Member Countries

  • Albania

    National Representative: Diana Myrto

    Email: albania-breastcancer@hotmail.com

    Highlights of 2012

    • A national awareness campaign for early detection of breast cancer through screening
    • Nation-wide distribution of a brochure with basic information on breast cancer prepared by national experts in the field of public health and communication
    • Distribution of information materials to the media
    • Creating a banner on routine breast examination, prepared by experts in the field
    • A training workshop for the staff at the Tirana Health
    • Centre, including 20 physicians
    • A one-week health fair organised by the Ministry of  Health and held in the country’s 36 districts

    Activities for 2013

    • An awareness campaign through schools in Tirana with the possibility of expanding through different regions of the country
    • Training with the nursing staff of the oncological hospital ”Mother Teresa” in Tirana
  • Austria

    National Representative: Mona Knotek-Roggenbauer

    Email: info@europadonna.at
    Website: www.europadonna.at

    Highlights of 2012

    • Organising the Lay Patient’s Day at EBCC in Vienna in March and participating by explaining the goals of ED
    • and joining the panel
    • Publishing together with Austria’s Study Nurses and Coordinators a booklet containing expert answers to
    • questions frequently asked by breast cancer patients and helpful addresses
    • Distributing a pink bag packed with helpful information and items to women leaving the hospital in Vienna after their breast cancer surgery
    • A booth at the European Society for Medical Oncology (ESMO) Congress in Vienna and a short lecture
    • Redesigning of the website www.europadonna.at comprising several articles of interest for women
    • For Breast Health Day, participation in a film produced by Austrian TV with a member telling her experiences with breast cancer
    • Participation in the discussion about the national screening programme

    Activities for 2013

    • An interview on World Cancer Day in February
    • A booth at the Vienna Cancer Day event
    • Written information for breast cancer patients to be given at diagnosis
    • Further publications on breast cancer
  • Belarus

    National Representative: Palina Soldak

    Email: polinsoldak@mail.ru
    Website: www.europadonna.by

    Highlights of 2012

    • Attending the Breast Health Global Initiative
    • Conference in Vienna and making connections with ESMO experts
    • Developing standards for palliative care
    • Assisting in developing palliative care education and making connections with Harvard Medical School.
    • Harvard specialists attended the palliative care conference in October 2012
    • Strengthening breast cancer mass media coverage, using patients’ experiences
    • Training two new ED volunteers at the ED Advocacy Training Course in Milan

    Activities for 2013

    • Monitoring breast cancer screening implementation with WHO Belarus and the Oncology Institute
    • Developing a partnership with the Harvard oncology team
    • Developing continuing medical education on palliative care
    • Developing effectiveness indicators for breast cancer awareness
    • Strengthening media coverage on breast cancer by increasing the number of publications
  • Belgium

    National Representative: Rita De Coninck

    Email: info@europadonna.be
    Website: www.europadonna.be

    Highlights of 2012

    • Participation in the European conference “Physical Activity at the Service of the Fight Against Breast Cancer in Europe”
    • Annual General Meeting in Brussels
    • The international forum for patient organisations on the theme “Improving the outlook for women with breast cancer”
    • A patients’ day on the effects of breast cancer organised by Breast Clinic UZ Brussels and Rehabilitation Sciences VUB
    • The “Cerf-Volant” (Kite) gala family event at the conservatory in Brussels
    • A roundtable in the Parliament of the Federation Wallonia-Brussels on “Current issues in the prevention and screening of breast cancer”
    • Taking part in the 3rd European Organization for Research and Treatment of Cancer conference at European Parliament
    • Breast Health Day activities

    Activities for 2013

    • Extraordinary General Meeting of ED Belgium
    • Activities for World Day Against Cancer
    • Living with breast cancer conference in Ostend
    • Celebrating the day “And if we thought a bit about ourselves”
    • A conference on nutrition and prevention of diseases
    • Invitation to update the national guidelines on good practices and breast cancer
    • A conference on the profession of the oncology care co-ordinator
    • A meeting on psychosocial intervention for breast cancer patients
  • Bulgaria

    National Representative: Mila Nenova

    Email: eudonnabg@abv.bg

    Highlights of 2009

    • Problems were encountered with financing activities. Therefore, activities focused on actions not requiring funding but that could contribute to promoting screening and increasing awareness
    • Meetings with members of parliament and Ministry of Health representatives, participation in the discussion of bills and laws regarding public health
    • Promotional activities such as participation in TV shows on various national TV stations, and others to raise the awareness of young women about the disease and the need for regular self-examination for early detection
    • Informal meetings with patients to help solve personal problems and provide advice about specialist care

    Activities for 2012

    • Promoting the European guidelines and insisting on screening programme implementation
    • Participation in the ongoing discussion on health reform
    • Raising public awareness of the disease
    • Information to young people about the disease and the possibilities of early detection
  • Croatia

    National Representative: Vesna Ramljak

    Email: vesnaramljak@yahoo.com

    Website: www.europadonna.hr

    Highlights of 2012

    • Daffodil Day nation-wide
    • Participation in the 5th Congress of the Croatian Senologic Society
    • Participation in the ED Advocacy Leader Conference
    • Pink Ribbon Day on a national level
    • Meeting with the Ministry of Health about lobbying for breast units
    • Breast Health Day nation-wide Participation in the ED Advocacy Training Course

    Activities for 2013

    • An annual project to raise funds for a mobile linear accelerator for intraoperative radiation therapy. The project is organised under patronage of the President of Croatia and the Minister for Health
    • Daffodil Day on a national level
    • Participation in the 2nd Croatian Congress of Psychooncology
    • Participation in the 7th International Symposium on Complementary Supportive Therapies
    • The Pink Ribbon Day on a national level
    • Meeting with Ministry of Health and MPs to lobby for breast units
    • Breast Health Day on a national level
    • Participation in the 11th ED Pan-European Conference
    • ED Advocacy Training Course
  • Cyprus

