Europa Donna Member Countries

Europa Donna membership is open to European countries as defined by the World Health Organisation as well as to any country that is a potential candidate for admission to the European Union. Each member country has a National Forum that works autonomously within the European framework, selecting those aims it wishes to prioritise from within the Ten Goals of Europa Donna. There are currently 47 country members in the Coalition.

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Albania

National Representative:

Donjeta Zeqa

Contacts:
donjetazeqa@gmail.com

Activities in 2022

Roundtable with patients
Donation of bras and prostheses for breast cancer (BC) patients
The “Race for the Cure” solidarity walk and run, in Shkodra and Lezha (2 of the most important cities in Albania)
Small workshops with different companies and institutions to raise awareness about BC and metastatic breast cancer (MBC)
For Breast Health Day (BHD), a solidarity walk and run and a canoe boat event, as well as discussing the importance of healthy lifestyle in the media
A talk about healthy lifestyle and the importance of BHD and what it represents
An event, “Donate Hair, Give Hope”

Highlights of 2021

Providing information and raising awareness through social media (Facebook Live and Instagram Live)
In October, a solidarity run, “Race for the Cure Albania”, yoga and bicycle activities, the “Donate hair, give hope” campaign and the “Pink at Work” campaign
Meetings with patients with metastatic breast cancer (MBC) and health-care providers
Prosthesis donation for MBC patients

Armenia

National Representative:

Nvard Kocharyan

Contacts:
nvardkocharyan@gmail.com

Activities in 2022

In February, an awareness meeting with college students
In March, a charitable concert and a marathon
In April and May, online meetings and FAQs (frequently asked questions) with doctors
In July and August, outdoor awareness meetings with citizens, talks and leaflet sharing
In October, the annual conference “Towards Health”, an awareness meeting with teachers in the Lori region, a Pink Marathon with famous people and a conference with family doctors to raise awareness about the importance of early detection
In November, awareness meetings with teachers in the Kotayk and Ararat regions
In December, New Year charitable and awareness markets

Highlights of 2021

In April, raising awareness through projects in 3 villages
In June, the 4^th International Conference “Healthcare and Innovation”
Holding online FAQ meetings with doctors and patients
From September to November, holding meetings at schools in Yerevan

Austria

National Representative:

Tanja Schneider

Contacts:
schneider-tanja@gmx.at

Belarus

National Representative:

Palina Soldak

Contacts:
polinsoldak@mail.ru
https://www.europadonna.by

Activities for 2018

Participation in the Eurasian Screening Conference in May 2018
Working with BC screening pilot programmes and promoting ED BC screening standards
Working with women’s advocacy groups in Minsk, Grodno and Gomel regions
Updating the ED Belarus website

Highlights of 2017

Working with women’s groups in different regions
Preparing women for the Eurasia Breast Cancer Advocacy Conference in Kiev in October
Distributing MBC treatment materials for women’s advocacy groups
Working with school teachers and teenagers to educate them about BC

Belgium

National Representative:

Annette Hirsch

Contacts:
info@europadonna.be
https://www.europadonna.be

Activities in 2022

The pink walk
Collaborating with the EU-funded clinical study MyPeBS (My Personal Breast Screening)
Running social media campaigns via Facebook
Maintaining the ED Belgium website

Highlights of 2021

Attending virtual ED Forum roundtables and conferences
Attending the general assembly of the Federal Higher Health Council and other webinars, a workshop, and a special committee meeting on beating cancer
Meeting with other stakeholders regarding quality care in SBUs
Collaboration in a BC survey
Speaking at a course on multidisciplinary care
In October, participating in the Pink Walk and a BHD social media campaign
An information day for BC survivors and attending a play

Bulgaria

National Representative:

Evgenia Aleksandrova

Contacts:
adarska@gmail.com

Activities for 2022

Support for cancer patients, with a phone line, support consultations, training and a rehabilitation programme for women with BC

Publication of literature and online campaigns

For World Cancer Day and Pink October, educational fora and events

Participation in developing a National Cancer Plan with a hybrid public consultation conference and a working group with the Ministry of Health

A patient education online forum on bone health and BC

Participation in scientific conferences and presentation of ED Bulgaria’s activities

Active collaboration with ED and ECPC (European Cancer Patient Coalition), surveys and webinars on advocacy and leadership

5 webinars for the European Week Against Cancer

Inclusion of Bulgarian patients in international surveys

Highlights of 2020

An online study involving 1,800 patients sharing worries, fears and complications relating to COVID-19. Scientific organisations’ recommendations – World Health Organisation (WHO), American Society of Clinical Oncology (ASCO), European Society for Medical Oncology (ESMO) were shared with patients. The results of the study were shared with the medical community to stimulate the dialogue between doctors and patients.

Developing a system of recommendations for cancer patients, in cooperation with the Bulgarian Oncological Scientific Society, through YouTube video appeals by key multidisciplinary specialists and the social media profiles of famous artists, musicians, journalists who support the scientific approach in understanding COVID-19.

