Member Countries

  • Albania

    National Representative: Diana Myrto

    Email: albania-breastcancer@hotmail.com

    Highlights of 2012

    • A national awareness campaign for early detection of breast cancer through screening
    • Nation-wide distribution of a brochure with basic information on breast cancer prepared by national experts in the field of public health and communication
    • Distribution of information materials to the media
    • Creating a banner on routine breast examination, prepared by experts in the field
    • A training workshop for the staff at the Tirana Health
    • Centre, including 20 physicians
    • A one-week health fair organised by the Ministry of  Health and held in the country’s 36 districts

    Activities for 2013

    • An awareness campaign through schools in Tirana with the possibility of expanding through different regions of the country
    • Training with the nursing staff of the oncological hospital ”Mother Teresa” in Tirana
  • Austria

    National Representative: Mona Knotek-Roggenbauer

    Email: info@europadonna.at
    Website: www.europadonna.at

    Highlights of 2013

    • Distributing 700 patient information packages
    • Media interviews and articles in magazines
    • Implementation of “Mona’s Blog”
    • “Infotainment” in gynaecology surgeries in October
    • Participation and exhibition at congresses
    • Starting up in the social media (Facebook, etc.)

    Activities for 2014

    • Lectures at congresses
    • Meetings with the Ministry of Health
    • Advocacy
    • Interviews and reports in public newspapers
    • 1 st Austrian Breast Cancer Patients’ Congress in September
    • Working toward reaching the goal of a 10-fold increase in social media reach by the end of the year
  • Belarus

    National Representative: Palina Soldak

    Email: polinsoldak@mail.ru
    Website: www.europadonna.by

    Highlights of 2012

    • Attending the Breast Health Global Initiative
    • Conference in Vienna and making connections with ESMO experts
    • Developing standards for palliative care
    • Assisting in developing palliative care education and making connections with Harvard Medical School.
    • Harvard specialists attended the palliative care conference in October 2012
    • Strengthening breast cancer mass media coverage, using patients’ experiences
    • Training two new ED volunteers at the ED Advocacy Training Course in Milan

    Activities for 2013

    • Monitoring breast cancer screening implementation with WHO Belarus and the Oncology Institute
    • Developing a partnership with the Harvard oncology team
    • Developing continuing medical education on palliative care
    • Developing effectiveness indicators for breast cancer awareness
    • Strengthening media coverage on breast cancer by increasing the number of publications
  • Belgium

    National Representative: Rita De Coninck

    Email: info@europadonna.be
    Website: www.europadonna.be

    Highlights of 2013

    • Film: “C’est leur Histoire”
    • Supporting the Association Against Cancer through the Patients’ Association assembly and a day for patients with
    • lymphoedema
    • Breast reconstruction awareness day
    • An academic session with the Naboram self-help group in Antwerp

    Activities for 2014

    • Celebrating 20 Years of ED Belgium
    • General Assembly of ED Belgium in Brussels
    • A health conference on population-based cancer screening

  • Bulgaria

    National Representative: Mila Nenova

    Email: eudonnabg@abv.bg

    Highlights of 2009

    • Problems were encountered with financing activities. Therefore, activities focused on actions not requiring funding but that could contribute to promoting screening and increasing awareness
    • Meetings with members of parliament and Ministry of Health representatives, participation in the discussion of bills and laws regarding public health
    • Promotional activities such as participation in TV shows on various national TV stations, and others to raise the awareness of young women about the disease and the need for regular self-examination for early detection
    • Informal meetings with patients to help solve personal problems and provide advice about specialist care

    Activities for 2012

    • Promoting the European guidelines and insisting on screening programme implementation
    • Participation in the ongoing discussion on health reform
    • Raising public awareness of the disease
    • Information to young people about the disease and the possibilities of early detection
  • Croatia

    National Representative: Vesna Ramljak

    Email: vesnaramljak@yahoo.com

    Website: www.europadonna.hr

    Activities for 2014

    • Celebrating the 20th anniversary of ED Croatia throughout the country and presenting ED’s achievements at  other events
    • Continuing the “Donate Life in Pink“ campaign aiming to acquire an intraoperative radiotherapy device, and involving cooperation with mass media and personalities
    • Promoting specialist breast units through Pink Ribbon Day, Breast Health Day and Daffodil Day
    • For Pink Ribbon Day, a traditional walk throughout the city
    • For BHD, exercise programmes involving celebrities
    • Planning of a campaign with singer and songwriter Mr. Brian Ferry, who has accepted to record a song for  ED Croatia
  • Cyprus

    National Representative: Stella Kyriakides

    Email: info@europadonna.com.cy

    Website: www.europadonna.com.cy

    Highlights of 2013

    • Opening of the fourth ED Cyprus House in Paphos
    • Advocacy events and lectures with oncologists and surgeons
    • Pink Silhouette walk
    • Food parcels for women facing breast cancer
    • Participation in meetings with Ministry of Health steering committee for screening programme and meetings for
    • breast unit implementation
    • Summer party for women with breast cancer
    • BHD activities
    • Collaboration with other organisations for Cancer Day
    • First Lady of Cyprus visit to ED Cyprus House in Nicosia
    • The 6th year of the Breast Friends programme
    • Group and individual meetings with ED Cyprus clinical psychologist

