Member Countries

  • Albania

    National Representative: Donjeta Zeqa

    Email: donjetazeqa@gmail.com

    Highlights of 2016

    • A “Donate Hair, Give Hope” campaign lasting several months
    • An “Open Letter” on issues faced by women with breast cancer (BC), with many diplomats’ and foreign representatives’ signatures
    • Creating a “Zen Room” for women with BC
    • First training course for local organisations on advocacy for better health
    • “Ride for Life”
    • A volleyball team activity at the Sports University in Tirana
    • Joining the first “Patient association coalition” which involves meetings and demonstrations concerning patients’ rights
    • Obtaining media support for activities and attention to oncology issues

    Activities for 2017

    • The second phase of “Donate Hair, Give Hope”, providing wigs for women
    • Publishing two ED Albania newsletters for free, with the daily newspaper Panorama
    • Creating a website dedicated to women and cancer
    • October activities
    • Meetings with women with BC, a roundtable with patients, doctors and policy makers
  • Armenia

    National Representative: Nvard Kocharyan

    Email: nvardkocharyan@gmail.com

    Highlights of 2016

    • A charity concert “You are Not Alone” for women with BC
    • A bicycle ride “Healthy Lifestyle, Healthy Breast”, with an outdoor concert, and leaflet distribution
    • In October, a walk marathon
    • In November, the first Patient Forum dedicated to the fight against BC
    • Meetings, discussions, and regional visits
    • Legal support for 3 women with BC

    Activities for 2017

    • A charity concert “You Are Not Alone” for women with BC
    • Street activities in 3 different towns, promoting early detection
    • A “Conquerable Cancer” conference with doctors and patients
    • Throughout July, swimming training for women with BC, and a small competition
    • A bicycle ride around Yerevan
    • In October, an “I Love You Mummy” walk of BC survivors with children, wearing pink T-shirts
    • Free ultrasound for BC, trainings and meetings in regions
    • Meetings in hospitals with patients and doctors
  • Austria

    National Representative: Mona Knotek-Roggenbauer

    Email: info@europadonna.at
    Website: www.europadonna.at

    Highlights of 2016

    • 3rd Austrian Breast Cancer Patients Congress
    • Breast Health Day (BHD) campaign: “Day of Movement”
    • Cooperation with Austrian Cancer Aid and Pink Ribbon
    • Pink Dragons Austria paddling event
    • Participation in conferences and public events

    Activities for 2017

    • 4th Austrian Breast Cancer Patients Congress
    • Annual activities: advocacy and public relations, “Day of Movement” BHD campaign, cooperation with Austrian Cancer Aid and Pink Ribbon, Pink Paddling events and participation in conferences
  • Belarus

    National Representative: Palina Soldak

    Email: polinsoldak@mail.ru
    Website: www.europadonna.by

    Activities for 2017

    • Attending EBCC10 and sharing materials with BC groups in Belarus
    • Participation in June 2016 Eurasia Oncology Conference in Minsk
    • Developing a new ED Belarus website and Facebook page
    • Continuing with capacity building of NGOs and promoting evidence-based BC information for patients
    • June Photo exhibit “You are Beautiful” with BC survivors to raise money for a psychological support group
    • A July meeting with the Grodno BC support group
  • Belgium

    National Representative: Birgit Carly

    Email: birgit.carly@skynet.be
    Website: www.europadonna.be

    Highlights of 2016

    • Participation in the 10th European Breast Cancer Conference (EBCC10)
    • Participation at the EORTC patient’s day
    • Several conferences throughout the country: “Healthy Food and Moving: What a Pleasure!”
    • Conference on implementation of specialist breast units (SBUs) and the need for breast nurses
    • Presentation at the symposium of the Belgian Society of Lymphology
    • Attending the Breast Cancer Group Forum in Milan
    • Participating in ED Advocacy Training course
    • Attending the Breast Cancer Europe Roundtable by the International Centre for Parliamentary Studies
    • Holding the ED Belgium General Assembly in France and meeting with ED France
    • Promoting BHD
    • Press communication for the reimbursement of breast reconstruction