    National Representative: Stella Kyriakides

    Email: info@europadonna.com.cy

    Website: www.europadonna.com.cy

    Highlights of 2012

    • Collaboration with two Cancer Societies and the Bank of Cyprus Oncology Centre in a Cancer Day event held under the auspice of the First Lady of Cyprus
    • Regular meetings with the Ministry of Health steering committee for the screening programme
    • Activities in all ED Cyprus Houses
    • Continued sponsorship to Institute of Neurology and Genetics for research on breast cancer genes
    • Charity fashion show by a well-known fashion designer
    • Distribution of food parcels to women with breast cancer and their families in need
    • Lecture with Prof. L. Cataliotti on “Why specialist breast units are necessary for women”
    • Pink Silhouette walk with 2000 attending
    • Employment of a clinical psychologist to support women and their families
    • New leaflet on the new psychological service

    Activities for 2013

    • Opening of the 4th ED Cyprus House in Paphos
    • Advocacy events and lectures in all towns
    • Activities and meetings in all four ED Cyprus Houses
    • Meetings with the Ministry of Health for the implementation of breast units and participation in the steering committee for the screening programme
    • Pink Silhouette walk
    • Distributing food parcels for women with breast cancer and their families in need
  • Czech Republic

    National Representative: Marta Kostrovà

    Email: aliance@breastcancer.cz

    Highlights of 2012

    • Educational seminars
    • The annual conference
    • Projects for patient organisations, such as “You Can Do It, Too” and “Women to Women”
    • In June, the Avon Walk Against Breast Cancer
    • In October, the “We Swim the Breast Stroke” event
    • Distribution of educational materials
    • Participation in cancer symposia and congresses
    • Participation in EUROPA DONNA events

    Activities for 2013

    • The “You Can Do It, Too” event with a flight in a hot-air balloon to boost awareness of breast cancer
    • Educational seminars providing legal advice for patient organisations
    • For Breast Health Day, the “We Are Swimming Breast Stroke” national event
    • Translation of the ED “Short Guide to the EU Guidelines” into Czech
    • Hosting the ED Pan-European Conference in Prague
  • Denmark

    National Representative: Jonna Yde

    Email: jonna.yde@europadonna.dk

    Highlights of 2012

    • A large conference at the Danish Parliament about chemotherapy, radiation therapy and breast
    • reconstruction
    • A lecture in Aarhus about anxiety, worries and lifestyle by a Danish researcher in the field of psycho-oncology
    • Distributing four bulletins with relevant articles to all members. All articles are available on www.brystkraeftforeningen.dk

    Activities for 2013

    • Participating in a lifestyle exhibition in Aarhus, including distributing many ED brochures and talking with many women and some men about breast cancer
    • Participating in a catwalk with beautiful bald women in Copenhagen
    • Planning to make a mobile app about breast cancer to help women and men
    • Participating in a lifestyle exhibition in Copenhagen
    • Planning of an event in October for women with breast cancer
    • Distributing four bulletins to all members
  • Estonia

    National Representative: Tiuu-Liis Tigane

    Email: tiiu.tigane@regionaalhaigla.ee

    Highlights of 2012

    • A Health and Self Help Project (lectures, practical activities, excursions to interesting sites, theatre visits)
    • Activities for Breast Cancer Awareness Month in May: interviews and articles with members and doctors, and a roundtable meeting with MEPs and the Health Minister about breast screening
    • In August, the annual patients’ summer camp
    • In September, opening of a Breast Health Office at a hospital where cancer patients are treated and women not of screening age can check their breast health
    • In October, big charity concert for Breast Health Day

    Activities for 2013

    • In January, celebration of the Forum’s 15th anniversary
    • Monthly meetings with a lecture and practical activities such as porcelain painting, art therapy, etc.
    • In May, the annual Breast Awareness Month with much advocacy in the media, as well as a meeting with a survivor from Sweden
    • A Pink Ribbon Day and May run Patients’ summer camp
    • Continuing work for the Breast Health Office
    • In October, Breast Health Day and a big charity concert
  • Finland

    National Representative: Christina Branders

    Email: puheenjohtaja@europadonna.fi

    Website: www.rintasyopayhdistys.fi

    Highlights of 2012

    • Weekly/monthly peer sessions for breast cancer patients, with groups for women with primary breast
    • cancer, metastatic breast cancer, and young women
    • Peer camps on different themes such as exercise and art therapy
    • Participation at EBCC-8, the ED Advocacy Training Course and the ED Advocacy Leader Conference
    • Attendance at patient safety workshops, organised by local health authorities
    • A meeting with a member of the Finnish parliament and one with the Minister of Health and Social Services
    • Co-operation with other patient organisations, including a campaign with the Cancer Foundation for the sale of pink ribbons
    • A Breast Health Day media and digital campaign, with media materials with infographics sent to print and digital media, and contacting of national and local
    • radio and TV channels
    • A members’ survey on the quality of life of metastatic breast cancer patients
    • In November, the General Assembly

    Activities for 2013

    • Publication of a book on the survey results on quality of life of metastatic breast cancer patients
    • Participation in ED activities
    • Breast Health Day activities
  • France

    National Representative: Martine Castro

    Email: martinecastro@gmail.com

    Website: www.europadonna.fr

    Highlights of 2012

    • Editing and promoting the brochure on metastatic breast cancer
    • Increased activities in all delegations, with each delegation holding its own activities according to ED’s
    • 10 goals, often related to healthy living, such as walks
    • and sporting events
    • Pink October and Breast Health Day nation-wide
    • Yearly conference at the French Senate on controversies about breast cancer
    • Participating as speakers or moderators at breast cancer conferences and congresses

