Member Countries

  • Albania

    National Representative: Donjeta Zeqa

    Email: donjetazeqa@gmail.com

    Highlights of 2012

    • A national awareness campaign for early detection of breast cancer through screening
    • Nation-wide distribution of a brochure with basic information on breast cancer prepared by national experts in the field of public health and communication
    • Distribution of information materials to the media
    • Creating a banner on routine breast examination, prepared by experts in the field
    • A training workshop for the staff at the Tirana Health
    • Centre, including 20 physicians
    • A one-week health fair organised by the Ministry of  Health and held in the country’s 36 districts

    Activities for 2016

    • A conference about breast cancer (BC) and BRCA mutations
    • Investigation into corruption in oncology
    • Monthly activities, such as Café Donna meetings for women and supporting events
    • Lectures on BC
    • Advocacy to defend the rights of cancer patients
    • In June, attending a roundtable held by the “Together for Life” association within the framework of the closure of the project “Challenges of cancer patients within the Albanian health care system”. The roundtable aimed to raise the awareness of the public and institutions about cancer patients in order to improve the health care services they are entitled to
    • Pink October activities
    • Free mammography, including monitoring service performance
  • Armenia

    National Representative: Nvard Kocharyan

    Email: nvardkocharyan@gmail.com

    Activities for 2016

    • In March, a charity concert “You are Not Alone”, fighting against BC
    • Annual activities, including meetings with women, breast health projects, regional visits (training sessions and free ultrasound exams), conferences and training courses, participation in fora, TV programmes, and meetings with different organisations
    • In May, a bicycle race promoting the advantages of early detection of BC
    • In September, a patient conference on BC
    • On October 15, a breast health marathon and promotion of healthy lifestyles
  • Austria

    National Representative: Mona Knotek-Roggenbauer

    Email: info@europadonna.at
    Website: www.europadonna.at

    Highlights of 2015

      li>2nd Austrian Breast Cancer Patients Congress

    • Doctor-patient communication training session
    • Advocacy and public relations
    • Breast Health Day (BHD) campaign: “Day of Movement”
    • Social media and Google AdWords campaigns
    • Participation in conferences and public events

    Activities for 2016

    • 3rd Austrian Breast Cancer Patients Congress
    • Annual activities: advocacy and public relations, “Day of Movement” BHD campaign, and participation in conferences and public events
    • Cooperation with Austrian Cancer Aid and Pink Ribbon
    • Pink Dragons Austria paddling event
    • Creating a book “You are Not Alone”, a guide for BC patients
  • Belarus

    National Representative: Palina Soldak

    Email: polinsoldak@mail.ru
    Website: www.europadonna.by

    Highlights of 2015

    • Starting webinars for palliative care with consultants from Harvard University
    • Organising an NGO training in BC advocacy and capacity building in Bucharest
    • Attending the ED Pan-European conference
    • Supporting BC group development from Grodno and recommending their participation in the ED Advocacy Training Course
    • Monitoring BC screening activities
    • Training journalists on covering BC
    • Participating in the EBCC10 Arts and Humanities Award with a video project by a Belarussian producer
    • New psychological support club for BC survivors and their families

    Activities for 2016

    • Attending EBCC10 and sharing materials with BC groups in Belarus
    • Participation in June 2016 Eurasia Oncology Conference in Minsk
    • Developing a new ED Belarus website and Facebook page
    • Continuing with capacity building of NGOs and promoting evidence-based BC information for patients
    • June Photo exhibit “You are Beautiful” with BC survivors to raise money for a psychological support group
    • A July meeting with the Grodno BC support group
  • Belgium

    National Representative: Mariane De Vriendt

    Email: Mariane.DeVriendt@UGent.be 
    Website: www.europadonna.be

    Highlights of 2015

    • Participating in a meeting, “Progress Today, Standards for Tomorrow?”
    • Attending the kick-off in West-Flanders of the “Back to work after cancer” pilot project
    • Participating in a golf tournament for cancer research
    • Presenting at a symposium on breast reconstruction
    • Supporting the project “European Training Network on Breast Imaging and Analyses – IMAGINEU”
    • Co-organising and participating in “Breast Action” and the Belgian Breast Meeting
    • Participating in the colloquium “Breast cancer without taboo” in Paris
    • Meeting of a BC support group dedicated to quality indicators for BC, organised by the Belgian Cancer Registry, and in which ED Belgium is a partner
    • Attending the ED Pan-European Conference and promoting BHD
    • A General Assembly and elections of a new new board

    Activities for 2016

    • Organising a day on “Healthy Food: A Real Pleasure” and “Moving Healthy: Feeling Happy”
    • Preparing for a second ED Belgium Day
    • Holding a General Assembly in France and a meeting with ED France

  • Bulgaria

    National Representative: Mila Nenova

    Email: eudonnabg@abv.bg

    Highlights of 2015

    • Participation of 2 members in the ED Pan-European Conference in Paris
    • Meetings with parliamentarians to present issues concerning BC in Bulgaria and ED activities
    • Meeting with health professionals to promote best practices
    • Participation in the activities of APOS, a patient organisation for different types of cancer
    • Participation in 2 radio shows and in one TV talk show on the main topics of breast health, prevention and breast health in young women.