    Activities for 2014

    • Lectures with oncologists and surgeons
    • Meetings with the president of Parliament about an oncology centre and with Ministry of Health and MPs regarding
    • breast units
    • Participation in the steering committee and follow-up of the screening programme
    • Pink Silhouette walk
    • Research on women’s and patients’ views on services
    • Concert at the Presidential Palace
    • Summer party for women with breast cancer
    • Meetings with ED Cyprus clinical psychologist
    • Breast Friends programme
    • Lecture on living with metastatic breast cancer by Dr. Olivia Pagani
  • Czech Republic

    National Representative: Marta Kostrovà

    Email: aliance@breastcancer.cz

    Highlights of 2013

    • The “You Can Do It, Too” event with a flight in a hot-air balloon to boost breast cancer awareness
    • Educational seminars on legal advice for patient organisations
    • BHD and the “We are Swimming the Breast Stroke” national event
    • Translation of the ED “Short Guide to the EU Guidelines”
    • Hosting the ED Pan-European Conference in Prague

    Activities for 2014

    • Educational seminars for regional organisations on communicating with media, new laws for NGOs
    • Translation of the MBC Annex to the “Short Guide to the EU Guidelines”
    • Launching the support project for MBC patients
    • Translation of the MBC guide published by ED France
    • “Mamming Day Prague” event in cooperation with the breast unit to encourage participation in screening
    • AVON Walk in Prague and for the first time also regionally
    • “It’s Not Only Breast” education of secondary school students for breast cancer prevention
    • “You Can Do It, Too” with a mini-golf competition
    • Annual conference on MBC, multidisciplinary team, and new breast cancer treatments
  • Denmark

    National Representative: Jonna Yde

    Email: jonna.yde@europadonna.dk

    Highlights of 2013

    • A stand at the Healthy Lifestyle Fair in Aarhus
    • In October, meeting on “How can long-term sequelae after breast surgery be treated?” and “Breast reconstruction
    • during and after surgery for breast cancer”

    Activities for 2014

    •  A gathering on the island of Bornholm in June
    • A meeting on “The importance of early intervention on late sequelae and reconstruction after breast cancer  surgery in Aabenraa” in September

  • Estonia

    National Representative: Tiuu-Liis Tigane

    Email: tiiu.tigane@regionaalhaigla.ee

    Highlights of 2013

    • Monthly Forum meetings, lectures, excursions, and handicrafts
    • Charity campaign in May with a video (https:/www.youtube.com/watch?v=0hbf-1sy4IY)
    • A “Run for Women” in May with about 14,000 runners
    • Meeting members of Swedish Breast Cancer organisation in Tallinn in May
    • Annual summer camp for all cancer organisations in Estonia in August
    • Annual BHD in October and Breast Awareness Month in May with press releases, TV and radio interviews, articles in  print media

    Activities for 2014

    • Monthly Forum meetings
    • “Run for Women” in May
    • Annual summer camp for patient organisations at a seaside resort
    • Campaign event in Tallinn with Femme.ee
    • Annual Breast Awareness Month and BHD activities
    • Charity concert in October
    • Charity campaign with Prisma in May and in October
  • Finland

    National Representative: Christina Branders

    Email: puheenjohtaja@europadonna.fi

    Website: www.europadonna.fi

    Highlights of 2013

    • Successful continuation of activities, despite a challenging financial situation
    • Launch of Helsinki University Hospital District TOIVO pilot project in March. ED Finland participated in planning
    • and has a joint responsibility for peer support during the project
    • Participation of two ED Finland members in the Finnish Cancer Association Delegation 2013-2015
    • Establishing peer group activities in several cities, as well as for young and for chronic care patients
    • Several awareness-building, cultural and wellness events
    • Publishing four issues of ED Finland magazine
    • Renewal of the ED Finland website

    Activities for 2014

    • Diversifying peer support activities to include various patient groups and geographic regions
    • Expansion of activities to a national level
    • Continued efforts for cooperation with regional cancer associations and membership in the Finnish Cancer
    • Association
    • Building cooperation with local and regional public sector organisations
  • France

    National Representative: Martine Castro

    Email: martinecastro@gmail.com

    Website: www.europadonna.fr

    Highlights of 2013

    • Launch of two new delegations in Caen and Lille
    • Opening of new “Café Donna” in different delegations. These are monthly meetings held in a cosy location,
    • where women can gather and openly exchange their concerns over a cup of tea
    • Participating in the third Cancer Plan
    • Analysing ED France’s survey on patients’ and close relatives’ perception of their breast cancer management
    • Increase the physical activity options for patients

    Activities for 2014

    • Strengthening of delegation activities throughout France, with an additional delegation opening in Nantes
    • Follow-up to the third Cancer Plan, announced by President Hollande, and meetings with Health Ministry and
    • National Cancer Institute
    • Implementation of initiatives to improve patient outcomes, as highlighted in the 2013 survey
    • Annual Conference at the French Senate on “Innovations in all fields connected with breast cancer”
  • Georgia

    National Representative: Nino Kartvelishvili

    Email: nin_ka@hotmail.com

    Highlights of 2013

    • TV bridge with Batumi and ED Georgia regional office to discuss simultaneous initiatives, informing the population of the Adjara region of breast cancer issues through Facebook
    • Free examinations in Tbilisi and Batumi in cooperation with medical doctors. ED advocates informed women of the importance of healthy lifestyles in reducing breast cancer risk
    • For BHD, a “Healthy Breast Dance” flash mob, live chain with coverage on three TV stations