    Activities for 2013

    • Launch of the new ED France website
    • Promotion of new activities in all delegations (Cafés Donna, workout activities, conferences, etc.)
    • French version of the ED booklet Clinical Trials and Breast Cancer
    • Opening two new delegations in Lille and Caen
    • In October, the annual conference at the French Senate, “My Breast Cancer, Me and My Relatives”
    • Increased ED presence and awareness in the breast cancer field
    • Participating in the 3rd Cancer Plan
  • Georgia

    National Representative: Nino Kartvelishvili

    Email: nin_ka@hotmail.com

    Highlights of 2012

    • Conducting training sessions on self-examination and other related issues for women in Kakheti in eastern Georgia
    • Creating a donation box that was put in a large supermarket
    • Issuing two booklets that were given out to patients at oncology hospitals throughout Tbilisi
    • Organising a photo gallery on surviving breast cancer and women affected by the disease

    Activities for 2013

    • On Mother’s Day in Georgia, a charity event, where breast cancer survivors participated
    • Attending a conference in Kutaisi with lectures and short training sessions for women of the Imereti region
    • Participating in the ’’Race for the Cure’’ marathon, in which many of the Georgian public actively participates
    • Publishing new books about breast cancer to help survivors with psychological and other issues
  • Germany

    National Representative: TBC

    Highlights of 2010

    • Creating a group for breast cancer patients so they can meet each other monthly and share their stories
    • Guiding this group and organising lectures
    • Starting weekly visits to breast cancer patients in hospital
    • Co-operating with the hospital to have the breast unit certified

    Activities for 2011

    • Certification of the breast unit
    • Organising activities for breast cancer patients in partnership with the doctors and nurses of the breast unit
    • Breast Health Day activities
    • Attending the 10th ED Pan-European Conference
  • Greece

    National Representative: Elizabeth Meier

    Email: lizameier85@gmail.com

     

    Highlights of 2012

    • A General Assembly to discuss the continuation of the programme, minimising expenses, and the upcoming election of the new board
    • Participation of the ED Greece President on television panels on breast cancer
    • Presentation of an initiative to the Greek Parliament suggesting that a specialised Breast Cancer Parliamentary Committee be formed within the Greek
    • Parliament
    • Participation in events organised by townships throughout Greece to strengthen breast cancer awareness
    • October activities and Breast Health Day activities in the centre of Athens, including distribution of ED self-test guides and guidelines brochures
    • Participation in medical conferences and breast cancer discussions such as the Breast Cancer Seminar held by the University of Athens, Attikon Hospital in Haidari,
    • organised by the hospital’s breast cancer medical team

    Activities for 2013

    • Planned participation in activities and to reinvigorate the organisation with new members and new initiatives
    • Participating in the ED Advocacy Training Course and the Pan-European Conference
  • Hungary

    National Representative: Zsuzsanna Péter

    Email: info@rakszovetseg.hu

    Highlights of 2010

    • Participation with leading civil associations against breast cancer in several programmes, such as Bridge Walks in Gyó´r and Budapest and Health Days in several small settlements and in cities
    • In September, attending the ED Breast Cancer Advocacy Leader Conference in Milan
    • On 15 October, holding of a nation-wide meeting for breast cancer patients and civil support groups. The attendees were informed about ED goals and activities, about patients’ needs in Hungary and about the importance of healthy lifestyles

    Activities for 2011

    • Ensuring running costs are covered, as a main priority
    • Supporting our office network where cancer patients can obtain support and assistance
    • Support of patients’ groups
    • In May, the annual General Assembly
  • Iceland

    National Representative: Gudrun Sigurjonsdottir

    Email: samhjalp@krabb.is

    Highlights of 2012

    • In September, inviting a representative of the National Hospital’s breast care unit to an open meeting in order to inform members about the unit’s activities and
    • recent developments
    • For Breast Health Day, a walk in the centre of Reykjavik with the participation of other cancer societies
    • In October, organisation of a public seminar “Life and Health” on breast cancer in co-operation with local cancer societies, chaired by a former minister and
    • parliamentarian and held at the University of Iceland

    Activities for 2013

    • In October, pink illumination of prominent buildings
    • Participation of two volunteers in the ED Advocacy Training Course
  • Ireland

    National Representative: Tara Byrne

    Email: info@europadonnaireland.ie
    Website: www.europadonnaireland.ie

    Highlights of 2012

    • Creation of an ED Ireland profile for Facebook and Twitter by a student group at a business school, with competitions for concert tickets on Breast Health Day
    • Active contribution to Facebook/Twitter
    • Involvement in review of the national screening programme
    • Attending the Ireland/Northern Ireland NCE–Cancer Consortium workshops and membership of National Cancer Control Programme Survivorship Working Group
    • Membership on the following boards: Hospital Pharmacies Review, Radiographer Registration, Health Technology Assessment
    • A series of events for Breast Health Day in Ireland
    • A talk on pathology results and breast cancer
    • ED Ireland stand at various conferences

    Activities for 2013

    • Support of new breast cancer dragon boat teams nation-wide
    • In April, launch of Fashion Targets Breast Cancer Campaign
    • In June, the Annual General Meeting featuring a lecture
    • A health activity talk with Coach Murphy
    • Inviting the Director of the National Cancer Control
    • Programme to speak to the ED Ireland group
    • Attendance at the 50th anniversary of the Irish Cancer Society
    • Membership of new OncoFertility Group
    • A talk at Clonmel Cancer Care annual fund-raising lunch
    • Attending ED UK symposium
    • Talks to local women’s groups
  • Israel

