
    • Participating in the National Health Conference “Plan Cancer”

    Activities for 2015

    • A survey to obtain information about patients’ experiences during BC treatment
    • Participating in solidarity runs and organising “Broschtkriibslaaf” in October
    • Creating a group for young women with BC
    • Presenting forum activities with information stands at women’s associations and at “Health Days” in different parts of the country
  • Macedonia

    National Representative: Biba Dodeva

    Email: info@borka.org.mk

    Highlights of 2014

    • In May, the “Go Pink 2014 – Walk for the Cure”
    • The 7th National Breast Cancer Conference
    • On BHD, a small demonstration by BC survivors
    • Attending the ED annual Advocacy Training Course
    • “Pink Caravan 2014″ educational sessions on BC in 13 cities
    • Establishing and participating in health commissions on patient rights in collaboration with the local communities in Skopje, Veles and Strumica
    • Running a help line for women with BC, their family and friends
    • Holding twice-monthly psychosocial groups

    Activities for 2015

    • Attending the ED Pan-European Conference and the Advocacy Training Course
    • The “Go Pink 2015 – Walk for the Cure”
    • A BHD picnic at a famous national site
    • The 8th National Breast Cancer Conference
    • Pink Night 2015, a fund-raising event
    • Pink Caravan 2015 educational sessions
    • Running the help line and the psychosocial groups
  • Malta

    National Representative: Doris Fenech

    Email: info@europadonnamalta.org.mt

    Webmail: www.europadonnamalta.org.mt

    Highlights of 2014

    • Awareness walks in March, April (in Gozo) and October
    • High tea and a craft fair
    • 2 fashion shows in May and September (in Gozo) with the participation of survivors
    • Seminar on MBC
    • A concert
    • An awareness twilight walk
    • Courtesy visit to HE Madame President
    • Awareness event at Villa Rundle in Gozo
    • Annual public lecture “Looking into the Future of Breast Cancer”
    • BHD event “The Importance of Sports”, including breast exams onsite by the breast clinic team
    • A gala dinner, art exhibition and annual mass
    • Several talks and participation in TV and radio programmes

    Activities for 2015

    • Advocacy course for advocates
    • Several awareness walks
    • Fashion show
    • BHD activities
    • Annual public lecture
    • Translation of the MBC Annex to the “Short Guide to the EU Guidelines”
  • Moldova

    National Representative: Larisa Sofroni

    Email: sofroni@yandex.ru

  • Monaco

    National Representative: Adeline Garino

    Email: adelinegarino@libello.com

    Webmail: www.ecoutecancerreconfort.org

    Activities for 2015

    • Participating in the “International Day in the Fight Against Cancer” organised by the association Flavien
    • Participating in the Pink Ribbon March through the streets of the principality
    • An evening of theatre on behalf of ED Monaco
  • The Netherlands

    National Representative: Ellen Verschuur

    Email: ad_en_eaj_verschuur@planet.nl

    Highlights of 2014

    • In cooperation with Pink Ribbon and Boog (Breast Cancer Research Group), a conference on triple-negative BC, with publication of updated information
    • The Mammarosa symposium in The Hague to provide BC information to women from different cultures
    • Networking days for patient advocates and volunteers
    • The launch of “B-bewust” (bewust=aware), an Internet tool to assist BC patients in informed treatment decision-making
    • The Borstkanker Vereniging Nederland magazine being voted the best patient magazine in the Netherlands

    Activities for 2015

    • Setting up a “patient academy” to assess skills needed for advocacy and develop courses to address them
    • Including the “Breast Cancer Monitor” (a tool to help patients choose a hospital) on the website
    • Making the website more user-friendly
    • Organising a road tour for the local department to learn more about their wishes and needs
  • Norway

    National Representative: Inger Margrethe Holter

    Email: post@brystkreftforeningen.no

    Highlights of 2014

    • Weekend gatherings for women under 40, one with health and relaxation activities and one for women with metastatic cancer and their partners
    • Nordic Breast Cancer Conference weekend in Oslo for 230 women from Sweden, Denmark, Iceland, The Faroe Islands and Norway
    • Supportive Care visiting 849 newly operated women, receiving 413 telephone calls and organising 11 self-help groups
    • Pink Ribbon activities in October that collected 2.8 million euros and increased awareness of BC
    • Advocacy involving cancer treatment and care

    Activities for 2015

    • Continuing to create awareness about metastatic cancer
    • Increasing awareness of hereditary breast cancer
    • Continuing advocacy on topics of cancer treatment and care
    • Pink Ribbon activities in October