    Activities for 2014

    • Free examinations and advocacy at the ED Georgia Batumi regional office in January
    • In February, an ED Georgia celebrity member took part in a TV show
    • In February, a charity evening “Tango Party” with breast cancer patients modelling dresses by famous designers, with the funds going toward patients needing trastuzumab
    • In March, a TV station invitation to speak on existing problems with breast cancer in Georgia
    • In May, an exhibition and presentation for MPs and wives of diplomats
    • Meeting students and advocacy events in summer
    • A charity concert in Batumi
  • Germany

    National Representative: TBC

    Highlights of 2010

    • Creating a group for breast cancer patients so they can meet each other monthly and share their stories
    • Guiding this group and organising lectures
    • Starting weekly visits to breast cancer patients in hospital
    • Co-operating with the hospital to have the breast unit certified

    Activities for 2011

    • Certification of the breast unit
    • Organising activities for breast cancer patients in partnership with the doctors and nurses of the breast unit
    • Breast Health Day activities
    • Attending the 10th ED Pan-European Conference
  • Greece

    National Representative: Elizabeth Meier

    Email: lizameier85@gmail.com

    Activities for 2013 and 2014

    • Participating on television panels to discuss breast cancer issues
    • Presenting formal proposals to the Greek Parliament to form a Breast Cancer Advocacy Board, to be discussed in Parliament in 2014
    • Meetings at the Ministry of Health about the role of NGOs in providing assistance, such as administrative and technical support and know-how, and also through advocacy programmes with the European Commission
    • Participating in awareness events such a physical therapy congress where ED Greece spoke about rehabilitation for lymphoedema
    • BHD activities in Athens with distribution of ED Greece “Self-Test guides” and guideline brochures
    • Participation in medical conferences such as the Breast Cancer Seminar held by the University of Athens
    • A booth at the “Money Show” exhibition in Athens to hand out brochures and inform attendees and participants of ED’s initiatives
  • Hungary

    National Representative: Zsuzsanna Péter

    Email: info@rakszovetseg.hu

    Highlights of 2010

    • Participation with leading civil associations against breast cancer in several programmes, such as Bridge Walks in Gyó´r and Budapest and Health Days in several small settlements and in cities
    • In September, attending the ED Breast Cancer Advocacy Leader Conference in Milan
    • On 15 October, holding of a nation-wide meeting for breast cancer patients and civil support groups. The attendees were informed about ED goals and activities, about patients’ needs in Hungary and about the importance of healthy lifestyles

    Activities for 2011

    • Ensuring running costs are covered, as a main priority
    • Supporting our office network where cancer patients can obtain support and assistance
    • Support of patients’ groups
    • In May, the annual General Assembly
  • Iceland

    National Representative: Gudrun Sigurjonsdottir

    Email: samhjalp@krabb.is

    Highlights of 2013

    • Co-hosting of a breast cancer seminar. A breast care nurse spoke of her own recent diagnosis
    • A BHD walk in downtown Reykjavik
    • Attending the Advocacy Training course and the Pan-European Conference
    • “The Casting for Recovery” programme, sending 12-15 women on a fishing trip to gain strength from each other in nature
    • Meeting with the Health Minister and a Ministry of Health official to object to and discuss the abrupt end of
    • subsidies of special bras for women who have had mastectomies

    Activities for 2014

    • Participation in the ED Advocacy Leader Conference and the Advocacy Training Course
    • Continuing work to defend the rights and to empower women diagnosed with breast cancer
    • Maintaining ties with fellow Nordic countries and seeking sponsorship from Icelandic corporations to be able to participate in the 2014 Nordic breast cancer conference
  • Ireland

    National Representative: Tara Byrne

    Email: info@europadonnaireland.ie
    Website: www.europadonnaireland.ie

    Highlights of 2013

    • Fashion Targets Breast Cancer Campaign launch
    • BHD Oireachtas (government) breakfast with members of parliament and senators
    • Two ED Ireland teams entered in International Dragon Boat Regatta
    • BHD events nationwide
    • BHD “Breast Stroke for Breast Health” campaign
    • Focus group sessions to review ED Ireland
    • Funding for Dragon Boat Road Show
    • ED Ireland talks nationwide
    • ED Ireland stands at Irish Cancer Society (ICS) conference and ICS European Week Against Cancer
    • Representation on Radiographers Registration Board, Oncofertility Consortium, and the Lymphoedema Prevention Group (National Cancer Control Programme)

    Activities for 2014

    • Dragon Boat Road Show
    • BHD activities
    • Teams participating in the Dragon Boat Regatta
    • Publication of the ED Ireland lymphoedema leaflet
    • A public talk by Dr Susan O’Reilly, Director National Cancer Control Programme, Ireland
  • Israel