    Activities for 2017

    • Conference on healthy lifestyles and implementation of SBUs
    • Letter to the Belgian Minister of Health concerning the implementation and monitoring of SBUs
    • Attending the ED Pan-European Conference

  • Bulgaria

    National Representative: Mila Nenova

    Email: eudonnabg@abv.bg

    Highlights of 2016

    • Meetings with parliamentarians to present issues concerning BC in Bulgaria and ED activities
    • Meeting with health professionals to promote best practices
    • Participation in the activities of APOS, a patient organisation for different types of cancer
    • Participation in 3 radio shows and in one TV talk show on the main topics of breast health, prevention and breast health in young women

    Activities for 2017

    • Aiming to participate in 3 radio shows and additional radio and TV programmes
    • Activities in cooperation with other cancer organisations
    • For BHD, participation in a national TV morning show, and promoting the BHD video on the ED Bulgaria Facebook page
  • Croatia

    National Representative: Vesna Ramljak

    Email: vesnaramljak@yahoo.com

    Website: www.europadonna.hr

    Highlights of 2016

    • “Daffodil Day” event in 33 cities, including the main event in Zagreb city centre
    • Attending EBCC10 and the ED Advocacy Leader Conference
    • Annual General Assembly (GA)
    • Fund-raising campaigns to purchase an intraoperative radiotherapy (IORT) device
    • Advocacy activities for SBUs and on comprehensive cancer care and research
    • Participating in national projects for the cancer strategy
    • Media campaigns and lectures on BC and on healthy lifestyles, as well as BHD activities
    • Pink Ribbon activities and walks
    • Participating in the working group to establish Croatian guidelines for genetic testing for breast and ovarian cancer

    Activities for 2017

    • Fund-raising activities including a humanitarian run “Donate for Donna”; a movie screening “Mamma”; and a theatre performance “Comet“
    • Participating in “Making the Cancer Partnership Work”, a joint action of cancer patient organisations in European Economic Community countries
    • Raising awareness through lectures in schools and other target audiences
    • Annual activities: Daffodil Day event; Pink Ribbon activities and walks; conference attendance (ED Pan-European Conference and MBC meeting)
    • Updating ED Croatia leaflets

  • Cyprus

    National Representative: Stella Mastora

    Email: info@europadonna.com.cy

    Website: www.europadonna.com.cy

    Highlights of 2016

    • Annual activities: a summer party for women with BC, Pink Silhouette walk, BHD activities, pink illumination of Paphos medieval castle, “Look Good, Feel Good” day activities, participation in conferences abroad, psychological support by an ED Cyprus psychologist, “Breast Friends” support programme, crafts workshops, Christmas and Easter family food packages, lectures in all towns, participation in solidarity runs
    • Meetings with the Ministry of Health about implementing a SBU in Nicosia General Hospital
    • Participation in the steering committee of the national screening programme
    • Lecture in memory of an ED Cyprus member
    • Workshop on empathy, creativity and drama therapy
    • Co-organising a Cancer Day event
    • Co-organising a conference on home nursing with other organisations in Cyprus and Greece
    • Membership in the Cyprus Patients’ Organisation that represents Cyprus at the European Patient Forum (EPF)
    • Updating all ED Cyprus leaflets
    • Participating in a charity event “i Fitness”, with all day Pilates, yoga and other fitness activities
    • Musical charity event at the Presidential Palace

    Activities for 2017

    • Annual activities: Pink Silhouette walk, BHD activities, pink illumination of public buildings, conference participation, fund-raising fashion shows, Breast Friends programme, psychological support, lectures, solidarity runs, “Look Good, Feel Good” day activities, summer party for women, Cancer Day activities, national screening programme participation, being board members of Cyprus Patients’ Organisation
    • Opening of the SBU in Nicosia General Hospital
    • Longest knitted scarf event in memory of a member
    • Sponsored seminar on lymphoedema
    • Lectures on the relationship between the breast, body image and art, “The Preventive Power of Food” and “Bereavement and Loss in Children”
    • Meeting with the national organisation of breast surgeons
    • Translation of the oncoplastic breast reconstruction guidelines
    • Participation in the Europe Day events
  • Czech Republic