    Activities for 2016

    • Participation in 3 radio shows and additional radio and TV programmes, including a national TV morning show for BHD
    • Activities in cooperation with other cancer organisations
    • Promoting the BHD video on the ED Bulgaria Facebook page
  • Croatia

    National Representative: Vesna Ramljak

    Email: vesnaramljak@yahoo.com

    Website: www.europadonna.hr

    Highlights of 2015

    • “Daffodil Day“ at 25 locations in Zagreb, and in 39 other cities
    • Attending European patient organisation meetings and the St Gallen International Breast Cancer Conference
    • A Pink Week charity event with donations to purchase an intraoperative radiotherapy (IORT) device
    • Advocacy activities for special breast units and on comprehensive cancer care and research
    • Participating in national projects for the cancer strategy
    • Media campaigns and lectures on BC and on healthy lifestyles, as well as BHD activities
    • Pink Ribbon activities and walks
    • Organising in co-operation with the Croatian Public Health Institute a conference entitled “Multidisciplinary approach to diagnosis of breast diseases”
    • Participating in the working group to establish Croatian guidelines for genetic testing for breast and ovarian cancer

    Activities for 2016

    • Attending EBCC10 and the ED Advocacy Leader Conference
    • Attending the meeting “International Experience Exchange for Patient Organisations”
    • Annual General Assembly
    • A fund-raising campaign for the purchase of an IORT device
    • A charity concert in November
  • Cyprus

    National Representative: Stella Mastora

    Email: info@europadonna.com.cy

    Website: www.europadonna.com.cy

    Highlights of 2015

    • Lectures on BC awareness
    • Participation in the steering committee and close follow-up of the national screening programme
    • Meetings with the Ministry of Health and follow-up on the implementation of a breast unit in Nicosia General Hospital
    • Pink Silhouette Walk with over 12,000 participants
    • BHD events
    • Pink illumination of Paphos medieval castle
    • Summer party for women with BC
    • Continuation of the Bosom Friends, giving free prostheses, as well as bras, wigs, and financial support
    • Group and individual meetings with ED Cyprus psychologist
    • Co-organisers for Cancer Day event “We Can – I Can”
    • Participation in various local and European conferences, with 30 women from Cyprus attending the ED Pan-European Conference
    • Look Good, Feel Good Day activities in all ED Cyprus Houses
    • Beach party for all ED Cyprus members
    • Christmas and Easter family food packages
    • Two fund-raising fashion shows in different towns

    Activities for 2016

    • Annual activities: Pink Silhouette walk, BHD events, the Summer Party, meetings with the psychologist, Bosom Friends programme, Cancer Day event, and “Look Good, Feel Good Day” activities, Christmas and Easter family food packages, participation in conferences
    • Follow up on the implementation of Nicosia General Hospital breast unit and of the national screening programme
    • Lecture in memory of a member who lost her life after many years with BC
    • Lectures in all towns on awareness
    • Co-organising a conference on home nursing
    • Crafts workshop in all ED Cyprus Houses
    • Representing Cyprus at the European Patients’ Forum
    • Updating ED Cyprus leaflets
    • Participation in solidarity runs
    • Participation in a charity event “I Fitness”, a full day of Pilates, yoga and other activities
  • Czech Republic

    National Representative: Marta Kostrovà

    Email: aliance@breastcancer.cz

    Highlights of 2015

    • Annual activities: educational seminars, “You Can Also Do It” event, 2 outings for young women with BC and their children, and professionals
    • Annual Alliance of Women with Breast Cancer Conference
    • An Alliance of Women with Breast Cancer Day in Brno
    • Projects focused on BC prevention (Mammography Day, lectures on prevention for secondary schools, “We Are Swimming the Breast Stroke” for BHD)
    • An educational seminar for volunteer caregivers
    • A national meeting of women with MBC in Prague
    • A fashion show
    • Participation in the 50th International Film Festival in Karlovy Vary as a non-profit partner

    Activities for 2016

    • A cycle of professional seminars for patients’ organisations on psychological support during and after treatment
    • Annual Alliance of Women with Breast Cancer Conference
    • Campaigns focused on BC prevention – BHD (We are swimming the Breast Stroke, Closely Watched Breasts, Avon Walking, education at schools)
    • Ongoing Invisible Women project focused on patients with metastatic breast cancer (MBC)
    • Ongoing Bellis-Young and Cancer project focused on young patients
  • Denmark

    National Representative: Eva Bundesen

    Email: eva.bundesen@brystkraeft.dk

  • Estonia

    National Representative: Maie Egipt

    Email: maie.egipt@cancer.ee 

    Highlights of 2015

    • Cancer patient group monthly meetings with presentations and counselling by medical professionals
    • May Breast Health Awareness Month activities, including press releases, TV and radio interviews and print media articles. The ED mammography bus promoted breast screening at the annual marathon
    • National conference for cancer patients covering treatments, patients’ rights, home support
    • Health and education weekend retreat for cancer patients
    • October BHD activities, including nation-wide Pink Ribbon campaign and a fund-raising concert
    • Participation in EBCC10