  • Poland

    National Representative: Dorota Czudowska

    Email: polskieforum@europadonna.org.pl

    Webmail: www.europadonna.org.pl

    Highlights of 2014

    • Fund-raising activities
    • In March, participation in EBCC9 and presentation of the poster “20 Years of ED in Poland”
    • In March-April, reports on activities to important offices
    • In June, XVII General Assembly of ED Poland and celebrating the 15th anniversary of ED in Debica
    • In September, 5th anniversary of ED in Pila and a scientific conference about BC
    • In October, BHD activities, press conferences, Pink Ribbon Marches, oncology picnics, mammography, and distribution of BHD leaflets in the Polish Senate

    Activities for 2015

    • In March, XVIII General Assembly and Polish Executive Board elections. Celebration of the 20th anniversary of ED Poland and the exhibition of posters from 1994-2014
    • In May, appealing to Polish MEPs to sign the new Declaration on Breast Cancer in the EU
    • In June, an exhibition on breast units in the Polish Parliament
    • BHD activities
    • Attending the ED Pan-European Conference
  • Portugal

    National Representative: Isilda Pegado

    Email: europadonna@ligacontracancro.pt

    Highlights of 2014

    • Starting up psycho-oncology consultations for women with MBC
    • An awareness and fund-raising campaign to enable the purchase of 3 direct digital mammography units
    • In May, participating in “Parliament Health Days” with mobile units
    • BHD media and digital campaign
    • Marking the National Day for Breast Cancer Prevention with the campaign “Headscarves are also for Men”. Men and women, including several public figures, wore pink carves of their heads to support women with BC and were challenged to change their profile picture on Facebook

    Activities for 2015

    • Developing BC materials for the blind in partnership with the Association of Blind and Partially Sighted of Portugal
    • Attending the ED Pan-European Conference, ABC3 and the Portuguese Cancer League International Patient Advocacy Conference
    • BHD digital campaign
  • Romania

    National Representative: Mihaela Geoana

    Email: fundatiarenasterea@gmail.com

    Highlights of 2014

    • Media campaigns for BC awareness with participation in TV and radio debates
    • Initiating a draft of legislation to declare 1 October the national day for the fight against BC, which the senate passed unanimously
    • BHD activities with social media representatives, bloggers and public figures
    • Cooperating with the Ministry of Health in drafting a national project cancer for screening
    • Pink illumination of a historical building in Bucharest
    • Invitations to speak on TV about prevention and early detection
    • Continued promotion of the The Medical Centre of Excellence
    • Fund-raising events to operate the mobile diagnostic units for breast and cervical cancer

    Activities for 2015

    • Awareness and communications campaigns
    • Fund-raising events and the annual pink illumination event
    • Advocacy for a national screening programme for BC and collaboration with the Ministry of Health. A programme for women living in rural areas is planned, with ED Romania contributing to the regulations and to participating with mobile diagnostic units
  • Russia

    National Representative: Oksana Moldovanova

    Email: moldovanova@nwhcf.ru

    Highlights of 2014

    • Manuals for radiologists and radiology technicians on mammography screening
    • Participating in EBCC9, ED conferences and courses
    • Participating in a panel discussion about women and cancer at the Russian Parliament
    • BC awareness campaign with “Doors Open Days”
    • A research-to-practice conference in Kursk
    • Coordinating pilot mammography screening and holding a rehabilitation group in the Kursk region
    • Fund-raising campaign for BC research with a mentoring programme for young scientists

    Activities for 2015

    • Opening physiotherapy rooms for BC patients with donated equipment for lymphoedema prevention
    • Holding a research-to-practice conference in Cheboksary
    • Initiating an expert working group at the health ministry to create a national road map to decrease BC mortality
    • A manual for women with newly diagnosed BC
    • A web portal for radiologists
    • Advocacy training in Moscow
    • Education programme for cancer counsellors in the high north
    • BHD campaign
    • Participating in the ED Pan-European Conference
    • A website with a database of clinics with free access to mammography within the national programme
    • Holding a rehabilitation group and coordinating the pilot mammography screening programme in Kursk
    • Support programme for BC research teams
  • Serbia

    National Representative: Andjelka Majic

    Email: saimar@yubc.net

  • Slovakia

    National Representative: Alena Kallayova

    Email: akallayova@gmail.com

    Highlights of 2014

    • For BHD, an exhibition of pieces of art made by BC survivors connected with providing breast health information
    • Attending the ED Advocacy Training course
    • Collaborating with the non-profit organisation “Pontis of Dell” in a common project called “Prevention of Oncologic Breast Diseases”
    • Psychosocial support of BC survivors
    • Lectures, TV appearances, articles in newspapers
    • Updating the website
    • Creating, printing and disseminating educational materials

    Activities for 2015

    • “Healing Art” exhibitions at the St. Elisabeth Oncological Hospital prevention centre
    • Teaching women waiting for mammography examination about early detection and prevention
    • Lectures for students, mammography staff and the public with emphasis on keeping healthy
  • Slovenia