    National Representative: Miri Ziv

    Email: miriziv@cancer.org.il
    Website: click here

    Highlights of 2013

    • “Pink Dish Programme”
    • A press conference with Ministry of Health and breast cancer experts
    • A hot-line in collaboration with Yisrael Hayom, the most circulated newspaper in Israel
    • “Pink Postcard”
    • Publishing a comic book Hope and a Tear through the Lens
    • “Celebrating Life” seminar
    • Israel’s first “Race in Heels”
    • Activity week concluding breast cancer Awareness Month on Ynet, Israel’s leading website
    • Campaigns and articles in the media
    • A one-hour interview with the ED Israel National Representative on the most popular radio station
    • Special issue of Bio health magazine dedicated to breast cancer issues
    Activities for 2014
    • A press conference with Ministry of Health and breast cancer experts
    • New campaign to heighten awareness of gene mutation carriers
    • “Pink Postcard”
    • Campaigns and articles in the media
    • “Celebrating Life” Seminar
  • Italy

    National Representative: Rosanna D’Antona

    Email: segreteria@europadonna.it

    Website: www.europadonna.it

    Highlights of 2013

    • Thanks to the commitment within the Oncological Commission, Lombardy approved the guidelines for the breast unit network
    • Second meeting with the Associations of Southern Italy, with a new expanded edition of the dossier by associations supporting breast cancer patients
    • Dossier presented to the Ministry of Health
    • Survey about life and needs of MBC patients presented in Milan and Lisbon

    Activities for 2014

    • For ED’s 20th anniversary and the imminent launch of the breast unit law, three public events in Milan, Catania, Rome with national authorities, European delegates, scientists
    • Three training sessions for ED Italy associations: interpersonal skills, health policy, fund-raising
    • Survey about protection of women with breast cancer by employers, conducted on workers and companies
    • ED Italy delegations visit to the breast unit to make a guide from the women’s point of view

  • Kazakhstan

    National Representative: Nagima Plokhikh

    Email: healthasiakz@mail.ru

    Website: www.za.kz

    Activities for 2012

    • Acting as goodwill ambassador for the Pink Silk Way to decrease the risk of breast cancer among women in Central Asia
    • Working together with the Kazakhstan government for a national screening programme
    • Having the National Programme for Oncological Care accepted and signed. The focus of the programme is implementation of screening for early diagnosis and provision of cancer therapy according to international standards
    • Initiation of screening pilot projects to support women with breast cancer
    • Participation in the ED Advocacy Leader Conference
  • Kyrgyzstan

    National Representative: Taalaigul Sabyrbekova

    Email: sabyrbekova2011@gmail.com

    Highlights of 2013

    • Efforts to establish a breast health unit, including training a local medical team to use the digital mammography
    • equipment, and adaptation of the EU guidelines in the Kyrgyz Republic
    • Breast cancer patient support such as psychology consultations, rehabilitation and prevention of lymphoedema,
    • provision of breast prostheses
    • Pink October Events and fund-raising
    • Organising mobile doctor team visits to regions
    • Awareness-raising activities (TV and radio programmes, articles in newspapers and on websites, and printed
    • materials on early detection and healthy lifestyles)

    Activities for 2014

    • “Movement Against Cancer in the Kyrgyz Republic” Forum in February
    • Launching the “Mammography Examination Room” Project
    • Advocacy for improvement of laws for oncology patients
    • Development of “Achyk Kitep”, a book compiling issues of oncology patients
    • Pink October Events and fund-raising
  • Latvia

    National Representative: Gunita Berke

    Email: europadonna@dzivibaskoks.lv

    Webmail: www.dzivibaskoks.lv

    Highlights of 2013

    • For World Cancer Day, starting an online oncology-patient advisor where specialists talk about the latest in
    • prevention, nutrition, exercise, etc.
    • In summer, a psychosocial rehabilitation programme for survivors
    • In October, “Colour Latvia Pink”, emphasising breast health promotion
    • In November, participating in the ED Advocacy Training Course

    Activities for 2014

    • Advocating for patients’ interests through letters and meetings with government and parliamentary representatives
    • about providing support during and after the treatment process
    • Psychosocial rehabilitation programme for women after breast cancer
    • Creation of patient support groups throughout Latvia
    • Participation in government working groups and projects, advocating for breast cancer patients’ interests
    • Breast cancer screening update and informative activities, attracting the attention of men and calling for
    • mammography through the screening programme
  • Lithuania

    National Representative: Erika Umbrasaite

    Email: e.umbrasaite@gmail.com

    ED Lithuania had a busy year working with government institutions and the media. We discussed treatment availability, rehabilitation issues, and raised awareness through articles and interviews. We also had close contact with Lithuanian Parliament and were in touch with a member of European Parliament. We are working with the nurses and doctors of Vilnius University Oncological Institute. In co-operation with breast cancer survivors’ organisations, we held the international forum “Women Against Breast Cancer” and met with ED President Ingrid Kössler. In September, we held our first march against breast cancer, which also launched our fundraising campaign for the Pink Ribbon Society. In October we held our traditional scientifically-practical conference. Also in October an ED Lithuania member and a journalist participated in Breast Health Day in Milan, after which many articles were published in the biggest Lithuanian news portal. In December we backed the publishing of a breast cancer survivor’s book One Breast Story. Part of the proceeds from the sale of the book go to the core biopsy needles project for Lithuanian hospitals. Together with Vilnius International Women’s Association and a pharmaceutical company we raised more than 10,000 euros for this project, which will be implemented in 2009. During 2008 we organised three seminars for patients’ organisations. We published the brochure “Is it breast cancer?” and distributed it for free to all oncological hospitals, patients’ organisations and women’s health doctors. We also helped to establish another patients’ organisation in Kaunas.