    Activities for 2016

    • Continuing the cancer patient group meetings
    • May Breast Health Awareness Month activities with media coverage and reintroduction of the Denim Day campaign to raise funds for BC
    • Annual summer retreat for cancer patients and support groups
    • Nation-wide Pink Ribbon campaign to coincide with BHD
    • Participation in the ED BC Advocacy Training Course
  • Finland

    National Representative: Anu Niemi

    Email: puheenjohtaja@europadonna.fi

    Website: www.europadonna.fi

    Highlights of 2015

    • Celebrating 10th anniversary with a seminar and several lectures
    • Promoting the European Parliament Written Declaration on BC to Finnish MEPs
    • Hosting 61 peer support meetings in 7 cities, with separate groups for young women and MBC patients
    • BHD activities: information on healthy lifestyles and BC prevention, a lecture by a nutritional therapist, a session opened by a Finnish MP
    • Organising a sports weekend, a musical weekend and expressive art therapy course
    • Conducting a survey on availability of and information on supportive care (eg, psychosocial support, physiotherapy for lymphoedema) during and after cancer treatment

    Activities for 2016

    • Producing a video on how to exercise to ease lymphoedema symptoms
    • Training new peer support specialists
    • A sports weekend and art therapy course for members
    • A separate art therapy course and recreational activities for women with MBC
    • Educational lectures
    • Pink Ribbon activities and BHD events
  • France

    National Representative: Martine Castro

    Email: martinecastro@gmail.com

    Website: www.europadonna.fr

    Highlights of 2015

    • Follow-up Right to Oblivion and screening campaign with National Cancer Institute
    • Monthly Café Donna in Paris, Lille, Strasbourg, Lyon, Nantes and Bordeaux, where BC patients come to share experiences
    • Monthly sporting events in regional delegations, where women can exchange their experiences
    • Pink October across the country (events, races, booths in hospitals, conferences focusing on screening)
    • Debate on a national TV network on the importance of early screening
    • 2015 ED Pan-European conference held in Paris
    • Yearly congress at the Senate

    Activities for 2016

    • Café Donna activities
    • Promoting physical activity
    • Congress at the Senate
    • Pink October throughout the country
  • Georgia

    National Representative: Nino Kartvelishvili

    Email: nin_ka@hotmail.com

    Highlights of 2015

    • In February, an information campaign “Target For Life” for the availability of targeted therapy
    • Launching a government petition requesting financing of trastuzumab, which was awarded in November for women with primary HER2-positive BC
    • Supporting concert at state conservatory
    • Advocacy training among students
    • In October, a fashion show by a well-known designer with participation of BC patients

    Activities for 2016

    • For BHD, a live chain by students in the main square of the capital and a football match between the Georgian women’s football team and patients
    • A charity concert by singer Anita Rachvelishvili, dedicated to ED Georgia and aired in 6 European countries
    • Participation in the popular talk show “Another Angle”
  • Germany

    National Representative: TBC

  • Greece

    National Representative: Elizabeth Meier

    Email: lizameier85@gmail.com

    Activities for 2015 and 2016

    • Attending the ED Advocacy Training Course and EBCC10
    • Moving to new offices in Psychiko, Athens
    • Participation in TV panels on BC
    • Successfully advocated to the Greek Parliament for the formation of a Cancer Advocacy Board to make suggestions for bills regarding BC issues
    • Meetings at the Ministry of Health on NGOs and maintaining the national health care system
    • Participation in the Centre for Disease Control Committee on Cancer Registries
    • BHD activities, including illuminating a pink ribbon on the façade of the Parliament building, with extensive media coverage
    • Organising an educational event on BC prevention and treatment with the participation of renowned physicians
    • Participation in the Breast Cancer Conference held by the University Hospital in Athens, and the Women for Oncology Cancer Conference
    • Increasing membership by 500 people through a web-based registration process
    • Working towards a charity programme for free BRCA mutation testing
    • In cooperation with the Greek Oncologists Organisation, formally proposing a reimbursement programme for genetic testing to the Ministry of Health
  • Hungary

    National Representative: Zsuzsanna Péter

    Email: info@rakszovetseg.hu

  • Iceland

    National Representative: Gudrun Sigurjonsdottir

    Email: samhjalp@krabb.is

    Highlights of 2015

    • A forum about BC surgery in Iceland: “Where are we now and where are we heading?”
    • A forum on BC in cooperation with the Icelandic cancer associations on the topic, “Do we receive the best service possible in Iceland?”
    • “Casting for Recovery,” a fishing activity, every year for women in rehabilitation after BC treatment
    • For BHD, walking with pink balloons in the centre of Reykjavik

    Activities for 2016

    • A forum on BC surgery in Iceland, dedicated to breast reconstruction with one’s own tissue
    • A forum on BRCA1 and 2 mutations on the topic, “Do we want to know?”
    • Casting for Recovery
    • The Nordic Conference for Breast Cancer volunteers groups in Reykjavik with the main topics BRCA1 and 2 mutations and living with a BC diagnosis
  • Ireland