Croatia

National Representative:

Vesna Ramljak

Contacts:
vesnaramljak@yahoo.com
https://www.europadonna.hr

Activities in 2021

In February, a thematic session in the Croatian Parliament on the topic “Oncology Care in Pandemic Conditions” for World Cancer Day
In March, Daffodil Day
In June, a roundtable on “COVID-19 and Mental Health of Cancer Patients”
In August, a humanitarian race for BC patients
In October, Pink Ribbon Day
For BHD, a conference for pregnant and breastfeeding women

Highlights of 2021

In January, adoption of the National Strategy Against Cancer by the Croatian parliament with participation of the president of ED Croatia
In February, starting an EU project “Women for Women” employing 15 women for a year to provide home help for 90 women with BC or other malignant diseases
In March, holding the 25^th Daffodil Day online including lectures on BC
In October, Pink Ribbon Day
Attending the ED Pan-European Conference
A conference for pregnant and breastfeeding women
Online lectures on MBC

Cyprus

National Representative:

Mary Perdiou

Contacts:
info@europadonna.com.cy
https://www.europadonna.com.cy

Activities in 2022

A cocktail party for ED Cyprus’s 20^th anniversary
Annual activities: co-organisation of a Cancer Day event, social media campaign, participation in conferences and seminars, and on boards
Participation in the national screening programme steering committee
Weekly posts on BC on social media
Co-operation with the specialist breast unit (SBU) at Nicosia General Hospital
Programmes for BC patients on psychology and physiotherapy
Free protheses and wigs
A campaign, “The Right to be Forgotten” (eg, insurance coverage for cancer survivors) including a solidarity walk and run, a scientific conference, a meeting with the Minister of Health and MPs, insurance officials and participation in the House of Parliament Health Committee

Highlights of 2021

Annual activities: co-organisation of a Cancer Day event, webinars, social media, psychological support for patients and families, physiotherapy, participation in conferences and seminars, and on boards
In September, a “Race for the Cure”
Meeting with private sector SBUs
New leaflet on ovarian cancer

Czech Republic

National Representative:

Marta Kostrovà

Contacts:
aliance@breastcancer.cz

Activities in 2022

Help and support for Ukrainian women immigrants
Monthly online activities: memory training; talks at Lilly’s Café on various topics
In July, participation in the Expert Conference on Oncology in Brno, organised by the Ministry of Health under the Czech Presidency of the Council of the EU
Activities (in cooperation with other organisations) for all cancer survivors: education, information, help with return to work, prevention, the right to be forgotten

Highlights of 2021

Planting Sakura trees for awareness
Educational webinars for patient organisations
Annual conference
Project Bellis – publishing a new guide for BC patients
Healthy Breasts activity for people with hearing problems
A relaxing week in a spa resort for MBC patients
Campaign in the street “My Time – Our Time”
BHD activities – “We Are Swimming the Breast Stroke” activity, Apple Day and a video promoting BHD

Denmark

National Representative:

Randi Krogsgaard

Contacts:
r.krogsgaard@outlook.dk

Activities in 2022

Key issue: improved visibility
Working with key issues through ED Denmark channels via magazine, web, and social media
In June, 3 debates at the Danish Democratic Festival (Folkemødet)
Active media work
Including the theme of “shared decision-making” in local committees and meetings
Representation at cancer conferences through participation by nurses, doctors and researchers, and an exhibition stand
Participation in external educational activities about advocacy, shared decision-making, influence on one’s own treatment, among other topics

Highlights of 2021

The AGM with the election of a new board
Launch of a new website
Seminar for the board and associated staff
Participation by the ED Denmark President in a national debate on cancer patients during COVID-19
Various meetings on topics such as diagnosis, nutrition, and survivorship
In October, MBC seminars, the BRCA Campaign launch, a yoga retreat for BC patients and the Assembly for Regional Group representatives
A workshop on patient involvement in BC treatment
Participation in the ED MBC patient advocacy training
A special BC themed magazine
Consolidation of the MBC group

Estonia

National Representative:

Maie Egipt

Contacts:
maie.egipt@cancer.ee

Activities in 2021

Implementation the national cancer control plan
Cancer patient support programmes and consultations
In March, the return of the refurbished mammography bus with a new 3D mammography machine
In May, a campaign to raise awareness about breast health and cancer prevention
In August, a cancer patient retreat
In October, a national pink ribbon campaign, a press release, a radio programme, a video and magazine articles
For MBC, a press release, a video and magazine articles

Highlights of 2020

Holding meetings on the national cancer control plan development
Holding nationwide cancer patient group meetings online
In May, a campaign to raise awareness about breast health and cancer prevention
Fundraising campaigns for a 3D mammography machine for the mammography bus
In October, a national pink ribbon campaign

Finland

National Representative:

Anu Niemi

Contacts:
anu.niemi@europadonna.fi
https://www.europadonna.fi

Activities in 2022

Rehabilitation course for families with MBC
Holiday weeks with peer support for MBC patients and families affected by BC
Continuing online activities such as support groups, webinars and yoga
A member survey on the experiences of receiving a BC diagnosis and follow-up
Participation in cancer research projects as patient advocates
Dissemination of information on cancer research to patients and the public
In September, the Nordic Congress on Breast Cancer for Nordic BC patient organisations

Highlights of 2021

Holding virtual and face-to-face peer support/discussion groups
Holding webinars on several topics, such as nutrition, fertility and cancer research
Virtual yoga, Pilates and lymphedema training
Advocacy for equal and timely diagnosis, treatment and follow-up despite COVID-19
Weekly MBC telephone helpline
Seminars and lectures for MBC patients
In autumn, starting MBC Advocacy Team
For BHD, social media campaigns and a webinar

France

National Representative:

Brigitte Heuls

Contacts:
europadonnafrance@gmail.com
https://www.europadonna.fr

Activities in 2022

Renewal of the board of ED France and reflections on new strategies to be implemented
In October, activities across France to raise awareness about BC
In November, the annual conference at the senate, with the main topic “How to prevent the adverse effects of treatment and help the patients who suffer from them”
A return to face-to-face meetings at the “Cafés Donna” after 2 years of virtual debates
Development of a think tank, “Collectif 1310”, with other associations to organise events for International MBC Day, raise awareness about MBC and improve patients’ daily life