    National Representative: Marta Kostrovà

    Email: aliance@breastcancer.cz

    Highlights of 2016

    • Professional seminars for patients’ organisations on psychological support during and after treatment
    • Annual Alliance of Women with BC conference
    • Campaigns on importance of BC prevention – BHD (“We Are Swimming the Breast Stroke”, “Closely Watched Breasts”, a walking event, education at schools)
    • Ongoing “Invisible Women” project focused on MBC
    • Ongoing “Bellis Young & Cancer” project focused on young women

    Activities for 2017

    • Celebrating the 15th anniversary of the Alliance of Women with BC with local organisations
    • Psychological workshops with professional training in self-support of patients due to lack of oncological psychologists
    • Annual activities: Alliance of Women with BC Conference, BHD, education at schools, “Bellis Young & Cancer” and “Invisible Women” projects
    • Closely Watched Breasts campaign: a “Breast Tent” in Hradec Králové and a travelling “Breast Wall” exhibition in local cafes in 30 towns
  • Denmark

    National Representative: Eva Bundesen

    Email: eva.bundesen@brystkraeft.dk

  • Estonia

    National Representative: Maie Egipt

    Email: maie.egipt@cancer.ee 

    Highlights of 2016

    • Cancer patient group monthly meetings with presentations and counselling
    • May Breast Health Awareness Month activities with full media coverage. The ED mammography bus promoted breast screening at the marathon for women
    • Organising a national conference on cancer screening programmes
    • Collaboration in a BC media campaign in May and October
    • A retreat for cancer patients
    • October activities, including a Pink Ribbon campaign
    • Attending the ED Advocacy Training Course and the European Commission Initiative on Breast Cancer (ECIBC) plenary

    Activities for 2017

    • Continuing the cancer patient group meetings
    • Launching a new BC education campaign (“Pink Rules”) in May on co-operation with health education university students and patient volunteers
    • Annual summer retreat for cancer patients
    • Nation-wide Pink Ribbon campaign to coincide with BHD
    • Advocating for the National Breast Screening Programme which will be extended to age 69 from the current 62 years
  • Finland

    National Representative: Anu Niemi

    Email: anu.niemi@europadonna.fi 

    Website: www.europadonna.fi

    Highlights of 2016

    • Producing a video on how to exercise to ease lymphoedema symptoms
    • Training new peer support specialists
    • Art therapy courses
    • Recreational activities for women with MBC
    • BHD event at the Helsinki City Centre, giving away ”healthy bags” with fruit and information on breast health
    • “Pink Bales” fund-raising campaign

    Activities for 2017

    • Producing a Q&A leaflet to help patients with shared decision-making at doctor’s appointments
    • Training new peer supporters and starting new groups
    • Different theme weekends, recreational activities
    • BHD activities
    • Lectures providing information on BC and ED Finland in several cities
  • France

    National Representative: Dominique Debiais

    Email: europadonnafrance@gmail.com

    Website: www.europadonna.fr

    Highlights of 2016

    • Annual conference in Paris, “Breast Cancer, Why Me?”
    • Introducing a new scientific board and steering committee
    • Participating in various scientific committees and advisory boards (Unicancer, Institut Curie, Screening organisations, Cancer League)
    • Advocacy for equal access to best care for all patients

    Activities for 2017

    • Monthly Café Donna in Paris, Lyon, Bordeaux, Nantes, Auxerre, Strasbourg
    • Sailing and biking in Nantes
    • Country trek and city trek in Lyon and Angers
    • Dragon Boat with the Paris Dragon Ladies
    • Pink October all across France
    • And also music, theatre and more
  • Georgia

    National Representative: Nino Kartvelishvili

    Email: nin_ka@hotmail.com

    Highlights of 2016

    • Completing the “Target For Life” information campaign for co-financing of BC treatment, with a further extension to include MBC
    • BHD activities with students at medical faculties with TV campaigns, charity concerts, patients’ art exhibitions, advocacy activities and free examinations for women in regions
    • Creating a cycle of films under the main title “I Defeated Breast Cancer”, featuring women with BC telling their stories, and aired on national TV