    National Representative: Mojca Sencar

    Email: europadonna@europadonna-zdruzenje.si

    Highlights of 2014

    • Publication of 4 issues of ED News
    • 30 lectures about BC, healthy lifestyles and self-examination
    • Counselling by telephone, personally, e-mail, in the hospital
    • Very active support group for young BC patients
    • 2-day seminar on systemic treatment and psychosocial support for ED members
    • Participation in 2 Festivals
    • “Running and Walking for Hope” in 3 cities
    • Publication of a “Nutrition and Cancer” brochure
    • Participating in EBCC9, the ED Advocacy Training Course, the Advocacy Leader Conference and special lectures on MBC
    • In October, a major campaign with the slogan “Lovely Day” with dancing in 3 shopping centres followed by a photo exhibition and video posted on YouTube

    Activities for 2014

    • Annual activities: publishing ED News, patient counselling, lectures throughout the country, and “Running and Walking For Hope”
    • Emphasis on psychosocial support and holistic rehabilitation
    • 2-day seminar for ED members on psychosocial support
    • October activities – press conference, activities in elementary schools, the “Lovely Day” campaign with dancing in the main squares
    • Photo exhibitions around Slovenia
    • Collaboration with policymakers on health reform with other NGOs
  • Spain

    National Representative: Carmen Boronat Jiménez

    Email: cboronat@icab.es

    Website: www.fecma.org

    Highlights of 2014

    • Presenting a study on the information needs and health care expectations of BC patients
    • ED Spain Universidad Menéndez Pelayo summer course for specialists and women with BC covering the challenge of maintaining sustainability of the public health system with a focus on clinical research and innovation
    • On BHD, a press conference to present the Manifesto and an awareness campaign on early detection
    • Participating in the National Health System Cancer Strategy as a member of the follow-up and evaluation committee
    • Physiological support for women with BC and their families
    • Physiotherapy for lymphoedema

    Activities for 2015

    • In April, presenting the psychosocial aspects of BC at the ESTRO 3rd Forum
    • In June, attending the Breast Cancer Patient Group Forum
    • Summer course at Universidad Menéndez Pelayo with a focus on survivorship
    • On BHD, a media campaign about early detection and to present the 2015 Manifesto
    • Advocacy activities and participation in the National Cancer Strategy
    • Support in developing an app to assist women undergoing chemotherapy
  • Sweden

    National Representative: Elizabeth Bergsten Nordstrom

    Email: elizabeth.bergsten-nordstrom@bro.org.se

    Webmail: www.bro.org.se

    Highlights of 2014

    • Participating in national projects on the cancer strategy
    • Yearly awards to a health professional and breast care nurse
    • Nordic cooperation and participation in the Nordic Conference
    • Awareness for women with MBC and their needs related to specialist breast units and multidisciplinary treatment
    • Awareness of the need for access to drugs after European approval, as well as equal care throughout Sweden
    • Awareness of the need for rehabilitation with financing of 2 weeks for MBC patients

    Activities for 2015

    • “Breast Friend” programme and peer support events
    • Producing 3 BC reports: mammography screening, equal care, MBC
    • Advocacy for specialist breast units and on comprehensive cancer care and research
    • Annual award for excellent achievements related to BC treatment and for breast cancer nurse of the year
    • Rehabilitation weeks for women with MBC
    • Special programme for young women
    • BHD seminar on 15 October and Pink Ribbon activities throughout October
    • Yearly meetings at the parliament
    • Cooperation within the Nordic countries
    • Advocacy during the political forum in Almedalen park in Visby focusing on MBC, equal care and equal access to drugs
  • Switzerland

    National Representative: Donatella Corbat

    Email: zentralsekretariat@europadonna.ch

    Webmail: www.europadonna.ch

    Highlights of 2014

    • Presenting the screening programme at the “Health Fair” in Bern
    • Launching a mobile phone App promoting breast awareness
    • BHD in southern Switzerland
    • Presenting the new website in Italian www.infoseno.org on breast health and breast cancer care
    • Acceptation by the Federal Council of the ED Switzerland motion “Correction of asymmetry after mastectomy must be paid by health insurance”
    • Active participation and attendance at different conferences in Switzerland and abroad

    Activities for 2015

    • New website www.europadonna.ch
    • A “Pink Yoga” outdoor event in Zurich to raise BC awareness, with Regula Curti, a yoga expert who produced the CD “Beyond – Love Within” with Tina Turner, music that will be played during the yoga session
    • Organising a 2-day conference for patients
    • Launch of the group “Young women with breast cancer”
    • BHD activities
    • Attending different conferences
  • Tajikistan