    National Representative: Ciara Devine

    Email: info@europadonnaireland.ie
    Website: www.europadonnaireland.ie

    Highlights of 2015

    • Presentations to community organisations and cancer support centres
    • Dragon Boat roadshow promoting healthy lifestyles
    • ED Ireland stand at 3 conferences
    • BHD breakfast with public representatives; a public event “Kickstart Your Health” to promote healthy eating; activities in 27 cancer support centres and community organisations; collaboration with Conway Institute, University College Dublin (UCD), and students
    • Launch of “Lymphoedema in Breast Cancer” leaflet
    • ED Ireland representatives on bodies including new National Cancer Strategy group and Radiographers’ Registration Board

    Activities for 2016

    • Patient Voice in Cancer Research, Conway Institute, UCD
    • Presentation at launch of a report on MBC
    • Meeting with All-Ireland Cooperative Oncology Research Group
    • Presentation on MBC issues to public representatives and a public information session
    • Development of MBC Connect project, with public meetings, creation of Facebook group for MBC women, and leaflet
    • Development of psycho-oncology leaflet
    • MBC Day and BHD activities
  • Israel

    National Representative: Miri Ziv

    Email: miriziv@cancer.org.il
    Website: click here

    Highlights of 2015

    • A press release on up-to-date BC incidence, survival and mortality rates in Israel
    • New public information booklets and advertisements
    • Partnering with a cosmetic company in illuminating the Rabin Centre in Tel Aviv in pink and launching a project with a café chain, offering coffee in pink paper cups and healthy cookies
    • Annual “Celebrating Life” Seminar
    • Partnering with online portals aimed at women
    • Disseminating ED materials via the website and Facebook
    Activities for 2016
    • A press release on BC incidence, survival and mortality rates in Israel
    • Continued posting of public service announcements, articles, personal stories and ED materials on the website and Facebook
    • Continued collaboration with a cosmetic company and other partners
    • The “Celebrating Life” seminar
  • Italy

    National Representative: Rosanna D’Antona

    Email: segreteria@europadonna.it

    Website: www.europadonna.it

    Highlights of 2015

    • Promotion of the law on breast units throughout the regions with 2 public events in Bologna and Genoa
    • Implementation of BC screening in the south with a public event in Naples
    • Creating the first chapter, “Breast Unit”, of an interactive library
    • The preliminary session of a training programme for associations working in the breast unit
    • Proposal for legislation to protect working women with BC, signed by trade associations and unions
    • Second survey on the MBC patients’ needs and presentation at the Advanced Breast Cancer (ABC) conference

    Activities for 2016

    • Promotion of the breast unit law with public events in Turin, Terni and Venice
    • Implementation of BC screening in the south with events in Calabria and Sicily
    • Creating the second and third chapters of an interactive library: “Prevention” and “MBC”
    • A training programme for associations working in the breast unit: 3 levels with 1-day sessions each in 4 cities with 70 associations and 170 women in attendance
  • Kazakhstan

    National Representative: Nagima Plokhikh

    Email: zdorovayaaz@gmail.com

    Website: www.fza.kz

    Highlights for 2015

    • On 30 October, a “Pink Ribbon” marathon in Zharkent and funds raised went to breast screening of more than 200 women
    • Publishing 3000 information booklets for women focusing on BC, treatment, follow-up, and life after the disease
    • Printing 3000 information booklets on chemotherapy for those undergoing treatment, discussing nutritional effects of chemotherapy, how to cope with possible adverse effects, and psychological considerations

    Activities for 2016

    • Planning a flash mob to advocate for BC issues
    • Conducting an information campaign to increase the number of women participating in breast screening
  • Kyrgyzstan

    National Representative: Taalaigul Sabyrbekova

    Email: sabyrbekova2011@gmail.com

    Highlights of 2015

    • A charity event dedicated to International Women’s Day on 4 March
    • In October, a photo exhibition of BC survivors, open days at a mammography examination room, and participation in the ED Pan-European Conference
    • In November, participation in the ED Advocacy Training Course
    • Awareness-raising activities (TV and radio programmes, articles in newspapers and online, printed materials on early detection of cancer and healthy lifestyles)

    Activities for 2016

    • A charity event dedicated to World Cancer Day on 4 February
    • Participation in promoting the reconsideration of the Law on Oncology Care
    • Awareness-raising activities to improve the quality of oncology service provision
    • Participation in EBCC10
    • Participation in ED Advocacy Leader Conference
    • Pink October Events and fund-raising
  • Latvia

    National Representative: Gunita Berke

    Email: europadonna@dzivibaskoks.lv

    Webmail: www.dzivibaskoks.lv

    Highlights of 2015

    • Patient advocacy activities related to psychosocial support and rehabilitation after the BC active-treatment phase
    • For Pink Ribbon month in October an “Enjoy and Check” information and public awareness campaign
    • “The Spring of Strength”, 3 psychosocial rehabilitation programmes for survivors
    • Workshops and lectures on psychosocial rehabilitation and its significance for social workers in regions
    • Brochures about psycho-emotional conditions (4 different types) and other printed materials
    • Videos about the psychosocial rehabilitation programme

    Activities for 2016

    • Patient advocacy activities related to psychosocial support and rehabilitation after active treatment
    • Campaign to collect donations to continue psychosocial rehabilitation centre construction
    • “The Spring of Strength”, psychosocial rehabilitation programme for survivors
    • Participation in the campaign “Check Your Breasts to Live” and charity walk “I Will Go”
    • Informative materials and brochures
  • Lithuania