Highlights of 2021

Continuing virtual meetings
Increasing phone line activities
Conference on “Specificity of the Treatment and Care of Young and Older Patients”
Maintaining a strong institutional presence regarding breast screening
BHD posts on social media
Awareness-raising of MBC by “Collectif 1310”
In October, a web seminar day

Georgia

National Representative:

Nino Kartvelishvili

Contacts:
nin_ka@hotmail.com

Activities in 2022

In March, a campaign to support Ukrainian oncological patients, including collection of leftover cancer medications, fundraising and a contribution of 7000 boxes of chemotherapy drugs from a major Georgian pharmaceutical network
A charity art exhibition by BC patients and ED Georgia supporters, to raise funds for medications for Ukrainian patients
In July, a roundtable on cancer treatments with physicians, patients, government representatives and the mass media, where financing from the state and private sector were also discussed
An information campaign on prevention of oncological diseases, aimed at early detection and diagnosis of cancer in women
A pink marathon

Highlights of 2021

In April, art therapy at the “Pink Space”
Regional advocacy training
An event to celebrate the last chemotherapy session of a young woman with BC

Germany

National Representative:

TBC

Greece

National Representative:

Elena Kountoura

Contacts:
europadonnahellas@gmail.com

Activities in 2022

Participation by ED board members in lectures and TV shows to raise awareness about BC, prevention and ED’s mission and vision
Courtesy beauty treatments for BC survivors

Participation in the Economist Forum with the Ministry of Health and European Commissioner Stella Kyriakides
Involvement in creating the National Breast Cancer Registry with the Ministry of Health
Participation by the President of ED Greece in a European Parliament event
A charity fashion show
For BHD, national BC awareness and promotion campaigns, and participation in TV/radio broadcasts
Coordinating participation in the ED Cyprus Conference
Participation in the Athens Marathon
Lectures throughout Greece raising BC awareness
Online scientific lectures on MBC and scientific articles on Facebook and the ED Greece website

Highlights of 2021

A free nipple tattoo for 5 BC survivors
Designing a blood donation campaign during a basketball event
A fashion show fundraiser
A meeting with the Deputy Mayor of Health of Athens to plan BC awareness activities
Planning the creation of a blood bank
Running campaigns to promote BC awareness
Participating in the Athens Marathon
Holding a meeting with the Health Minister to advocate for more certified breast units and radiotherapy centres
Lectures to raise BC awareness
Online lectures and articles on MBC
For BHD, a video campaign

Hungary

National Representative:

Adriánné Szabó

Contacts:
hetti1941@freemail.hu

Activities in 2021

Patient rights’ representation
Assistance with rehabilitation
Providing information on prevention and effective treatment
Supporting local clubs
In October, participation in a bridge walk and organising an awareness and information campaign
Organising a nationwide meeting on the prevention of MBC and its effective treatment

Highlights of 2020

Planting a tree in the park of Papá Castle, with positive thoughts, wishes and advice on pink hearts and ribbons
Organising excursions to Lake Balaton
In October, an awareness-raising bridge walk in Szentes
For World Cancer Day, a series of presentations organised by the National Organization of Cancer Patients, in Hungarian and English, including training in self-knowledge and opportunities to express fears and doubts

Iceland

National Representative:

Hrefna Ingólfsdottir

Contacts:
hrefna2908@hotmail.com

Activities for 2020

Planning for the Nordic Breast Cancer Conference to be held in Iceland and postponed until 2021
Planning two “Casting for Recovery” outings for 2021

Highlights of 2019

Organising the 10th “Casting for Recovery”, a fishing trip for BC patients and advocates to share experiences, in collaboration with the Icelandic Cancer Association counselling service
In spring and autumn, holding a course “My Way” for women who have been diagnosed with breast cancer and have completed treatment
In October, holding a well-attended Pink Symposium entitled “You Are Not Alone” in collaboration with partners. A Resolution was submitted to the Ministry of Health and other authorities to call for shorter waiting times for women being diagnosed with BC
Participating in the ED Pan-European Conference in Vienna

Ireland

National Representative:

Deirdre O’Connell

Contacts:
info@europadonnaireland.ie
https://www.europadonnaireland.ie

Activities in 2022

Maintaining and expanding MBC Connect, a private Facebook page for women with MBC
Participating in the National Cancer Control Programme Cancer Patient Advisory Committee, Psycho-Oncology Advisory Group and the Steering Group for Systemic Anti-Cancer Therapy Model of Care
Events for MBC Awareness Day on 14 October (with the Marie Keating Foundation)

Highlights of 2021

Using social media to spread information, given the limitations of the COVID-19 pandemic
Attending relevant webinars
Continued participation in National Cancer Control Groups
Maintaining and expanding the MBC Connect Facebook group
Planning and event for MBC Day in October
Discussing an online presence for BHD

Israel

National Representative:

Orit Spira

Contacts:
orit-spira@cancer.org.il
https://en.cancer.org.il

Activities in 2022

Support groups
Online and face-to-face lectures
“Yad Lehachlama” (Reach to Recovery): trained volunteer BC survivors supporting newly diagnosed women
A digital campaign and information sheet on BRCA testing available through the public health system for Ashkenazi Jewish women
A mobile mammography unit to improve equal access to early detection in all sectors of women across the country
For BC awareness month, a press release and campaigns in print media and on social media, and a “Celebrating Life” workshop
In October, online webinars and physical workshops on BC and MBC in Hebrew, Arabic and Russian

Highlights of 2021

Support groups
On-line lectures
“Yad Lehachlama” (Reach to Recovery) trained volunteer BC survivors supporting newly diagnosed women
New information sheet on BRCA testing available under the public health system for Ashkenazi Jewish women
BHD activities – a press release, campaigns in the media and social media and a series of podcasts
In October, an MBC webinar