    National Representative: Miri Ziv

    Email: miriziv@cancer.org.il
    Website: click here

    Highlights of 2012

    • Pink illumination of Haifa University and Israel’s tallest residential tower
    • Seminars on “celebrating life” for patients and survivors; genetic mutation carriers; metastatic breast cancer, with Hebrew and Russian speakers
    • An early detection awareness newspaper campaign
    • BIO magazine highlighting breast cancer
    • Collaboration with website featuring celebrities and ordinary people photographed holding a sign with “Go get yourself checked”
    • “Yad Lehachlama” campaign with new film and media advertising
    • A call-in line at IDF radio station
    • A T-shirt design contest promoting breast cancer awareness
    • A fun-filled activity day for breast cancer patients and their families
    • A breast cancer research fund-raiser, with a media campaign at Kibbutz Yagur
    • Two Dragon Boats steered by “Yad Lehachlama” breast cancer patients and survivors at the Dragon Boat Festival
    • Closed forum for breast cancer professionals on ED Israel website
    • Mobile Mammography Unit performance of over
    • 16,000 screenings in 180 towns. No gaps in screening
    • compliance rates between Jewish and Arab women;
    • 30% drop in breast cancer mortality over the past
    • decade among Jewish women and a 25% drop among
    • Arab women over the last 5 years

    Activities for 2013

    • Operation of a second mobile mammography unit
    • Seminars across Israel
    • Bama journal for professionals Informational materials and call for research proposals
    • to promote breast cancer research
    • Updating website, Facebook page and diverse fora
  • Italy

    National Representative: Rosanna D’Antona

    Email: segreteria@europadonna.it

    Website: www.europadonna.it

    Highlights of 2012

    • In collaboration with the Italian Federation of General Practitioners (GPs), recommending a protocol aimed to create a GP network supporting ED activities
    • Taking office within the Oncology Commission of the Lombardy government
    • Obtaining a pledge from the Ministry of Health to support ED in creating 30 breast units in Italy
    • Holding of the first meeting with the Ministry and the breast cancer associations of central and northern
    • Italy, with the publication of the first report on breast units with the recommendations and the needs of the associations

    Activities for 2013

    • An information campaign in favour of the resolution setting out guidelines for the network of breast cancer centres in Lombardy providing for the establishment of
    • about 20 breast units
    • A second meeting with the associations of southern Italy, with a new expanded edition of the report on the breast units
    • Presentation of the report to the Ministry of Health in Rome
    • Survey to measure the involvement of GPs in the treatment of breast cancer, including presentation of the results at a press conference
    • Meeting in Brussels with the Italian members of the European Parliament
  • Kazakhstan

    National Representative: Nagima Plokhikh

    Email: healthasiakz@mail.ru

    Website: www.za.kz

    Activities for 2012

    • Acting as goodwill ambassador for the Pink Silk Way to decrease the risk of breast cancer among women in Central Asia
    • Working together with the Kazakhstan government for a national screening programme
    • Having the National Programme for Oncological Care accepted and signed. The focus of the programme is implementation of screening for early diagnosis and provision of cancer therapy according to international standards
    • Initiation of screening pilot projects to support women with breast cancer
    • Participation in the ED Advocacy Leader Conference
  • Kyrgyzstan

    National Representative: Taalaigul Sabyrbekova

    Email: sabyrbekova2011@gmail.com

    Highlights of 2012

    • In February, conducting a “For life!” charity event
    • Establishing an electronic registration system of cancer
    • patients at the National Oncology Centre
    • An awareness campaign “Life without pain” to promote palliative care standards Pink October events
    • Continuing information dissemination on breast cancer through the mass media
    • Implementing the first full field digital mammography equipment in the country
    • Participation in developing a national programme on reproductive health, including breast and cervical cancer, on a governmental level
    • Participating in the development of national standards on palliative care
    • Capacity strengthening for breast cancer survivorship
    • Breast cancer patient support, such as psychology consultations, rehabilitation and prevention of lymphoedema, and provision of breast prostheses

    Activities for 2013

    • Efforts to establish a breast unit, including training a local medical technicians to work on the mammography equipment; training of specialists (oncologists, radiologists) to read the digital
    • mammography images; and adaptation of EU guidelines
    • Continuing breast cancer patient support activities
    • Pink October Events and fund-raising
  • Latvia

    National Representative: Gunita Berke

    Email: europadonna@dzivibaskoks.lv

    Webmail: www.dzivibaskoks.lv

    Highlights of 2012

    • Three psychosocial rehabilitation camps for breast cancer patients, with 60 women participating
    • A seminar to inform other NGOs about advocacy concerning the politics of the health care system
    • A walk with the slogan “I will participate” to encourage women to attend the screening programme
    • Preparing and publishing four issues of the magazine Pacients balss
    • Fund-raising activities in October, including a march through the capital with the slogan “Colour Riga in pink”. Accompanied by a brass band, members and supporters attached pink ribbons to all the female statues in the parks and gardens in the city centre
    • On October 15, a press conference on breast health, with the participation of health and welfare ministers

    Activities for 2013

    • Continuing to introduce psychosocial rehabilitation services
    • Holding an October campaign, “Inspire for Life”, to raise awareness and funding for the creation of the psychosocial rehabilitation centre
    • Creating regular Internet activities with live streaming, where professionals discuss coping and living as a cancer survivor and hosted by a famous Latvian actress who is a breast cancer survivor
    • Publishing a series of brochures with vital information on cancer for patients and their relatives
  • Lithuania