    National Representative: Juventa Sartataviciene

    Email: juventa.sartataviciene@nvi.lt

  • Luxembourg

    National Representative: Mariette Fischbach

    Email: mariettefischbach@yahoo.de

    Highlights of 2015

    • Exhibition “Hymne à la Beauté” in Steinsel, Bertange, and at the shopping centre City Concorde
    • EParticipation in 9 socio-oncological conferences at the Hospital Centre of Luxembourg
    • EInternational Women’s Day
    • EParticipation in solidarity runs, “A Race for Life”, with an urban trail and a ladies’ run
    • EEurope Against Cancer awareness campaign during the European Presidency of Luxembourg
    • EOrganising the “Broschtkriibslaf” annual run
    • EParticipating in the ED Pan-European Conference in Paris

    Activities for 2016

    • Organising the “Serenity” conference with workshops on yoga, mindfulness, reflexology, sophrology, hypnotherapy, etc.
    • In June, participation of a group at the “Breithorn” climb inspired by the film “Rope of Solidarity”
    • In September, presentation of the results of the survey “Parcours de Femmes”
    • On 1 October, the “Broschtkriibslaf” annual run
    • Preparation of a video-presentation on BC to be shown before the main film in cinemas during the month of October
  • Macedonia

    National Representative: Biba Dodeva

    Email: info@borka.org.mk

    Highlights of 2015

    • Annual “Go Pink 2015″ campaign
    • The 8th National BC Conference, including the Minister of Health as one of the guest speakers
    • As a result of advocacy efforts, a national screening programme was implemented, screening over 500 people
    • A culinary event for BHD with women serving regional dishes
    • Attending the ED Advocacy Training Course
    • Increased calls to the hotline due to volunteers spreading word of services at the oncology department
    • Regional educational workshops on BC awareness, survivorship and advocacy
    • Winning the award for the “Most informative NGO website”

    Activities for 2016

    • Launch of a support group for women returning back to work/life, with an office space donated by the University Clinic of radiotherapy and oncology
    • Joining 4 other NGOs in forming the “Alliance of Patients Organisations”, formally announced during World Cancer Day
    • Advocating for a National Cancer Control Plan and Cancer Registry system
    • Preparation for a capacity-building workshop for other BC associations
    • Annual activities: the “Go Pink Walk” with a new 5-km Fun Run, educational workshops and preparation for the 9th National BC Conference
  • Malta

    National Representative: Anne Micallef

    Email: info@europadonnamalta.org.mt

    Webmail: www.europadonnamalta.org.mt

    Highlights of 2015

    • Advocacy course for advocates
    • Several awareness walks
    • A fashion show
    • BHD activities
    • Annual public lecture in Malta and Gozo
    • Translation of the MBC Annex to the “Short Guide to the EU Guidelines”

    Activities for 2016

    • Awareness walks
    • A lecture in Malta
    • A seminar in Gozo
    • BHD in Gozo
    • A memorial seminar for Doris Fenech about MBC
    • Translation of an MBC book from English to Maltese
    • Various fund-raising activities
  • Moldova

    National Representative: Larisa Sofroni

    Email: sofroni@yandex.ru

  • Monaco

    National Representative: Valérie Barilaro

    Email: valeriebarilaro@gmail.com 

    Webmail: www.ecoutecancerreconfort.org

    Activities for 2015 and 2016

    • Daily hospital visits to patients undergoing chemotherapy and providing a free-of-charge, non-medical “well-being space” 4 afternoons a week to welcome patients
    • Developing sporting activities, light gymnastics, Tai-chi , no-risk abdominals, relaxation and meditation, as well as other services provided on an ongoing basis: a naturopath, an aesthetician, a psychologist who also performs art therapy sessions
    • Monthly workshops on different themes: floral art, nutrition, beauty, make-up and cooking. ED Monaco strives to propose dynamic activities as the patients using their services are becoming younger and younger
  • The Netherlands

    National Representative: Ellen Verschuur

    Email: eajverschuur@gmail.com

    Highlights of 2015

    • Presenting the patients’ perspective on BC care and the development of patient-reported outcomes measurements at the Dutch Institute for Clinical Auditing conference
    • A conference “Between Hope and Fear” on MBC, with presentations about new treatment options and opportunities for patients to share experiences
    • Launching a moving docufilm at the MBC conference about the experiences of 3 patients with MBC
    • The Patient Congress in cooperation with Pink Ribbon and Boog (the BC research group) where new treatments and recent research were presented

    Activities for 2016

    • Further development of “B Bewust” (B Awareness), a web-based tool to help patients make informed choices about BC treatment, consisting of 12 theme lists such as treatment options, BC and sexuality. The lists are supported by informative videos, eg, “returning to work”, “men with breast cancer”, “the role of relatives and friends”
  • Norway

    National Representative: Mona Tandberg

    Email: post@brystkreftforeningen.no

    Highlights of 2015

    • Weekend gatherings for women under 40, one with health and relaxation activities and one for women with MBC and their partners or relatives
    • Supportive Care visiting 705 newly operated women, receiving 140 telephone calls and organising 10 self-help groups
    • Pink Ribbon activities that collected 2.9 million euros and increased awareness of BC, especially MBC
    • Advocacy involving cancer treatment and care
    • Advocacy involving cancer treatment and care