Italy

National Representative:

Rosanna D’Antona

Contacts:
segreteria@europadonna.it
https://www.europadonna.it

Activities in 2022

Launching a digital campaign on genomic testing

A campaign to support psycho-oncological support in Italian SBUs

On-demand courses for associations and patients on dealing with digital interaction with BC care

A new delegation, ED Calabria

A project, a webinar and a live Facebook event for patients with triple-negative BC

Presentation of a manifesto to Italian parliament members on updating and increasing

screening quality

Presentation of the 3rd PWC analysis on social values

A campaign on bone risk during hormone therapy, involving web seminars and media

activity

A 15-minute documentary on breast unit activities

Inauguration of the ED Academy with classes on genomic testing

Press conferences on return to work and ABC

In October, an advertising campaign and a survey on MBC

4th edition of the Laudato Medico dedicated to ED founder Prof Umberto Veronesi

Highlights of 2021

A virtual campaign supporting free access to genomic testing

A project to help women with BC return to work, in collaboration with socially responsible companies

Third edition of the ForteMente project for psychological support in SBUs

National survey on the impact of the COVID-19 pandemic on BC diagnosis and possible treatments

An assessment of 3 regional SBUs

Lobbying parliament and re-establishing ED Parlamento, a transversal group of female senators and deputies

In October, a campaign on MBC, local and regional events, and illumination in pink of a local landmark

Kazakhstan

National Representative:

Nagima Plokhikh

Contacts:
zdorovayaaz@gmail.com
https://www.fza.kz

Activities in 2021

In October, an information campaign to encourage women to be screened, have mammograms and assume social responsibility for their health
Activities involving working closely with the government
Solution of issues regarding patients’ rights

Highlights of 2020

An ongoing project, “Baby, I Am with You,” aimed at supporting new-born children born prematurely and mothers, with the aim of preventing BC and cervical cancer. Publication of three brochures for mothers on the prevention of these diseases, “Breastfeeding”, “Family Planning” and “Life Without Cancer”
Activities involving working closely with the government
Solution of issues regarding patients’ rights

Kyrgyzstan

National Representative:

Taalaigul Sabyrbekova

Contacts:
sabyrbekova2011@gmail.com

Activities in 2022

For World Cancer Day, organising a conference with the National Oncology Centre
Regular meetings with BC patients and survivors for discussion, physical exercise, and provision of breast prostheses donated by an NGO and ED Luxembourg
In May, end of the Talas region mobile mammography trailer programme with 1,401 patients examined and 45 suspected BC cases detected
Assistance during hospitalisation to women from remote areas with breast or cervical cancer
Providing pension and benefit registration for BC patients with small children
For Pink October, open days at the Republican Diagnostic Centre; a mobile mammography trailer promotional event; peer counselling groups at the National Oncology Centre; participation in mass-media programmes

Highlights of 2021

In February, a meeting with government representatives and international organisations to discuss early diagnosis, availability of chemotherapy, pain relievers, rehabilitation and palliative care
Providing mammograms in the mobile trailer
Classes on physical activities for women with cancer
A psychological rehabilitation course for patients
Advocacy for quality oncology services and palliative care during COVID-19 pandemic
For BHD, awareness-raising activities with participation of BC survivors

Latvia

National Representative:

Gunita Berke

Contacts:
europadonna@dzivibaskoks.lv
https://www.dzivibaskoks.lv

Activities in 2022

Psychosocial rehabilitation programmes for BC patients and their relatives
Creation of ED Latvia’s Psychosocial Rehabilitation Centre, which is planned to open in 2023 and will provide rehabilitation after cancer to at least 1,000 people a year

Active defence of patients’ interests regarding increased funding for oncological care and participation in the development of the Oncological Care Plan 2022-2024

In October, the Pink Ribbon Campaign, training for the Volunteer Mentor Movement, mutual support group events and public lectures on life after cancer

Highlights of 2021

Planning and running special psychosocial rehabilitation programmes for women after BC
Developing the voluntary mentors’ movement for women after BC and training mentors
Developing regional activities and self-support groups
To increase funding for oncological treatments, a proposal to collect signatures, a letter to the government and a press conference

Lithuania

National Representative:

Juventa Sartataviciene

Contacts:
juventa.sartataviciene@nvi.lt

Activities in 2022

A conference together with an MEP with the event being broadcast on the European News YouTube channel
At the beginning of the year, starting the project “Genetic testing for mothers and daughters” with a partner
During the Vilnius marathon, encouraging women to participate more actively in the breast screening programme
October activities: Contact Annual Reporting Conference, and working with the National Cancer Institute Conference on hereditary breast cancer
Finishing the National Project “Crowd Ideas” with breast implants now included in the compensation measures in Lithuania
Continuing the “And Life Goes On” project with lectures by oncologists
Continuing studies at the University of Women of Wonder
Continued fundraising

Highlights of 2021

Creation of special physiotherapy pillows for women after breast surgery and donation of these pillows to patients in 3 university hospitals
Cooperation with health policies
Continuation of studies at WOW University
Continuation of the project “Crowd Ideas” on MBC

Luxembourg

National Representative:

Mariette Fischbach

Contacts:
mariettefischbach@yahoo.de

Activities in 2022

20th annual BC Run “Broschtkriibslaf”, held in person for the first time since the pandemic

In July, a conference “Together against Breast Cancer” for ED Luxembourg’s 20^th anniversary

A photography project “Objectif Rose” to help BC patients reconnect with their bodies and reveal their beauty