  • Luxembourg

    National Representative: Mariette Fischbach

    Email: mariettefischbach@yahoo.de

    Highlights of 2013

    • A conference and workshop to present The Year of the Pale Sunflower, edited by young Swiss cancer survivors
    • The 11th Breast Cancer Race with 1200 participants
    • BHD in the centre of Luxembourg city, presenting 1000 bras collected in support of demanding best quality
    • diagnostic and treatment services
    • An exhibition “Hymne à la beauté”
    • Distribution of pink ribbons and information in shops

    Activities for 2014

    • The 12th Breast Cancer Race on 4 October
    • A conference “Breast Cancer, No Longer a Taboo” with presentations by photographers, speakers and performers
    • A presentation of the film “Rope of Solidarity” produced in Switzerland, and emphasising the benefit of sports in
    • cancer, especially breast cancer
    • A workshop for young women with the aim of creating an active support group for young women
  • Macedonia

    National Representative: Biba Dodeva

    Email: info@borka.org.mk

    Highlights of 2013

    • The Go Pink 2013-Walk for the Cure with around 1500 “pink walkers”
    • Participating in the Advocacy Training Course VIth National Breast Cancer Conference, with eminent guest speakers
    • such as the Minister of Health and medical experts
    • Attending the ED Pan-European Conference in Prague
    • A BHD television show, featuring cooking demonstrations and key messages about early detection
    • Running a help line
    • Psychosocial groups for patients, visiting newly diagnosed patients in hospital and patients on chemotherapy
    • “Pink Caravan”, an educational tribune for breast cancer held in 15 cities with more than 1500 women participating

    Activities for 2014

    • The Go Pink 2014-Walk for the Cure
    • Participating in the Advocacy Training Course and the Advocacy Leader Conference
    • BHD celebrations with a picnic in a renowned national site
    • The VIIth National Breast Cancer Conference
    • “Pink Night 2014”
    • Running the help line and psychosocial groups
    • “Pink Caravan” in other cities
  • Malta

    National Representative: Doris Fenech

    Email: info@europadonnamalta.org.mt

    Webmail: www.europadonnamalta.org.mt

    Highlights of 2013

    • “Updates in Breast Cancer” seminar for health care professionals
    • Acquiring the first ED Malta premises
    • Two nurses sent for training as breast care nurses at the Royal Marsden Hospital in the UK
    • Breast surgeon sent for conference and exam as breast surgeon
    • Awareness through an art exhibition
    • Gala/auction dinner
    • Fashion show with the participation of breast cancer survivors
    • Awareness walks in March and October
    • A public lecture on breast cancer
    • Two awareness/informative activities in shopping centres

    Activities for 2014

    • MBC seminar for health care professionals
    • Setting up of an MBC group
    • Translation into English of the MBC book published by ED France
    • Translation into Maltese of The Year of the Pale Sunflower, published by ED Switzerland
    • 25 th anniversary concert
    • Art exhibition
    • Awareness and donations through selfies on Facebook
    • Three awareness walks
  • Moldova

    National Representative: Larisa Sofroni

    Email: sofroni@yandex.ru

  • Monaco

    National Representative: Adeline Garino

    Email: adelinegarino@libello.com

    Webmail: www.ecoutecancerreconfort.org

    Highlights of 2013

    • In June, the traditional outing to “L’Hermitage”
    • In July, H.E. the Minister of State visited the Wellness Centre, an important occasion for ED Monaco
    • In October, an “evening of music” to support the association at Monaco’s Variety Theatre
    • In November, support of the hotel sector
    • In December, a fund-raising Gala evening

    Activities for 2014

  • The Netherlands

    National Representative: Ellen Verschuur

    Email: ad_en_eaj_verschuur@planet.nl

    Highlights of 2013

    • A conference on hereditary breast cancer, with much media coverage
    • In June, the first conference for former breast cancer patients in collaboration with Breast Cancer Research
    • Group and Pink Ribbon
    • Theme day for women with MBC

    Activities for 2014

    • Activities to optimise care, focusing on delay in access to care, psychological support and breast cancer in
    • the elderly
    • Activities to empower patients in self-management by providing information on state of the art treatment options
    • Editing of the magazine B, containing research results, stories of living with breast cancer, interviews and
    • information about treatment
    • Development of e-health tools such as web-based questionnaires, a digital newsletter, further development
    • of the “breast cancer care monitor”
    • Organising a pre-survivor day for carriers of the hereditary breast cancer and ovarian cancer genes, organising a
    • patient conference on the latest research data, and a day for patients with MBC
  • Norway

    National Representative: Inger Margrethe Holter

    Email: post@brystkreftforeningen.no

    Highlights of 2013

    • Meetings on relevant topics, and physical activity events at the 60 local associations
    • A weekend gathering for women under 40
    • Two weekend gatherings focusing on health and relaxation (yoga/meditation)
    • A weekend gathering for women with metastatic cancer and their partners
    • A weekend gathering for women with the focus “Life After Breast Cancer”
    • A weekend training course for volunteers in the visiting service, contact telephone and self-help groups
    • A weekend training course for volunteers
    • Visiting 992 newly operated women
    • Receiving contacts from 170 women at the contact telephone
    • Pink Ribbon Action in October collecting more than 2.4 million euros and increasing breast cancer awareness