    Activities for 2016

    • Awarded “The 2016 EBCC Arts and Humanities Award” for the film “To Mommy”
    • Increasing awareness of hereditary BC
    • Continuing to promote awareness about MBC
    • Continuing advocacy on topics of cancer treatment and care
    • Weekend gatherings for women under 40, one for women diagnosed 3-5 years ago, and for women diagnosed with MBC and their partners or relatives
    • Pink Ribbon activities in October
    • Supporting Norwegian researchers who can make a significant contribution to clinical management and patient care for women with MBC

  • Poland

    National Representative: Dorota Czudowska

    Email: polskieforum@europadonna.org.pl

    Webmail: www.europadonna.org.pl

    Highlights of 2015

    • A new edition of the ED Poland brochure
    • In July, a breast units exhibition at the Polish Parliament with the participation of politicians, scientists and representatives of NGOs
    • BHD campaign with Pink Ribbon marches, press and scientific conferences, BHD brochures, calendars and gadgets, and free mammography for women from rural areas
    • Participation of 10 ED Poland members at the ED Pan-European Conference and presentation of a poster
    • Participation in the ED Advocacy Training Course
    • Lectures about breast units in Rzeszów and Warsaw

    Activities for 2016

    • In May, a conference “Prevention, Diagnosis and Treatment of Breast Cancer” in Piła
    • Publishing the 2nd edition of the “Quick guide to the prevention and diagnosis of breast cancer” and the Polish translation of the MBC annex to the “Short Guide to the European Guidelines”
    • BHD activities
    • Participating in EBCC10, the ED Advocacy Leader Conference and the ED Advocacy Training Course
  • Portugal

    National Representative: Isilda Pegado

    Email: europadonna@ligacontracancro.pt

    Highlights of 2015

    • Attending conferences: the Cross Border HealthCare Directive Workshop in Madrid, ED Pan-European Conference, ABC3, and the Portuguese League Against Cancer (LPCC) International Patient Advocacy Conference
    • Working to have Portuguese MEPs sign the Written Declaration on the fight against BC in the EU
    • Meetings with MPs and Economy Minister and attending Parliament Health Days
    • Psycho-oncology consultations for women with MBC
    • Campaign to raise funds and awareness for BC in order to purchase 3 direct digital mammography units
    • The LPCC developed BC contents for the blind, in partnership with the Association of Blind and Partially Sighted of Portugal, producing a brochure in Braille, a booklet printed in large characters, audio support information, and an ebook format
    • A media and digital campaign for BHD
    • Holding the “Headscarves are also for Men” campaign, where men and women, including public figures, wore pink scarves to support women with BC and were challenged to change their profile picture on Facebook
    • Commemorating the 25th anniversary of BC screening in Portugal
  • Romania

    National Representative: Mihaela Geoana

    Email: fundatiarenasterea@gmail.com

    Highlights of 2015

    • Media campaigns, with participation in national TV and radio debates
    • In June, the first “Happy Run” with 1500 participants, including over 100 BC survivors, with proceeds going toward a hair donation campaign; external breast prostheses; free medical exams; psychological support and treatment information sessions; and meetings with doctors, authorities and patients to promote better legislation
    • Celebrating BHD with social media representatives, bloggers and Romanian public figures
    • Pink illumination of the University of Medicine and Pharmacy “Carol Davila” in Bucharest and launching the “Brave Cut” campaign
    • Promoting the Medical Centre of Excellence
    • Fund-raising events to operate the mobile diagnostic units for breast and cervical cancer

    Activities for 2016

    • Annual activities: the 2nd “Happy Run Family Fun”, the annual Pink Illumination Event and Brave Cut campaign
    • Advocating for authorities, the media and the public to support the national BC screening programme, announced by the Romanian Ministry of Health. ED Romania contributed to the regulations and will provide mobile diagnostic units
  • Russia

    National Representative: Oksana Moldovanova

    Email: moldovanova@nwhcf.ru

    Highlights of 2015

    • Initiating and supporting the launch of the local BC programme in the Chuvash Republic
    • Conducting a research-to-practice conference in Cheboksary
    • Taking part in roundtables and conferences to encourage businesses to support local BC programmes in Russian regions
    • Preparing a manual for women with newly diagnosed BC
    • Supporting creation of an e-learning portal for radiologists
    • Supporting and providing a grant to rehabilitation groups in the Kursk region
    • Conducting “Doors Open Days” and public talks about breast health for women for BHD and Pink October
    • Participating in the international conference on chronic diseases in Riga
    • Participating in the ED Pan European Conference and the Advocacy Training Course
    • Coordinating pilot mammography screening in Kursk region
    • Donating equipment for lymphoedema prevention to medical centres, and computed radiography system and automatic workstation for a radiologist mammography screening unit