    Activities for 2016

    • Continuing the film cycle “I Defeated Breast Cancer”
    • Bringing together the representatives of state institutions, medical doctors, mass media and NGOs in a roundtable to discuss solutions to patients’ problems
    • For BHD 2017, a flash mob with students and a televised concert with participation of celebrities
  • Germany

    National Representative: TBC

  • Greece

    National Representative: Elizabeth Meier

    Email: lizameier85@gmail.com

    Highlights of 2016

    • Attending the ED Advocacy Training Course
    • Participating in TV panels on BC
    • Participating in the Parliamentary Committee on BC Issues to discuss such topics as access to diagnosis, treatment and reimbursement, and to collaborate in conducting a survey
    • on BC therapy and general health services
    • Meetings at the Ministry of Health on NGOs and their help in maintaining the national health care system
    • Participation in the Centre for Disease Control Committee on Cancer Registries
    • BHD activities
    • Organising an educational event on BC prevention and treatment with the participation of renowned physicians and 250 attendees
    Activities for 2017
    • Participation in the Women for Oncology Cancer Conference
    • Increasing membership by 500 people through a web-based registration process
    • Developing a charity programme to offer free mammograms and genetic tests for women unable to afford the test
    • Forming a committee with the Greek Oncologists Organisation to propose a reimbursement programme for genetic testing to the Ministry of Health, and providing scientific data on the topic
    • Participating in the Athens marathon as an ED Greece team
  • Hungary

    National Representative: Judit Lautner

    Email: lautnerjuci@gmail.com

  • Iceland

    National Representative: Hrefna Ingólfsdottir

    Email: hrefna2908@simnet.is

    Highlights of 2016

    • “Casting for Recovery,” a fishing activity, every year for women in rehabilitation after BC treatment
    • Monthly “open meetings” on different discussion topics for women diagnosed with BC
    • The biennial Nordic Congress on Breast Cancer, held for the first time in English, with more than 150 participants, and focusing on hereditary BC and living with BCA “Pink Forum” on late side effects of BC treatment, with lectures from women in Iceland and Denmark and professionals in association with the Icelandic cancer associations

    Activities for 2017

    • Annual activities: “Casting for Recovery”, monthly open meetings, “Pink Month” and BHD activities, and preparing for the next “Pink Forum”
  • Ireland

    National Representative: Deirdre O’Connell

    Email: info@europadonnaireland.ie
    Website: www.europadonnaireland.ie

    Highlights of 2016

    • Attending EBCC10 and the ESO-ESMO Breast Cancer in Young Women Conference
    • Increasing activity in patient involvement in research by contributing to 2 EU Horizon 2020 research proposals, one of which has reached the second round
    • Participation of ED Ireland representatives on bodies including Patient Forum for the National Cancer Strategy and Radiographers Registration Board
    • Launching “Connect MBC Network”, a private online forum for women living with MBC plus a public information platform, and co-hosting a seminar, “Metastatic Breast Cancer & You”
    • BHD activities including Ireland’s largest university with events on campus to encourage students to pledge lifestyle changes for future breast health, and local awareness raising events at community centres across the country
    • ED Ireland stands at a number of events and conferences

    Activities for 2017

    • Development of Connect MBC Network project
    • BHD 2017
    • Upgrade of ED Ireland website
    • Campaign issues: improved MBC services; legislation for private hospitals; completion of national cancer strategy
    • Expansion of national network of ED Ireland volunteers
  • Israel