    Activities for 2014

    • Breast reconstruction
    • Creating awareness of metastatic cancer
    • Holistic patient care
    • Awareness about hereditary breast cancer
    • Pink Ribbon Action in October
  • Poland

    National Representative: Dorota Czudowska

    Email: polskieforum@europadonna.org.pl

    Webmail: www.europadonna.org.pl

    Highlights of 2013

    • In March-April, administrative tasks associated with ED reports in the Ministry of Labour and Social Policy,
    • Ministry of Health, etc.
    • In June, XVI General Assembly of ED Poland
    • In October, BHD activities in ED Poland organisations in Legnica, Dębica, Piła, Nowy Sącza and Przemyśl, plus
    • Pink Ribbon Marches, oncology picnics, scientific and press conferences
    • In autumn, a press conference about BHD and ED at the European Parliament
    • Participation in the Pan-European Conference in Prague, with a poster display and a basket full of apples

    Activities for 2014

    • In March, participation of the Polish delegation at EBCC9 in Glasgow
    • In June, the XVII General Assembly of ED Poland
    • In October, BHD activities
    • In November, celebration of 20 years of ED Poland
  • Portugal

    National Representative: Amelia Olimpia Pinto Leite

    Email: europadonna@ligacontracancro.pt

    Highlights of 2013

    • Writing an article for the newsletter, “More than two decades of activities for early diagnosis of breast cancer”
    • In May, attending Parliament Health Days, including meeting the President of Parliament to discuss equal access
    • to breast cancer screening
    • In October, a media and digital campaign for BHD
    • In November, attending the Advocacy Training Course
    • In November, the Advanced Breast Cancer 2 (ABC2) conference in Lisbon, meeting advocates and distributing leaflets at the ED stand

    Activities for 2014

    • Leaflets about breast cancer prevention for the blind
    • Free psycho-oncology consultations for women with MBC
  • Romania

    National Representative: Mihaela Geoana

    Email: contact@fundatiarenastera.ro

    Highlights of 2013

    • Media campaigns for breast cancer awareness with participation in TV and radio debates
    • Initiating a draft legislation to allow all employed women to go for annual medical exams during the workday
    • without the concern of being fired or punished
    • Cooperating with the Ministry of Health in drawing up a national project for cancer screening
    • Pink illumination of a historical building in Bucharest
    • Invitations to the National Representative to speak on TV about prevention and early detection
    • Continued promotion of the The Medical Centre of Excellence
    • Fund-raising events to operate the mobile diagnostic units for breast and cervical cancer

    Activities for 2014

    • Awareness and communications campaigns and fund-raising events such as the “Art for Life” gala and the pink
    • illumination
    • Advocacy for a national screening programme for breast cancer with plans to collaborate with the Ministry of
    • Health by setting the regulations and providing mobile diagnostic units as with other cancer screening programmes
  • Russia

    National Representative: Oksana Moldovanova

    Email: moldovanova@nwhcf.ru

    Highlights of 2013

    • Awareness campaign in regions, including advocacy for free access to mammography
    • Training for primary care physicians
    • Conferences on prevention and early detection
    • Training courses for radiologists
    • Coordination of mammography screening pilot project in Kursk
    • Fund-raising for research
    • Donation of diagnostic equipment to 10 screening units

    Activities for 2014

    • Collaborating in publishing guidelines on radiology, and creating a web portal
    • Creating and publishing a manual for newly diagnosed women
    • Fund-raising for research
    • Participation in ED conferences and meetings
    • Creating a national database of clinics with free access to mammography and providing access online and via a
    • free hot-line
    • Participation in a panel discussion about women and cancer in the Russian Parliament
    • Initiating a panel discussion about the need for a local screening programme in Moscow in the Moscow Public
    • Chamber
    • A conference on modern approaches to prevention, detection and treatment
    • A rehabilitation group
    • Coordination of the pilot mammography screening in Kursk
  • Serbia

    National Representative: Andjelka Majic

    Email: saimar@yubc.net

    Highlights of 2003/04

    • psycho-oncological educational workshops, counselling and support
    • medical support
    • legislative support
    • close collaboration with multidisciplinary groups of official medical staff
    • social events with family and friends
    • media activities (journal, notes, TV, radio, booklet “Breast cancer: illusions and facts”
    • cooperation with humanitarian organizations “Association Dunable Dunav”, “Bread of Life”
    • every day phone “hotline”
    • volunteer activities of survivors who make efforts especially for the women who are alone and can’t take care of themselves.
    • social activities, sponsored by Health Ministry of Serbia
    • In Uzice, “Jefimija” breast cancer forum organized the street event selling flowers and cakes collecting the funds for haemotherapy fund.
    • Under the auspices of Serbia Health Ministry and local Health Authorities for the first time the round table was organized with theme: “The problems in diagnostics and breast cancer treatment” where the Breast Cancer Council and official breast cancer institutions were collaborating as equal partners with respect for future collaboration.
  • Slovakia