    National Representative: Firuza Abdullaeva

    Email: avesto97@mail.ru 

    Highlights of 2013

    • Co-organising the international conference “Women’s Health. Breast cancer and cervical cancer advocacy” with the
    • support of the Ministry of Health and in partnership with US and international organisations. It was widely
    • attended, included 68 presentations, 8 by
    • ED, and adopted a resolution.
    • Four regional roundtables on breast cancer advocacy and 12 meetings on breast cancer advocacy
    • A Healthy Breast Week with 6 roundtables, training sessions, and 16 information campaigns, with emphasis on
    • healthy lifestyles
    • Translating and printing the ED materials on healthy nutrition into Russian and Tajik
    • Monitoring and evaluating activities carried out by primary care physicians
    • BHD activities
    • Participating in conferences and training sessions, such as Advocacy Training, the Eastern Europe/Central
    • Asia Breast Cancer Advocacy, Education and Outreach Training Programme in Tbilisi, Georgia, and an expert meeting
    • on cancer in Russia

    Activities for 2014

    • Attending EBCC9 in Glasgow
    • Participating in the “Creative Fund-raising” Project by the National Screening Centre of Georgia
    • Attending the ED Advocacy Leader Conference and the Advocacy Training course
  • Turkey

    National Representative: Violet Aroyo

    Email: violetaroyo@hotmail.com

    Highlights of 2014

    • Participating in the Istanbul International Breast Cancer Conference committee to organise the BC Patient Track and the BC Nurse Day
    • Organising a full-day training for breast care nurses to share the nurse curriculum and their role within the multidisciplinary team and the impact of specialist breast units
    • Developing patient seminars and activities for the Young Breast Cancer Survivors working group
    • Participation of 20 members of the young women’s group in a dragon boat competition in Italy
    • BC awareness and prevention seminars on healthy lifestyles and nutrition for high school students and their mothers, as well as a group of women immigrants
    • A joint BHD activity with Harley Davidson Turkey
    • Participating in the annual New Year and Christmas Bazaar

    Activities for 2015

    • Annual actvities: monthly seminars focusing on physical activity, healthy diet and the importance of screening
    • Participating in the ED Advocacy Training Course
    • Lectures on BC awareness in and around Istanbul
  • UK

    National Representative: Margaret Spittle

    Email: edukforum@gmail.com

    Highlights of 2014

    • In March, attending EBCC9, contributing to ED and scientific sessions
    • In October, a symposium “Breast Cancer: 20 Years of Progress – What Next?” with presentations by professors from the Royal Marsden Hospital to medical professionals, politicians and BC organisations. Information on latest advancements in radiotherapy and chemotherapy.
    • In October, an exhibition at Nightingale and Genesis Prevention Centre displaying material to raise awareness of ED
    • In October, presentations and stands offering BC advice
    • In October, articles published in Independent Nurse journal on living beyond cancer, and in Cancer Nursing Practice about the “Here and Now” survey of women with secondary BC
    • In December, a health fair for the learning disabled community in Kensington to raise awareness of wellbeing
    • In December, attending the Britain Against Cancer Conference, a government meeting addressing priorities for cancer care

    Activities for 2015

    • Annual symposium
    • Exhibition stand at “Champions for Change”
    • Awareness displays and presentations for BHD
  • Ukraine

    National Representative: Galina Maistruk

    Email: maistruk@rhr.org.ua

    Highlights of 2014

    • In October, a special event for the media, BC advocates, volunteers and survivors in Kiev, where the Dutch documentary “Awake in a Bad Dream” was presented and raised awareness of many BC issues such as early diagnosis, optimal treatment, specialist breast units and quality of life. Ukrainian translations of ED materials were distributed.
    • Information and education campaign initiated by ED Ukraine/Women Health & Family Planning Foundation to raise interest and public awareness of BC issues. Early diagnosis based on the EU guidelines became one of the action priorities for 40 NGOs from 19 regions of Ukraine.

    Activities for 2015

    • 4th School of Modern Mammography for Ukrainian radiologists
    • BHD at the Ukrainian Parliament
    • Joint activities with partners as part of BHD
  • Uzbekistan

    National Representative: Shakhnoza Umarova

    Email: eduzbekistan@mail.ru

    Highlights of 2014

    • Charity and outreach activities for women in regional oncology centres throughout the year
    • In March, BC awareness campaigns at Tashkent City Oncology Centre
    • In October, organising a high-level charity “Pink Tea Party” with Tashkent Women’s International Group club
    • In December, a gala party dedicated to BC survivors

    Activities for 2015

    • In March, the international conference “Chronic Diseases Pose a Challenge to 21st Century Europe: Patient’s Perspective and Economic Activity” organised by ED Latvia
    • In May, the 3rd National Cancer Congress of Uzbekistan in Tashkent
    • In April, training sessions with newly diagnosed breast cancer patients at the Tashkent City Oncology Centre
    • Attending the ED Pan-European Conference