    National Representative: Erika Umbrasaite

    Email: e.umbrasaite@gmail.com

    ED Lithuania had a busy year working with government institutions and the media. We discussed treatment availability, rehabilitation issues, and raised awareness through articles and interviews. We also had close contact with Lithuanian Parliament and were in touch with a member of European Parliament. We are working with the nurses and doctors of Vilnius University Oncological Institute. In co-operation with breast cancer survivors’ organisations, we held the international forum “Women Against Breast Cancer” and met with ED President Ingrid Kössler. In September, we held our first march against breast cancer, which also launched our fundraising campaign for the Pink Ribbon Society. In October we held our traditional scientifically-practical conference. Also in October an ED Lithuania member and a journalist participated in Breast Health Day in Milan, after which many articles were published in the biggest Lithuanian news portal. In December we backed the publishing of a breast cancer survivor’s book One Breast Story. Part of the proceeds from the sale of the book go to the core biopsy needles project for Lithuanian hospitals. Together with Vilnius International Women’s Association and a pharmaceutical company we raised more than 10,000 euros for this project, which will be implemented in 2009. During 2008 we organised three seminars for patients’ organisations. We published the brochure “Is it breast cancer?” and distributed it for free to all oncological hospitals, patients’ organisations and women’s health doctors. We also helped to establish another patients’ organisation in Kaunas.

  • Luxembourg

    National Representative: Mariette Fischbach

    Email: mariettefischbach@yahoo.de

    Highlights of 2012

    • In May, a “Breast Clinic” conference to celebrate the 10th anniversary of ED Luxembourg, with an introduction by the Minister of Health and featuring international and national speakers
    • The “Toujours femme” art exhibition
    • In October, a Breast Cancer Race with 1050 participants and a huge flash mob arranged by 80 women from a fitness centre
    • Breast Health Day at Domaine Thermal with a Zumbathon, an exhibition of photographs and testimonies from cancer survivors, and information about physical activity
    • October activities such as a body balance event, a “Pink power party” by a women’s basketball team, distribution of pink ribbons, information and documents

    Activities for 2013

    • In June, a conference and workshop to present The Year of the Pale Sunflower edited by young Swiss cancer survivors. Also national professionals,psychologists, oncologist and others will exchange their experiences
    • As a priority for 2013, providing information about the best quality of care, including the importance of the breast care nurse, the psychologist and physical therapist. Based on a brainstorming session with breast
    • cancer patients, survivors, professionals and physicians, meetings will be held with hospital directors to find
    • solutions to offer the same conditions and quality of supportive care to each patient
    • On 15 October, the 11th Breast Cancer Race
    • Breast Health Day at Villa Vauban in Luxembourg City
    • Pink October activities
  • Macedonia

    National Representative: Biba Dodeva

    Email: info@borka.org.mk

    Highlights of 2012

    • “Go Pink Walk 2012” to raise breast cancer awareness
    • For Breast Health Day, a day trip to the city of Stip for breast cancer survivors
    • In October, the 5th National Breast Cancer Conference
    • In December, “Pink Night 2012”, a fund-raising event to provide wigs for underprivileged women
    • “Pink Caravan” with 21 educational lectures on breast cancer in different cities around Macedonia
    • “My Choice is Prevention” educational lectures about regular monthly self-examination at 10 high schools in Skopje
    • Attending the ED Advocacy Leader Conference
    • Attending the ED Advocacy Training Course

    Activities for 2013

    • Activities for 2013
    • “Go Pink Walk 2013” to raise awareness of breast cancer
    • Breast Health Day activities
    • Attending at 11th ED Pan-European Conference in Prague
    • The 6th National Breast Cancer Conference
    • The 4th “Pink Night 2013” fund-raising event
  • Malta

    National Representative: Doris Fenech

    Email: info@europadonnamalta.org.mt

    Webmail: www.europadonnamalta.org.mt

    Highlights of 2012

    • Breast Health Day activity in Valletta with several simultaneous sports activities
    • A fashion show featuring breast cancer survivors on the catwalk with professional models
    • Two breast awareness walks, one in Malta and one in Gozo
    • Gala auction dinner
    • Quiz night
    • Activities for the whole family in two shopping centres in Malta and Gozo

    Activities for 2013

    • Opening of the first ED Malta premises
    • Seminar about breast cancer care for health professionals in Gozo
    • Fashion show with the participation of breast cancer survivors
    • Launching of the book My Life My Health together with a half-day seminar for teachers
    • A breast awareness walk
    • Quiz night
    • Breast Health Day activities
    • An awareness activity in a shopping centre in Gozo
    • Gala auction dinner
  • Moldova

    National Representative: Larisa Sofroni

    Email: sofroni@yandex.ru

  • Monaco

    National Representative: Adeline Garino

    Email: adelinegarino@libello.com

    Webmail: www.ecoutecancerreconfort.org

    Highlights of 2011

    • In May, a charity lunch at the Monte Carlo Golf Club
    • In December, a gala evening fund-raiser with a draw for prizes generously donated by shop owners, helping to fund ED Monaco’s activities
    • A stand at the Christmas market on Quai Albert I displaying crafts made by patients and volunteers at the Wellness Centre

    Activities for 2012

    • On one Wednesday a month from February to June, a “tea time” in the “Espace Mieux Etre”
    • In March, the annual general meeting, held prior to “tea time”
    • Also in March, a song recital evening at the Princess Grace Theatre with proceeds going to ED Monaco
    • In June, the traditional outing to “Cotton”
    • In November, celebration of the 20-year anniversary of the organisation
  • The Netherlands

    National Representative: Ellen Verschuur

    Email: ad_en_eaj_verschuur@planet.nl

    Highlights of 2012

    • Developing and completing the quality criteria for breast cancer screening, diagnosis, treatment and aftercare from a patient perspective, part of the monitor of breast cancer services, with a consumer quality index questionnaire for patients
    • In March, attendance of two ED Netherlands members at EBCC-8 in Vienna
    • In September, attendance of two ED Netherlands members at the ED Advocacy Leader Conference
    • Attendance of two ED Netherlands members at the ED Advocacy Training Course in Milan
  • Norway