    National Representative: Alena Kallayova

    Email: akallayova@gmail.com

    Highlights of 2013

    • Lectures for students, mammography staff and the public with emphasis on keeping healthy
    • Contributing to the St. Elisabeth Oncological Hospital magazine Our Hospital, collaborating in a series of
    • “Healing Art” exhibitions at the hospital’s prevention centre, and teaching women in hospital waiting rooms about
    • early detection and prevention
    • Television appearances
    • Providing child-minding services for a single mother during her treatments
    • Creation of brochures on breast cancer prevention and early detection
    • Participating at the ED Pan-European conference in Prague
    • In cooperation with the Health Section of the Slovak Ministry of Health, WHO Slovakia and the Scientific
    • Radiologic Society of Slovakia, an initiation of mammografic screening in Slovakia was issued
    • Launch of the website www.europadonna.sk

    Activities for 2014

    • Continuing the same activities as in 2013
    • Planning a meeting of NGOs interested in helping ED Slovakia establish breast cancer screening in Slovakia
  • Slovenia

    National Representative: Mojca Sencar

    Email: europadonna@europadonna-zdruzenje.si

    Highlights of 2013

    • Publication of four issues of ED News 30 lectures about breast cancer, healthy lifestyles and self-examination
    • Counselling by telephone, personally, e-mail, in the hospital
    • Very active support group for young breast cancer patients
    • Two-day seminar for ED members
    • October activities, with a focus on 15 October
    • Participation in Festival – 3ŽO
    • Running and Walking for Hope in five cities
    • Publication of an MBC brochure
    • Individual lymphoedema treatment for 30 patients
    • Update of Breast Test application for smartphones and tablets

    Activities for 2014

    • Slovenian translation of the ED “Short Guide to the EU Guidelines”
    • Publication of four issues of ED News
    • Patient counselling and emphasis on psychosocial support and holistic rehabilitation
    • Promoting guidelines on lymphoedema treatment
    • Lectures throughout Slovenia
    • A 2-day seminar for ED members: Psychosocial support
    • Running and Walking for Hope in three cities
    • October activities with a photo exhibition in shop windows, and on 15 October, a flash-mob event with patients
    • and dancers
    • Reprint of brochure Nutrition and Cancer
  • Spain

    National Representative: Carmen Boronat Jiménez

    Email: cboronat@icab.es

    Website: www.fecma.org

    Highlights of 2013

    • Physiological support for women with breast cancer and their families
    • Physiotherapy for lymphoedema
    • Presentation of the study “Information Needs and Health Care Expectations in Breast Cancer Patients”
    • ED Spain Universidad Menéndez Pelayo summer course attended by specialists and women with breast cancer covering patient association efforts to face the challenge of maintaining sufficiency, sustainability and efficiency of
    • the public health system
    • On BHD, a press conference to present the Manifesto and campaigns to raise awareness of the importance of early detection
    • Active involvement in the National Health System Cancer Strategy as a member of the follow-up and evaluation
    • committee

    Activities for 2014

    • Summer course at Universidad Menéndez Pelayo on patient advocacy and sustainability of the public health system
    • On BHD, a media campaign to raise awareness of early detection and to present the 2014 Manifesto
    • Advocacy activities and participation in the National Cancer Strategy
  • Sweden

    National Representative: Elizabeth Bergsten Nordstrom

    Email: elizabeth.bergsten-nordstrom@bro.org.se

    Webmail: www.bro.org.se

    Highlights of 2013

    • Peer support to women with breast cancer and their families
    • Yearly award for excellent achievements related to breast cancer treatment
    • Award for the Swedish Breast Cancer Nurse of the Year
    • Rehabilitation for women with MBC and for young women
    • BHD seminar on 15 October and Pink Ribbon activities throughout October
    • Yearly meetings at the Parliament related to advocacy work
    • Active membership in the Swedish Breast Cancer Group
    • Participation in panel discussions and as speaker at the political week in Almedalen, Visby

    Activities for 2014

    • Participation in national project on cancer strategy
    • Cooperation in advocacy with other cancer patient organisations
    • Yearly awards to the health professional and the breast care nurse
    • Nordic cooperation and participation in the Nordic Conference
    • Pink Ribbon activities throughout Sweden during October
    • Special awareness for women with MBC and their needs related to specialist breast units and multidisciplinary
    • treatment
    • Special awareness about the need for rehabilitation
  • Switzerland

    National Representative: Donatella Corbat

    Email: zentralsekretariat@europadonna.ch

    Webmail: www.europadonna.ch

    Highlights of 2013

    • Start of the mammography screening programme in the canton of Bern. ED is involved in information and
    • communication.
    • 24-hour “Walk for Life” with participation of survivors, physicians and relatives and a group walking 95 km from
    • Lucerne to the Parliament building in Bern
    • Presentation of the Italian website (Infoseno.org) on breast health and breast cancer care by the regional group
    • of Southern Switzerland
    • Publication of a patient’s agenda by the regional Group of French Switzerland and launch of physical activities
    • for women with breast cancer
    • BHD in different parts of Switzerland
    • Participation and attendance in conferences in Switzerland and Europe

    Activities for 2014

    • Start of the mammography screening programme in Southern Switzerland with ED involvement in the information and
    • communication planning
    • Cooking course for women in chemotherapy
    • Quality of life for survivors
    • BHD
    • Participation and attendance in various conferences
  • Tajikistan