    Activities for 2016

    • Supporting the launch of the local BC programme in the Belgorod region
    • Mammography screening standardisation workshops for radiologists in Russian regions
    • A public forum in support of local BC programme in Chuvash Republic
    • Launch of a breast prosthesis donation programme
    • Patient workshops in Kursk region
    • Supporting rehabilitation groups in 3 regions
    • Participating in international and national cancer conferences
    • Opening a Breast Cancer Support Centre in Moscow
    • Supporting the opening of a BC screening reference centre in Kursk region
    • ED Advocacy Conference and Advocacy Training, BHD and Pink Ribbon campaigns
  • Serbia

    National Representative: Andjelka Majic

    Email: saimar@yubc.net

  • Slovakia

    National Representative: Alena Kallayova

    Email: akallayova@gmail.com

    Highlights of 2015

    • Supporting set up of mammography screening
    • “Healing Art” exhibitions of paintings at St. Elisabeth Oncological Institute Prevention Centre
    • BHD exhibition of paintings made by BC survivors and presentation of organisations against cancer
    • Collaboration with the non-profit organisation Pontis of Dell in a common project called Prevention of Oncological Breast Diseases II
    • Psychosocial support of BC survivors
    • Lectures, TV appearances, articles in newspapers
    • Creating, printing and distributing educational materials

    Activities for 2016

    • Continuation of activities: support the set-up of mammography screening, the “Healing Art” exhibition of paintings, and BHD presentation of a coalition of organisations against BC
    • Teaching about early detection and prevention of BC
  • Slovenia

    National Representative:  Tanja Spanić

    Email: tanja.europadonna@gmail.com

    Highlights of 2015

    • Publication of 4 issues of ED News (132,000 copies of each issue)
    • 20 lectures throughout Slovenia about BC, healthy lifestyle
    • Counselling by telephone, personally, e-mail, and visiting patients in hospital
    • Very active support group for young BC patients
    • 2-day seminar on systemic treatment and psychosocial support for ED members with more than 150 attendees
    • Participation in 2 festivals (Festival – F3ŽO and Festival of Health)
    • Running and Walking for Hope in 4 cities
    • Participation of 5 members in ED Pan-European Conference and 2 members in the Advocacy Training Course
    • In October, a major campaign in 3 cities with the slogan “Lovely Day” with an “awareness dance” including ED members and students, more than 3000 participants in all

    Activities for 2016

    • Annual activities: publishing ED News, patient counselling, lectures throughout the country, and “Running and Walking For Hope”
    • Emphasis on psychosocial support and holistic rehabilitation
    • A 2-day seminar for ED members on psychosocial support
    • A 2-day intensive seminar for active members with approx. 20 participants
  • Spain

    National Representative: Carmen Boronat Jiménez

    Email: cboronat@icab.es

    Website: www.fecma.org

    Highlights of 2015

    • Presenting a study on the information needs and health care expectations of BC patients
    • ED Spain Universidad Menéndez Pelayo summer course for specialists and women with BC covering the challenge of maintaining sustainability of the public health system with a focus on clinical research and innovation
    • On BHD, a press conference to present the Manifesto and an awareness campaign on early detection
    • Participating in the National Health System Cancer Strategy as a member of the follow-up and evaluation committee
    • Psychological support for women with BC and their families
    • Physiotherapy for lymphoedema

    Activities for 2016

    • In June, attending the Breast Cancer Patient Group Forum
    • Summer course at Universidad Menéndez Pelayo with a focus on survivorship
    • On BHD, a media campaign about early detection and to present the 2016 Manifesto
    • Advocacy activities and participation in the National Cancer Strategy
    • Support in developing an app to assist women undergoing chemotherapy
    • Psychological support for women with BC and their families, and physiotherapy for lymphoedema
  • Sweden

    National Representative: Elizabeth Bergsten Nordstrom

    Email: elizabeth.bergsten-nordstrom@bro.org.se

    Webmail: www.bro.org.se

    Highlights of 2015

    • Submitted a report on mammography, highlighting participation related to socioeconomic issues, among other topics, and another report on unequal BC care in Sweden and held meetings in the Swedish Parliament about both reports
    • Held a Pink March on awareness of unequal care and arranged a well-attended seminar during the political week in Sweden
    • These activities resulted in an increase of 300% in media attention compared to 2014

    Activities for 2016

    • As a result of the report submitted in 2015, the Parliament decided that mammography screening will be free
    • Based on an ED Sweden report, the Parliament will decide whether or not to increase the age range for screening from 40-74 to 40-79 or 80 years
    • New cooperation with the Women’s Health Half Marathon, with an awareness campaign and participation to stress the importance of prevention
    • Holding a seminar and a workshop concerning MBC and registries and other access shortcomings within our health-care system during the political week at the beginning of July
  • Switzerland

    National Representative: Donatella Corbat

    Email: sekretariat@europadonna.ch

    Webmail: www.europadonna.ch

    Highlights of 2015

    • New website www.europadonna.ch
    • “Pink Yoga” outdoor event in Zurich to raise BC awareness, with Regula Curti, a yoga instructor who produced the CD “Beyond – Love Within” with Tina Turner, music that played during the session
    • Launch of the group “Young women with breast cancer”
    • Start of the mammography screening programme in the canton Ticino
    • Presentation of the Italian website on breast health and BC care www.infoseno.org by the regional group of Southern Switzerland
    • BHD activities in Southern Switzerland
    • Advent calendar on Facebook
    • Attending different conferences