    National Representative: Inger Margrethe Holter

    Email: post@brystkreftforeningen.no

    Highlights of 2012

    • Organisation of meetings, physical activity events, trips, etc. by the 61 local associations
    • A weekend gathering for women aged under 40 years
    • A weekend gathering for health and relaxation with yoga and meditation
    • A weekend gathering for women with advanced cancer and their partners
    • A weekend gathering for women focusing on life after treatment
    • A weekend training session for volunteers at the visitor service, contact telephone support and self-help groups
    • Visiting more than 800 newly operated women at 16 different hospitals
    • Having 115 women contact the telephone support service
    • Distributing 1900 prostheses to women post-surgery
    • Collecting more that 2.7 million euros through the Pink Ribbon Action in October and raising awareness of breast cancer
    • Attending the ED Advocacy Leader Conference
    • General Assembly

    Activities for 2013

    • Advocacy for the public breast screening programme
    • Advocacy for breast reconstruction
    • Pink Ribbon Action in October
  • Poland

    National Representative: Dorota Czudowska

    Email: polskieforum@europadonna.org.pl

    Webmail: www.europadonna.org.pl

    Highlights of 2012

    • Participation in EBCC-8 in Vienna, including a President’s lecture
    • XV Congress of ED Poland delegates in Nowy Sącz
    • Meeting of the Board and ED Poland leaders to develop a logistics plan and the programme for Breast Health Day
    • Holding Pink Ribbon Marches and Breast Health Day presentations in Dębica, Legnica, Nowy Sącz, Pilła and Przemyśl
    • Participation of an ED Poland delegation in the Senate Health Committee, with activities, presentation of posters, brochures and leaflets in the Senate
    • Many lectures, presentations and conferences about ED and breast cancer

    Activities for 2013

    • Continuation of activities to promote the prevention of breast cancer, e.g., lectures, presentations, scientific and press conferences
    • In June, the XVI Congress of ED Poland delegates in Nowy Sącz
    • In October, celebration of Breast Health Day
    • Participation in the 11th ED Pan-European Conference in Prague
    • In November, participation in the ED Advocacy Training Course
  • Portugal

    National Representative: Amelia Olimpia Pinto Leite

    Email: europadonna@ligacontracancro.pt

    Highlights of 2012

    • Continuation and expansion of the breast cancer screening programme
    • Translation of the “Short Guide to the EU Guidelines” into Portuguese
    • Continuing advocacy for the rights of cancer patients and survivors
    • In March, a discussion on the awareness of breast cancer
    • In May, the national conference “Cancer Screening” and the first Cancer Survival Conference
    • In October, several formal discussions focused on the theme “Let’s talk about cancer”, with a radio broadcast
    • In October, a “Little Steps, Large Gestures” public walk held simultaneously in seven cities to raise awareness of early detection
    • In October, the “Fifth Pink Lunch” with the theme “Let’s celebrate life”
    • In November, the First National Consensus organised by the Portuguese Reach to Recovery and ED Portugal

    Activities for 2013

    • Continuation and expansion of the screening programme for breast cancer in Portugal
    • Continued advocacy for the rights of cancer patients and cancer survivors
    • In February, an article for the ED newsletter, “More than two decades of breast cancer early diagnosis activity”
    • A campaign to raise funds and awareness of breast cancer through a banking network
    • A campaign with Avon to raise funds and awareness for breast cancer that will allow the purchase of three direct digital mammography units
    • In May, attendance at health conferences at the national parliament for 7 days. For 2 days two mobile screening units allowed parliamentarians and employees aged 45-69 years to have a mammogram
    • In October, organisation of a conference on primary prevention and screening for breast cancer
  • Romania

    National Representative: Mihaela Geoana

    Email: contact@fundatiarenastera.ro

    Highlights of 2012

    • In March and October, conducting two media campaigns to raise awareness of breast cancer, with participation in TV and radio debates
    • Initiating a draft of legislation for Romanian Parliament allowing women a half day off work for medical check-ups, as many women do not find the time outside their work day
    • In October, pink illumination of prominent buildings in Bucharest
    • Speaking about women’s health, prevention and early detection of breast cancer on television programmes
    • Promotion of the new medical centre, The Medical Center of Excellence, specialised in the early detection of breast and reproductive cancer
    • Operation of mobile units providing free mammograms and Pap smears for women in rural and pre-urban areas

    Activities for 2013

    • Awareness and communications campaigns
    • Holding fund-raising events such as the “Art for Life” gala in June and pink illumination in October
    • Advocating for support of a national breast cancer screening programme from the state authorities, the media and the general public
  • Russia

    National Representative: Oksana Moldovanova

    Email: moldovanova@nwhcf.ru

     

  • Serbia

    National Representative: Andjelka Majic

    Email: saimar@yubc.net

    Highlights of 2003/4

    • psycho-oncological educational workshops, counselling and support
    • medical support
    • legislative support
    • close collaboration with multidisciplinary groups of official medical staff
    • social events with family and friends
    • media activities (journal, notes, TV, radio, booklet “Breast cancer: illusions and facts”
    • cooperation with humanitarian organizations “Association Dunable Dunav”, “Bread of Life”
    • every day phone “hotline”
    • volunteer activities of survivors who make efforts especially for the women who are alone and can’t take care of themselves.
    • social activities, sponsored by Health Ministry of Serbia
    • In Uzice, “Jefimija” breast cancer forum organized the street event selling flowers and cakes collecting the funds for haemotherapy fund.
    • Under the auspices of Serbia Health Ministry and local Health Authorities for the first time the round table was organized with theme: “The problems in diagnostics and breast cancer treatment” where the Breast Cancer Council and official breast cancer institutions were collaborating as equal partners with respect for future collaboration.
  • Slovakia

    National Representative: Alena Kallayova

    Email: akallayova@gmail.com

    We would like to give our thanks for the warm welcome of Slovak Republic into EUROPA DONNA in November 2004 and for the opportunity to take part in the Advocacy Training Course in Milan during the same month. It was a very informative and useful session full of positive energy and inspiration. We are proud to be a member of the EUROPA DONNA family. We have started our activities by establishing our organisation and its website, www.europadonna.sk, at the beginning of this year, and we look forward to sharing our further achievements in the next report.