A flyer on breast self-examination in French and English for ED Luxembourg’s website and October information stands

Launch of a monthly BC support group at ED Luxembourg

Highlights of 2021

For BHD, the 30,000 Pink Ribbons virtual challenge (Broschtkriibslaf)

Promotion and financial support for supportive care, including sophrology, reflexology, yoga, nutritional therapy and acupuncture to help women to cope better with the side effects of treatments

Development of a new leaflet on being breast aware

Malta

National Representative:

Gertrude Abela

Contacts:
gertrude.europadonna@gmail.com
https://www.europadonnamalta.org.mt

Activities for 2022

Holding monthly members’ meetings online due to COVID but with a gradual return to face-to-face meetings
In June, a very successful in-person get-together and dinner with members
The ED Malta annual general meeting with the setting-up of a new committee group
In October, various Pink October activities

Highlights of 2020

Organising of online meeting to maintain contact with members during COVID-19 pandemic
Referring patients for counselling when necessary
Celebration of World Cancer Day with the national cancer platform NGO that includes other cancer NGOs

Moldova

National Representative:

Larisa Sofroni

Contacts:
sofroni@yandex.ru

Monaco

National Representative:

Valérie Barilaro

Contacts:
valeriebarilaro@gmail.com
https://www.ecoutecancerreconfort.org

Activities in 2021

Volunteer visits to cancer patients at Princesse Grace Hospital to provide information
A “Wellbeing Centre” for BC patients, including a beautician, a nutritionist and yoga classes
A healthy weekend excursion for patients
Regular weekly walks for patients
In October, the wearing of pink ribbons by members of the government and employees to show awareness, and a stand in partnership with a hospital to raise awareness about BC prevention
The annual Pink Walk
A meeting with a hotel about prevention and life after cancer
Speeches by psychologists and specialists and interviews with patients
In November, celebrating ED Monaco’s 30^th anniversary, with members of the royal family in attendance

Highlights of 2018

In January, being invited to the traditional galette des rois (three king’s cake) at a gathering with the Minister of Health
In February, speaking at the biannual oncology congress held in Monaco
In April, the general assembly
In June, participation of patients in a weekend seminar on self-esteem, an outing for patients on a sailboat, a luncheon for patients and members

Netherlands

National Representative:

Cristina Guerrero Paez

Contacts:
guerrero@borstkanker.nl

Activities in 2022

Improvement of patient information, implementing shared decision-making and encouraging precision medicine, with 3 new therapies submitted by The Netherlands

Participating in international conferences
An Instagram awareness-raising campaign on hereditary BC and early BC detection
Promoting contact between patients through information meetings, sports activities and support groups
For BHD, different sports activities, social media posts, and increasing research on exercise during treatment
Improvement of MBC patient’s journey: advocacy for access to new therapies, a brochure and fact sheet, 3 dedicated support groups

In September, hosting an MBC meeting on developing future strategy with experts, MBC patients and stakeholders from the field
The launch of ED Netherlands’ patient-driven research agenda naming 7 themes proposed by patients

Highlights of 2021

Improving information for patients, implementing shared decision-making, and encouraging precision medicine
Increasing attention for early detection of BC and hereditary BC
Extending contacts with other patients
For BHD, sports activities, social media posts and increasing research about healthy exercise during treatment
Improvement of MBC patient’s journey, including advocating for access to new therapies, a brochure and fact sheet

North Macedonia

National Representative:

Biba Dodeva

Contacts:
info@borka.org.mk

Activities for 2021

For October, a national BC campaign, including a social media press campaign, flyers on prevention, guidelines for newly diagnosed patients and BC patients’ video statements
Attending a government session on the national BC campaign, addressing the importance of prevention, early detection, screening and BC patients’ needs
Meetings with young BC patients
Meetings with medical specialists and lawyers, including free examination/consultation and legal advice
Online psychosocial support
Preparing “Comfort care packages — From me to you” from survivors to new patients
Lectures on the importance of early BC detection and a healthy lifestyle
The first “Pink Scarf Day”, dedicated to Muslim women
In December, a Pink Bazaar

Highlights of 2020

Annual activities: the Go Pink Walk, the 13th National Breast Cancer Conference, 2nd Balkan meeting for BC patient organisations, the help-line for patients and their families
BC events in 14 cities
Activities to support cancer patients during the COVID-19 pandemic situation, with distribution of therapies across the country
Online groups for psychosocial assistance and support for cancer patients
Several meetings with the Minister of Health to solve the problems that cancer patients experience due to COVID-19

Norway

National Representative:

Camilla Skare

Contacts:
post@brystkreftforeningen.no

Activities for 2022

Four national conferences with professional topics and networking including weekend gatherings for women under 45 and for women diagnosed with MBC
Increasing awareness of MBC, including a documentary and statue
Campaigns to ensure faster access to new publicly-funded medicine, such as PR and media coverage
Support for research environments with funding from ED Norway
Local activities including exercise groups, social gatherings and meetings on professional topics
Supportive care visits/telephone calls
Advocacy on cancer treatment topics, access to new medicines and care
Continuing advocacy and fundraising after reaching a record high in funds raised during Pink October in 2021

Highlights of 2021

Information and advocacy via webinars
A Pink Ribbon Campaign
Peer-to-peer work
Producing an informative film about MBC
Launching two educational films – #sjekk333 and Breast Cancer Sexuality

Poland

National Representative:

Dorota Czudowska

Contacts:
polskieforum@europadonna.org.pl
https://www.europadonna.org.pl

Activities in 2022

A fundraising campaign with posters and leaflets on the activities of ED Poland
Continued financial, material and organisational support for Ukrainian refugees
Participation in urban and rural festivals, promoting a healthy lifestyle and preventive mammography examinations
An interview with the Minister of Health on mammography screening for women aged 70-75
The XXV Congress of the Delegates of the Polish Forum, including topics involving the 2023 work plan, and an appeal to the Minister of Health regarding screening for women aged 70-75
A BHD campaign, with posters and brochures, media and social media activity, popular science conferences on BC, the “March to Health” and Zumba marathons

Highlights of 2021

In May, submission of annual reports to the state authorities
In September, organisation of the 25th General Assembly of ED Poland
In October, for BHD, an event, “March Towards Health”, a Zumba marathon, a press conference, information leaflets, mammograms in “mammobuses” and posts on social media
Participating in ED conferences and training

Portugal

National Representative:

Isilda Pegado

Contacts:
europadonna@ligacontracancro.pt

Activities in 2022

A BC screening programme
A Cancer Line to provide information and support
Psychological support for patients and relatives
Providing legal assistance
17 research grants for BC
The Pink October campaign
Medical expert support for cancer patients at medical boards
Participation in the public consultation of the National Strategy to Combat Cancer
11th edition of the course “Physical Treatment of Oedema – Intervention of the Physiotherapist in Oncology – LEDUC Method”

Highlights of 2021

Annual activities: BC screening programme, a research grant for BC, representation on the National Health Council, legal and psychological support, Pink October activities
Expert medical support for oncological patients on medical boards
Campaign with a cosmetics company to raise awareness for BC and funds for another direct digital mammography unit
Information support provided by Cancer Line

Romania

National Representative:

Mihaela Geoana

Contacts:
fundatiarenasterea@gmail.com

Activities in 2022

Annual activities: 8th “Happy Run” (over 2700 participants), the “Brave Cut” Campaign (over 950 wigs donated) and a pink illumination event
Supporting activities through an association to promote early detection of BC and other oncological or chronic diseases, with donation of protheses and bras
A mobile diagnostic campaign for breast and cervical cancer for women in rural areas
An advocacy event at the Romanian parliament on the need for a National Cancer Plan, with participation of the Minister of Health, senators and MPs, doctors and the media; 98,000 pink ribbons were displayed in front of the parliament
For BHD, donations via collaborations with a fitness app, and football and basketball players in pink shirts
For MBC, a roundtable “Together for HER” on the importance of screening and new therapies

Highlights of 2021

Annual activities: 7th “Happy Run”, “Brave Cut” Campaign and a pink illumination event
A 3-month mobile diagnostic campaign for breast and cervical cancer
Supporting activities by ASPO (psychological support groups, art therapy and yoga)
Advocacy activities and events stressing the need for a national BC screening programme
For BHD, yoga activities and counselling sessions on nutrition for BC survivors

Russia

National Representative:

Oksana Moldovanova

Contacts:
moldovanova@nwhcf.ru

Activities for 2020

Providing regular support for women with BC, families and friends in Russia and Russian speakers abroad
Conducting a session for cancer NGOs within the White Night International Cancer Forum
Participating in EBCC12 and attending the ED Advocacy Training Course
Developing an educational programme for oncologists and training for radiologists
For BHD: public talks “All About Breast Health” for working women; an Open Day “My First Mammograms” in mammography units

Highlights of 2019

Providing support for BC patients, families and friends through the first charity Breast Support Centre “Together”
Participating in the ED MBC Advocacy Conference, ED Pan-European Conference and the ED Advocacy Training Course
Donating medical equipment for BC screening to a medical centre
Conducting training for clinical oncologists and radiologists involved in BC treatment
For BHD: public talks “All About Breast Health” for working women; an Open Day “My First Mammograms” in mammography units

Serbia

National Representative:

Mirjana Brankovic-Magic

Contacts:
europa.donna.serbia@outlook.com

Activities in 2022

Distribution of 600 pink gift packs to BC patients
Online educational interviews on BC and COVID-19 vaccination

Education about BC in Subotica
Participating in a meeting on the psychological aspects of new treatment options for MBC
An awareness-raising campaign on BC prevention, a healthy lifestyle and support possibilities for BC patients
Participation in a new version of the “Guide to Diagnosis and Treatment of Breast Cancer” with the Serbian Ministry of Health
For BHD, a demonstration and lectures about BC and fertility, and hereditary BC

“The Race for the Cure”

Participation in a lecture during the “59th Cancerological Week”

A regional project on mammography screening in the Serbian Roma community, for women over 40

Highlights of 202

“Together we can do more” project providing gift packs for BC survivors
“Life is worth it” campaign for novel MBC therapies
A leaflet for newly diagnosed BC patients
Completion of Patients’ Academy
“The Race for the Cure”
For BHD, online educational interviews on BC, as podcasts on social media
Participation in the ED conferences and training

Slovakia

National Representative:

Alena Kallayova

Contacts:
akallayova@gmail.com

Activities in 2022

Education about proper life management, mammography screening and breast awareness training
Tasting sessions of healthy foods with recipes
Art exhibitions by BC survivors
Sports activities
Interactive discussions for the public
Cooperation with the National Oncological Institute and the Ministry of Health in helping to prepare legislation, professional conferences, an awareness campaign for mammography screening in Slovakia and a presentation for the International Agency for Research on Cancer (IARC)
Online activities at ruzovastuzka.sk
Cooperation with other patient organisations
For BHD, a press conference and 12 other activities
Pink illumination of cities and satellite activities at screening centres