    National Representative: Firuza Abdullaeva

    Email: avesto@mail.ru

    Highlights of 2013

    • Co-organising the international conference “Women’s Health. Breast cancer and cervical cancer advocacy” with the
    • support of the Ministry of Health and in partnership with US and international organisations. It was widely
    • attended, included 68 presentations, 8 by
    • ED, and adopted a resolution.
    • Four regional roundtables on breast cancer advocacy and 12 meetings on breast cancer advocacy
    • A Healthy Breast Week with 6 roundtables, training sessions, and 16 information campaigns, with emphasis on
    • healthy lifestyles
    • Translating and printing the ED materials on healthy nutrition into Russian and Tajik
    • Monitoring and evaluating activities carried out by primary care physicians
    • BHD activities
    • Participating in conferences and training sessions, such as Advocacy Training, the Eastern Europe/Central
    • Asia Breast Cancer Advocacy, Education and Outreach Training Programme in Tbilisi, Georgia, and an expert meeting
    • on cancer in Russia

    Activities for 2014

    • Attending EBCC9 in Glasgow
    • Participating in the “Creative Fund-raising” Project by the National Screening Centre of Georgia
    • Attending the ED Advocacy Leader Conference and the Advocacy Training course
  • Turkey

    National Representative: Violet Aroyo

    Email: violetaroyo@hotmail.com

    Highlights of 2013

    • National awareness campaign through city high schools
    • Participating in the 36th Intercontinental Istanbul Eurasia Marathon for breast cancer awareness
    • Establishing the Ankara Young Breast Cancer Survivors and ED working groups
    • Participating in ABC2 and the ED Pan-European Conference
    • Working on breast care nurse training with Marmara Universities’ breast cancer nurses and coordinators
    • Monthly training seminars on breast cancer and femininity, and breast cancer and yoga
    • BHD and Pink October activities
    • Participating in the ED Advocacy Training Course
    • Working with Caritas to raise breast cancer awareness among immigrants
    • Participating in the annual International Women of Istanbul Christmas Bazaar

    Activities for 2014

    • Being a stakeholder of the International Breast Cancer Congress to be held alongside the FIBA Ladies World
    • Basketball Tournament
    • Capacity-building and fund-raising activities
    • Working with medical faculties on the breast care nurse curriculum and taking part in the development and
    • implementation of courses on patient–doctor communication
    • Developing joint projects with neighbouring countries
  • UK

    National Representative: Margaret Spittle

    Email: edukforum@gmail.com

    Highlights of 2013

    • A prestigious week-long stand in Houses of Parliament exhibiting ED publications and activities to MPs and the  public
    • A symposium on risk factors, prevention and lifestyle for healthcare professionals and breast cancer charities, featuring top experts
    • Attendance at All Party Parliamentary Group on Breast Cancer (APPGBC) to hear evidence on support for older women
    • An exhibition stand at the “Champions for Change” educational event attended by 100 breast care and chemotherapy nurses
    • ED UK representation at a launch of APPGBC’s report Age is But a Number
    • ED UK executive member Victoria Harmer was named Cancer Nurse of the Year by Nursing Times magazine
    • Various presentations on breast awareness, diet and lifestyles and the NHS Screening Programme
    • Attendance at Britain Against Cancer Conference, a government meeting addressing priorities for cancer care  nationally

    Activities for 2014

    • Attendance at EBCC9, with contribution to ED and Scientific Sessions
    • Annual Symposium at Medical Society of London “Past, Present and Future Perspectives of Radiotherapy and  Chemotherapy”
    • In October, talks and exhibition stands for BHD
  • Ukraine

    National Representative: Galina Maistruk

    Email: maistruk@rhr.org.ua

    Highlights of 2013

    • Special BHD event in the Ukrainian Parliament, with participation and support of all political parties.
    • Representatives of the Supreme Council Secretariat, Cabinet of Ministers and journalists were provided with  updated information on breast cancer, including display of posters and distribution of information materials. The  ED National Representative and 8 women MPs discussed the importance of prevention and screening during the press  briefing and individual interviews. All national media accredited in the Supreme Council took part in the event.
    • A national conference “Breast Cancer Prevention: Information & Partnership” with 66 participants, including key Ukrainian oncologists, Ministry of Health representatives, World Health Organisation representatives, leading  rehabilitation specialists, social workers, psychologists and breast cancer organisation representatives, as well as national media representatives

    Activities for 2014

    • Mammography school for radiologists
    • BHD in the Ukrainian Parliament
  • Uzbekistan

    National Representative: Shakhnoza Umarova

    Email: eduzbekistan@mail.ru

    Highlights of 2013

    • Regional football matches “In the Name of Life” to support women with breast cancer
    • A fund-raising gala concert dedicated to fighting breast cancer and supporting breast cancer survivors
    • Psychological training for breast cancer survivors in three regions in partnership with United Nations Population Fund
    • A Pink Ribbon gala dinner in October
    • Annual early diagnostics charity campaigns for women in all regions of Uzbekistan and the city of Tashkent

    Activities for 2014

    • Oncology hospital visits by ED Uzbekistan staff throughout Uzbekistan to support breast cancer patients
    • Annual Pink Ribbon gala dinner in October
    • Psychological training for breast cancer survivors and their families in three regions of Uzbekistan