  • Slovenia

    National Representative: Mojca Sencar

    Email: europadonna@europadonna-zdruzenje.si

    Highlights of 2012

    • Publication of four issues of ED News
    • 18 lectures throughout Slovenia on breast cancer, healthy lifestyles and self-examination training
    • Counselling by telephone, personally, email, and visiting patients in hospital
    • Highly active young patients’ section
    • 2 days of counselling for 190 participants on the latest findings in systemic treatment with an emphasis on metastatic breast cancer; on the risk of hereditary breast cancer; on lymphoedema and treatment possibilities
    • Organisation of consultative meetings with other societies on “Not just body treatment – we need more!”
    • October activities
    • “Running and Walking for Hope” in four cities
    • Yoga for breast cancer patients
    • Two outings for patients

    Activities for 2013

    • Lobbying the Ministry of Health and professional circles for implementation of screening according to the EU guidelines as currently organised screening is accessible only to women in certain parts of Slovenia
    • Publication of four issues of ED News
    • Patient counselling
    • Emphasis on psychosocial support and holistic rehabilitation
    • Promoting guidelines on lymphoedema treatment
    • Lectures nation-wide
    • 2-day seminar for patients on the importance of healthy lifestyle
    • “Running and Walking for Hope” in five cities
    • October activities
    • Outings for patients
    • Yoga
    • Publication of two booklets: Food and Cancer and Metastatic Breast Cancer
  • Spain

    National Representative: Carmen Boronat Jiménez

    Email: cboronat@icab.es

    Website: www.fecma.org

    Highlights of 2012

    • Psychological support for women with breast cancer and their families
    • Physiotherapy for lymphoedema
    • For the 4th consecutive year, the traditional ED Spain University Menéndez Pelayo Course with more than 150 specialists and women affected with breast cancer in attendance, covering such topics as the sustainability of the national health system, side effects of breast cancer as a chronic illness, and collective strategies for patients
    • In October, a press conference to present the Manifesto and an awareness campaign emphasising early detection and the need for women to attend regular check-ups
    • Active participation in all meetings and initiatives organised by the Ministry of Health, especially in the National Cancer Strategy, as experts

    Activities for 2013

    • Presentation of the study of breast cancer patients involving a quality of life survey aiming to identify the information needs of patients in different stages of the disease and the needs and expectations for health and social care for the different stages of survival
    • In July, the University Menéndez Pelayo course on advocacy and the sustainability of the public health system
    • In October, a media campaign and production of publicity material
    • Awareness-raising through media on commemorative days
  • Sweden

    National Representative: Elizabeth Bergsten Nordstrom

    Email: elizabeth.bergsten-nordstrom@bro.org.se

    Webmail: www.bro.org.se

    Highlights of 2012

    • In May, hosting of the Nordic Breast Cancer Conference in Stockholm
    • In August, the Pink Walk “Rosa Steget” in Gothenburg
    • In October, a Breast Health Day seminar in Stockholm
    • ED Sweden’s annual award for excellent achievements in breast cancer treatment, care and awareness
    • ED Sweden’s award for the Swedish Breast Cancer Nurse of the year
    • Awarding of research grants from the Swedish Breast Cancer Fund for clinical breast cancer research projects
    • Recreational weekends for young women treated for breast cancer and young women with metastatic breast cancer
    • In October, Pink Ribbon activities and awareness campaigns throughout the country
    • The Swedish Breast Cancer Organisation’s 30th anniversary

    Activities for 2013

    • In October, a Breast Health Day seminar in Stockholm
    • Lobbying at both a local and national political level
    • Recreational weekends for young women treated for breast cancer and women with metastatic breast cancer
    • During October, Pink Ribbon activities and awareness campaigns throughout the country
  • Switzerland

    National Representative: Donatella Corbat

    Email: zentralsekretariat@europadonna.ch

    Webmail: www.europadonna.ch

    Highlights of 2012

    • Forming a new structure for ED Switzerland with a new board and president
    • Arts and Humanities Award at EBCC-8 in Vienna to the “Cantiere di pensieri” project that led to the book The Year of the Pale Sunflower
    • Continuing action to introduce the screening programme in Central Switzerland
    • Breast Health Day in different parts of Switzerland with distribution of apples and flyers in three languages
    • Active participation and attendance at different conferences

    Activities for 2013

    • Initiation of the screening programme in the Bern canton with ED Switzerland involvement in the working group taking care of information and communication
    • Possible start of the mammography screening programme in Southern Switzerland with ED Switzerland involvement in the information and communication planning
    • 24-hour “Walk for Life” from Lucerne to Bern (90 km) to demonstrate that life after breast cancer can be active and healthy, especially with early diagnosis
    • Launch of a website in Italian on breast health and breast cancer care by the regional group of Southern Switzerland
    • Development of a patient’s agenda by the regional Group of French Switzerland
    • Breast Health Day in different parts of Switzerland
    • Active participation and attendance at different conferences
  • Tajikistan