Highlights of 2021

An online competition, “Therapeutic Herbs in Spring”
Promotion of a healthy lifestyles online
In June, “Run for Healthy Breasts”, a solidarity run online and in Bratislava; recognition of 2 mammography screening workplaces with the presentation of a statuette; lectures for health care providers
Online sports activities, “Support BHD by Doing Sports, You Too…”
Art exhibitions by BC survivors
Translation and printing of a brochure on MBC

Slovenia

National Representative:

Tanja Spanić

Contacts:
tanja.europadonna@gmail.com

Activities in 2022

In October, over 60 local events with physical activity, promotion of a healthy lifestyle, awareness-raising about screening and early detection
A visit to the national Parliament for a meeting with MPs and a speech by the President of ED Slovenia on the BC landscape and future for the country
For BHD, an ED Slovenia stand in Ljubljana, raising awareness about healthy lifestyle and screening; presentation of breast self-examination using a silicone model
In other cities, a pink festival, walks for health, healthy food, a cycling marathon, promotional stands to raise awareness, a cultural programme, and activities with cycling, hiking and exercise
An active social media campaign

Highlights of 2021

Annual activities: publication of 4 issues of ED News (88,500 copies per issue), patient counselling, psychosocial support for patients and relatives, including children
Special patient groups (young, metastatic, gynaecological cancers)
A brochure, “How to Communicate with BC Patients”
Awareness-raising videos
Online webinars for patients (prevention, quality of life, how to live after diagnosis)
October activities: a press conference, local awareness-raising campaigns, TV and online campaigns
Regular physical activities (online exercises, rowing, walks)
A lecture and a video on MBC

Spain

National Representative:

Carmen Boronat Jiménez

Contacts:
cboronat@icab.es
https://www.fecma.org

Activities in 2022

Webinars on digital accessibility, long survivorship needs, personalised medicine and other topics of interest to patients
Launch of a survey “Needs of women with breast cancer. Beyond the disease”
Advocacy activities and participation with the National Cancer Strategy Board in the update of the National Cancer Plan in line with Europe’s Beating Cancer Plan
Psychological support for women with BC and their families
Physiotherapy for lymphoedema
Fundraising for clinical trials
Maintenance of website and activity on Twitter and other social media

Highlights of 2021

Webinars on digital accessibility, long survivorship needs, the impact of COVID-19 on women’s health and other topics of interest to patients
Advocacy activities and participation with the National Cancer Strategy Board in updating the National Cancer Plan in keeping with Europe’s Beating Cancer Plan
Psychological support for women with BC and their families
Physiotherapy for lymphoedema
Fundraising for clinical trials

Sweden

National Representative:

Marit Jenset

Contacts:
marit.jenset@brostcancerforbundet.se
https://brostcancerforbundet.se

Activities in 2022

Input in reviewing the national BC care programme
National screening programme review in cooperation with The National Board of Health and Welfare
Digital and physical rehabilitation for MBC patients
A meeting with the Minister of Social Affairs on the unequal situation for treatment of MBC patients as the final activity in the project #givemetime
Training courses for local peer supporters
Education and workshops for elected officials in local branches
For International Women’s Day, a digital campaign on self-examination and early detection
A webinar for all members about precision medicine
In October, a BC report about individual and risk-based screening

Highlights of 2021

A member survey on the experiences of breast reconstruction
A film about COVID-19 vaccination and BC
A campaign on early detection aimed at immigrants
Input to the EU Commission, regarding the plan for a stronger European drug strategy
Rehabilitation funded by ED Sweden, and a report on rehabilitation highlighting national differences
A review of the national screening programme
Events encouraging physical activity throughout the year
For MBC, a project and rehabilitation funded by ED Sweden, a male ambassador programme sharing family experience of losing wife to MBC, an equal treatment campaign

Switzerland

National Representative:

Christina Christen

Contacts:
christina.christen@europadonna.ch
https://www.europadonnna.ch

Activities in 2022

Publishing news about BC, early detection, physical activity and nutrition on the simplythebreast.ch blog and on social media
Start of a new Tavola Rosa support group in Chur
Tavola Rosa meetings and excursions in Zurich, Bern and Chur
BHD at the Bürenlauf
For Pink October, an awareness campaign to teach women about breast self-examination
Articles and interviews in newspapers and magazines

Highlights of 2021

Publishing information and personal stories on the simplythebreast.ch blog and on social media
Tavola Rosa meetings, picnics and excursions
Distributing an inspirational patient booklet, providing advice on nutrition, sport and mindfulness, to MBC patients and SBUs
Providing information about physical activity and nutrition on the website and social media

Tajikistan

National Representative:

Firuza Abdullaeva

Contacts:
avesto97@mail.ru

Activities in 2022

Implementing the project on treatment access and palliative care based on a grant from Union for International Cancer Control (UICC)
Courses and seminars for patient groups and primary care physicians
Participation in the ED Advocacy Leader Conference
Training in breast self-examination
BC early detection campaigns in different regions, including among Afghan refugees
Meetings with the government on state purchases of chemotherapy for BC patients and improving access to treatment
Participation in a survey on access to radiotherapy for BC patients and a roundtable on radiotherapy
A roundtable on improving access to treatments
Distribution of breast prostheses
For October and BHD, an early detection and screening campaign, seminars on nutrition, breastfeeding, and healthy lifestyle, free aqua aerobics classes for BC patients, an information session for young women
Delivery of humanitarian aid (chemotherapy) to the National Cancer Centre

Highlights of 2021

Receiving a grant from Union for International Cancer Control (UICC) for advocacy efforts regarding cancer and ageing
Courses and seminars for patient groups, primary care physicians and nurses
A roundtable with government representatives as part of the UICC activities on early diagnosis and treatment of breast and cervical cancer, and on ageing and cancer
Holding meetings with patient groups
An information campaign in different health centres
A course for an MBC patient group on psychological support