    Activities for 2016

    • Celebration of 10 years ED Southern Switzerland
    • Participation at the 30th Swiss women’s run in Bern by 3 teams (running and Nordic walking)
    • European Ladies on the Road, biker event in Locarno organised by the Harley Davidson Club Ticino in favour of ED Switzerland
    • BHD activities
    • Keynote presentation at the BCY-3 (Breast cancer in young women) in Lugano
  • Tajikistan

    National Representative: Khilola Kakharova

    Email: hilola60@mail.ru

    Highlights of 2015

    • In March-December, a BC advocacy information campaign
    • Workshops on breast awareness in Dushanbe, Chorog, Rostkalla districts
    • BC patient support, such as psychology consultations, rehabilitation and prevention of lymphoedema
    • Organising mobile doctor team visits to regions
    • Psychological training for BC survivors and their families
    • Printing booklets and information materials on BC
    • In October, a Pink Ribbon gala dinner and fund-raising, and BHD activities

    Activities for 2016

    • Continuing the BC advocacy information campaign, workshops on breast awareness and organising support groups for BC survivors, “Communication Club”
    • A roundtable on innovative approaches for BC advocacy in Europe and other regions and learning their experiences
    • Activities for women on BC advocacy dedicated to BHD, International Children’s Day and the Week on Breastfeeding
    • Monitoring and evaluating activities carried out by primary care physicians
    • A meeting on psychosocial interventions for BC patients
  • Turkey

    National Representative: Violet Aroyo

    Email: violetaroyo@hotmail.com

    Highlights of 2015

    • Participating in the ED Advocacy Training Course in Milan and attending a Patient Advocacy Capacity Building Programme sponsored by a local university in Turkey
    • PDeveloping patient seminars in Ankara to address age-specific issues for young BC and MBC survivors
    • PParticipating in the annual New Year and Christmas bazaar with handicrafts and gift items provided by ED members

    Activities for 2016

    • Organising the BC Patient Track and the BC Nurse Day for the Istanbul International Breast Cancer Conference (IIBCC)
    • Organising a full-day training for breast care nurses within the IIBCC programme, including an opening speech from ED President Roswitha Britz on the role of the BC nurses within the multidisciplinary team and the impact of specialist breast units
    • Holding lifestyle and healthy diet seminars for volunteers who were trained to teach the information provided, as a part of a nation-wide education programme, to their neighbourhood and family members (a Teach The Teachers training provided by experienced patient advocates in Ankara)
  • UK

    National Representative: Margaret Spittle

    Email: edukforum@gmail.com

    Highlights of 2015

    • ED UK Committee Member Dr Kate Fussell received “Lady of Substance Award” for lifetime services to women’s health and rights
    • Involvement with Genesis Breast Cancer Prevention Centre hosting discussions on latest research by renowned scientists
    • Medical advising to the crew on film “Missing You Already” with BC storyline to ensure medical correctness, with follow-up article published in Cancer Nursing Practice magazine
    • Annual medical symposium with oncologists from Royal Marsden on new directions in surgery and oncology in BC
    • Breast awareness sessions to a medical PR firm, and employees of a department store
    • Breast screening event for women with learning disabilities
    • Participation in a reception to further links in London of Genesis Breast Cancer Prevention
    • Exhibition and information stand at National Cancer Conference hosted by UK Government’s All Party Parliamentary Group on Cancer

    Activities for 2016

    • Presentation to London Soroptimists about ED
    • Exhibition stands, BC awareness displays and presentations for BHD
    • Annual symposium
  • Ukraine

    National Representative: Galina Maistruk

    Email: maistruk@rhr.org.ua

    Highlights of 2015

    • Holding the 4th School of Mammography 5-day training course for breast radiologists, with international faculty. Since 2010, 131 Ukrainian radiologists have completed the course
    • The 2nd BHD event in Ukrainian Parliament with participating MPs and representatives from the “Equal opportunities“ parliamentary group, providing up-to-date information on BC, the importance of prevention and screening
    • Pink October nation-wide information campaign on early diagnosis and prevention, including media events
    • Participation of an ED Ukraine member in the ED Advocacy Training Course, followed by advocacy trainings session for BC advocates from different regions of Ukraine
    • Permanent support of BC hotline

    Activities for 2016

    • 5th School of Modern Mammography for Ukrainian radiologists
    • BHD at the Ukrainian Parliament
    • Joint activities with partners as part of BHD
  • Uzbekistan

    National Representative: Shakhnoza Umarova

    Email: eduzbekistan@mail.ru

    Highlights of 2015

    • In March, the “Circle of Hope” Pink Gala for survivors
    • In May, seminars on raising BC awareness among young women in the cities of Andijan and Urgench
    • In October, the ED Pan-European conference in Paris
    • In December, a tea party with BC survivors at Tashkent City Oncology Clinic

    Activities for 2016

    • In January, a New Year celebration with BC survivors at the Tashkent City Oncology Clinic
    • In March, an International Women’s Day tea party with oncologists and survivors
    • In September, the ED Advocacy Leader Conference in Milan
    • The Pink October charity gala