    National Representative: Firuza Abdullaeva

    Email: avesto@mail.ru

    Highlights of 2012

    • Four roundtables on breast cancer advocacy with the participation of health workers and committees on women’s issues
    • Six meetings on breast cancer advocacy
    • Breast Health Day activities
    • A Healthy Breast Week with roundtables, training sessions, information campaigns, meetings with women community leaders, practical sessions on exercise and breast self-examination
    • Training sessions for medical personnel on improving clinical breast examinations skills
    • Organisation of three support groups for survivors
    • Training for survivors on nutrition, rehabilitation, lymphoedema prevention, and psychological assistance for families

    Activities for 2013

    • In April, World Health Day activities, including an information campaign, free health examinations by family doctors, training in breast self-examination, with 350 participants
    • Education of girls and young women with disabilities about breast self-examination, with 56 participants
    • Four advocacy information campaigns
    • Three workshops on breast self-examination
    • Four training sessions for medical personnel on improving clinical breast examination skills
    • In August, a 2-day cancer workshop for physicians and patients, in collaboration with international organisations including the World Health Organisation, on topics from epidemiology and prevention to treatment
    • Organising three support groups for survivors
    • Printing booklets and information materials on breast cancer
    • Breast Health Day activities
    • Monitoring and evaluation of activities carried out by primary health care doctors
    • Meetings with women leaders on advocating for women’s health and breast cancer prevention
  • Turkey

    National Representative: Violet Aroyo

    Email: violetaroyo@hotmail.com

    Highlights of 2012

    • In May, establishing the Young Breast Cancer Survivors’ working group
    • In September, participation in the National Cancer Congress
    • Initiation of a nation-wide education programme for secondary school students and their mothers on breast cancer awareness and breast health through the Ministry of Education. It began following a pilot project and ED Turkey members took part in seminars and training
    • Participation in the annual International Women of Istanbul Christmas Bazaar with the traditional calendar, handicrafts and gift items provided by ED members

    Activities for 2013

    • In May, establishing the Young Breast Cancer Survivors’ working group
    • In September, participation in the National Cancer Congress
    • Initiation of a nation-wide education programme for secondary school students and their mothers on breast cancer awareness and breast health through the Ministry of Education. It began following a pilot project and ED Turkey members took part in seminars and training
    • Participation in the annual International Women of Istanbul Christmas Bazaar with the traditional calendar, handicrafts and gift items provided by ED members
  • UK

    National Representative: Margaret Spittle

    Email: edukforum@gmail.com

    Highlights of 2012

    • In March, a stand at a “Cancer Wellbeing” event promoting ED UK to patients
    • In May, a meeting with ED UK’s Scientific Advisory Group to discuss breast cancer changes in the National Health Service (NHS)
    • In December, participation in the Britain Against Cancer Conference. Health Secretary Jeremy Hunt outlined NHS reforms, including cancer services

    Activities for 2013

    • In February, a prestigious week-long stand in the Houses of Parliament exhibiting ED publications and activities to MPs and visiting public
    • In March, a symposium “Breast Cancer: Risk factors, Prevention, Lifestyle” involving an audience of health care professionals and breast cancer charities. Experts covered topics including: risk factors and assessment models; prevention strategies and risk-adapted screening possibilities; and lifestyle and diet affecting breast health
    • In April, attendance at an All Party Parliamentary Group on Breast Cancer meeting to hear evidence on breast cancer support for older women
    • In October, a proposal for an exhibition at the Houses of Parliament to coincide with Breast Health Day
  • Ukraine

    National Representative: Galina Maistruk

    Email: maistruk@rhr.org.ua

    Highlights of 2012

    • The 3rd School of Mammography 5-day training course for breast radiologists given by international faculty, with 89 Ukrainian radiologists completing the course since 2010
    • Nation-wide Pink October information campaign with events such as two TV shows, a film presentation with participation of celebrities, breast cancer survivors and the media
    • A wide fund-raising campaign through cinemas in Kiev and other activities, leading to sufficient funds to purchase mammography equipment for Poltava Regional Cancer Centre
    • Participation in the ED Advocacy Training Course, followed by advocacy, fund-raising and media trainings for advocates from different regions of Ukraine
    • Permanent support of the breast cancer hotline with free access nation-wide

    Activities for 2013

    • A monthly information and cultural programme for survivors and advocates with support of Kiev City Cancer Centre
    • In May, Breast Cancer Awareness Day in Poltava
    • Production and wide distribution of breast cancer prevention posters in primary health care facilities providing clinical screening and encouraging referral for mammography
    • “Pink Salsa” campaign in three cities to promote healthy and active lifestyles
    • In October, a public event in the Ukrainian parliament advocating for support of breast units
  • Uzbekistan

    National Representative: Shakhnoza Umarova

    Email: eduzbekistan@mail.ru

    Highlights of 2012

    • In April, a charity football game “In the Name of Life!” to support women with breast cancer
    • In August, a roundtable on providing psychological and social support for women diagnosed with breast cancer, together with Susan G Komen for the Cure
    • In May, the Race for the Cure
    • In June, a training session in three regions for breast cancer patients on psychological aspects
    • In August, a training session for local oncologists on breast cancer epidemiology, diagnosis, treatment and prevention
    • In October, a Pink Ribbon Gala dinner
    • From October to December, annual free medical check-ups for women from remote areas

    Activities for 2013

    • In February, a conference on personalised medicine and modern aspects of screening and prevention, together with the University of Southern California
    • In March and April, a charity marathon and football games to support women with breast cancer
    • In April, a charity football game and a charity concert
    • In May, an Uzbek-Israeli scientific conference “Days of Hadassah University Clinic in Uzbekistan”
    • In October, annual Pink Ribbon Gala dinner