Turkey

National Representative:

Violet Aroyo

Contacts:
violetaroyo@hotmail.com

Activities in 2022

A joint project with the European Oncology Nursing Society (EONS) on the breast care nurses training and curriculum for MBC patients
Attendance at the Biannual BREASTANBUL Conference, including speakers from ED Turkey, preparation of BC patient track content, BC patient advocacy for both early BC and MBC
BC cancer specialty training for oncology nurses
Raising awareness and a BHD campaign on social media
Addressing MBC patients’ needs
Organising safe transportation of BC patients from home to hospital for chemo and radiotherapy

Highlights of 2021

Continuing performing breast screening for refugee women
Continuing to provide treatment follow-up support for refugee women diagnosed with BC
Continuing the ONKOVAN project with a patient rights association
Applying for and being awarded a grant for a project involving oncology nurses and improving the quality of care for women with MBC
A social media campaign for BHD

Ukraine

National Representative:

Galina Maistruk

Contacts:
maistruk@rhr.org.ua

Activities for 2020

A national BC information campaign on social media about early detection and reducing risk
In October, a Pink Breakfast for media representatives
A BHD event in Parliament
Supporting the national breast health hotline

Highlights of 2019

Holding the fifth BHD event at the Ukrainian Parliament with parliamentarians and cabinet ministers taking part. ED Ukraine representatives and MPs raised awareness of the importance of BC prevention and screening in an event with media presence
Donating a mammography unit to the Sumy Regional Cancer Centre, purchased with funds raised in cooperation with a cosmetics company
Rehabilitation programmes for BC survivors focusing on quality of life after treatment, prevention and treatment of lymphoedema and psychological support
Running a national BC hotline providing information services and counselling
Participating in the ED Pan-European conference

National Representative:

Margaret Spittle

Contacts:
edukforum@gmail.com

Activities in 2022

Advising on a Cancer Research UK TV advert
Virtual motivational presentation to new students at the University of Nottingham’s Centre for Cancer Sciences
Involvement in National Audit of BC in Older Patients to improve quality of hospital care and highlight concerns, and collaboration in a guide to the BC care pathway
Assistance in a scheme with other organisations to provide personal support for cancer patients
Organising an event on connecting technology with Imperial Women’s Network discussing artificial intelligence in BC prognostics
Collaborating with a health company campaign, “Check for Change”
For International Women’s Day, representation in a social club event and a talk at a luncheon for the charity ForcaAgainstCancer to raise BC awareness
A talk at the Association of Breast Surgery conference on harmonisation of nursing titles and micropigmentation/medical tattooing
Evaluating project applications for the Nottingham Breast Cancer Research Centre

Highlights of 2021

Part of organising committee for Cancer and Therapy Meeting at University of Westminster including BC sessions
Participation in the International Women’s event in London
Meet-the-Expert European event on management of patients with MBC during COVID-19 pandemic
Assistance in development of prosthetic breast as breast examination tool
Participation in the SWEET trial to improve outcomes among women with early BC through adherence to adjuvant endocrine therapy
MBC session with a pharmaceutical company
Planning of annual symposium in 2022 on the Million Women study
BHD awareness-raising activities among staff of a large supermarket chain

Uzbekistan

National Representative:

Shakhnoza Umarova

Contacts:
eduzbekistan@mail.ru

Activities in 2022

In February, participation in the promotional and educational events of the Association of Oncologists of Uzbekistan
In March, celebration of International Women’s Day with BC survivors and advocates
In October to promote BHD, social events in Tashkent involving BC patients and survivors
Participation in the BREASTANBUL 2022 Conference in Turkey
A series of online seminars on MBC for the BC survivors in the regions of Karakalpakstan and Khorezm

Highlights of 2021

Holding a series of online sessions on COVID-19 and its impact on BC patients
Celebration of International Women’s Day with BC survivors and advocates
Participation in the promotional and educational events of the Association of oncologists of Uzbekistan
For BHD, celebrating Pink October, holding a series of online seminars for BC survivors and promoting BHD involving BC patients and survivors

Europa Donna Member Countries

info@europadonna.org

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Albania

Donjeta Zeqa

Armenia

Nvard Kocharyan

Austria

Tanja Schneider

Belarus

Palina Soldak

Belgium

Annette Hirsch

Bulgaria

Evgenia Aleksandrova

Croatia

Vesna Ramljak

Cyprus

Mary Perdiou

Czech Republic

Marta Kostrovà

Denmark

Randi Krogsgaard

Estonia

Maie Egipt

Finland

Anu Niemi

France

Brigitte Heuls

Georgia

Nino Kartvelishvili

Germany

TBC

Greece

Elena Kountoura

Hungary

Adriánné Szabó

Iceland

Hrefna Ingólfsdottir

Ireland

Deirdre O’Connell

Israel

Orit Spira

Italy

Rosanna D’Antona

Kazakhstan

Nagima Plokhikh

Kyrgyzstan

Taalaigul Sabyrbekova

Latvia

Gunita Berke

Lithuania

Juventa Sartataviciene

Luxembourg

Mariette Fischbach

Malta

Gertrude Abela

Moldova

Larisa Sofroni

Monaco

Valérie Barilaro

Netherlands

Cristina Guerrero Paez

North Macedonia

Biba Dodeva

Norway

Camilla Skare

Poland

Dorota Czudowska

Portugal

Isilda Pegado

Romania

Mihaela Geoana

Russia

Oksana Moldovanova

Serbia

Mirjana Brankovic-Magic

Slovakia

Alena Kallayova

Slovenia