    National Representative: Miri Ziv

    Email: miriziv@cancer.org.il
    Website: click here

    Highlights of 2016

    • A press release on up-to-date BC incidence, survival and mortality rates in Israel
    • Annual “Celebrating Life” seminars, including ones for young women with BC and women with MBC
    • New public information booklets and advertisements
    • Support groups for BC patients and their partners as well as for specific groups, eg, women with MBC
    • Partnering with a cosmetic company in illuminating the Charles Bronfman Auditorium in Tel Aviv
    • Premiere screening of the film Mama Mia, a tribute evening to raise MBC awareness
    • “Sister in Pink” fund-raising event
    • “Things Aren’t as Bad as They Seem”, a play by Aviva Rosen who has faced BC
    • Collaboration with photographer and BC survivor Michal Bendek, who took semi-nude shots of 40 women for a social media campaign to raise awareness of early detection
    • Disseminating ED materials via the website and Facebook
    Activities for 2017
    • A press release on national BC incidence, survival and mortality rates
    • Continued posting of public service announcements, articles, personal stories and ED materials on the website and Facebook
    • Annual seminars
    • Support groups for BC patients and a special support group for their partners
  • Italy

    National Representative: Rosanna D’Antona

    Email: segreteria@europadonna.it

    Website: www.europadonna.it

    Highlights of 2016

    • Promotion of the SBU law with public events in Turin and Terni
    • Implementation of BC screening in the south with events in Catanzaro
    • Creating the second and third chapters of an interactive library: “Prevention” and “MBC”
    • A training programme for associations working in the SBU: 3 levels with 1-day sessions each in 4 cities with 70 associations and 170 women in attendance

    Activities for 2017

    • Promotion of the SBU law with public events in Venice, Rome and Bari
    • Implementation of BC screening in the south with events in Pescara
    • Video with patients and medical associations asking public authorities to implement SBUs in all regions
    • Meeting with parliamentarians to revive “Europa Donna Parlamento”
    • 10 recommendations for SBU implementation presented to Health Ministry
    • National training programme on MBC for associations working in the breast unit
  • Kazakhstan

    National Representative: Nagima Plokhikh

    Email: zdorovayaaz@gmail.com

    Website: www.fza.kz

    Highlights for 2016

    • A press lunch on opioid availability to cancer patients
    • A charity event “I Can, You Can” with participation of MPs, the Ministry of Health, journalists and NGOs
    • Awareness-raising activities on early diagnosis and prevention of BC, including meetings, presentations and discussions
    • A 3-month social theatre advocacy project “You Are Not Alone”
    • Visits from European Society of Oncology (ESO) and other experts to ED Kyrgyzstan’s Patient School

    Activities for 2017

    • Advocacy and technical assistance for the development of BC guidelines
    • Facilitating good collaboration between ESO, the Ministry of Health and the National Oncology Centre for training of lab specialists, oncologists, radiographers and others
    • Advocacy for availability and affordability of chemotherapy and hormone therapy
    • Continuing BC awareness raising activities using different tools and approaches
    • Celebrating BHD and Pink October activities
    • Continuing work on palliative care development
  • Kyrgyzstan

    National Representative: Taalaigul Sabyrbekova

    Email: sabyrbekova2011@gmail.com

    Highlights of 2016

    • A charity event dedicated to World Cancer Day on 4 February
    • Participation in promoting the reconsideration of the Law on Oncology Care
    • Awareness-raising activities to improve the quality of oncology service provision
    • Participation in EBCC10
    • Participation in ED Advocacy Leader Conference
    • Pink October Events and fund-raising
  • Latvia

    National Representative: Gunita Berke

    Email: europadonna@dzivibaskoks.lv

    Webmail: www.dzivibaskoks.lv

    Highlights of 2016

    • Psychosocial rehabilitation programmes for BC patients and relatives
    • Publishing in the patient information newspaper “The Patient’s Voice” an article on “the BC screening programme: the best way to save lives”
    • “The Tree of Life” video: “How to Change/Influence the World?” posted on YouTube
    • In October, inspiring talks on “disease as a burden or a challenge and a new beginning”
    • In October, “The Healthy Food Table” for everyone
    • A charity campaign “Give Five” organised to support cancer survivors and their relatives and held during a week-long radio show to inspire people to have quality of life

    Activities for 2017

    • Holding 21 psychosocial rehabilitation programmes for cancer patients and their relatives
    • Pink Latvia campaign in October with a photo exhibition “My life, My challenge: How to Live After Cancer?”
    • Planning to create information booklets “My Mum has Cancer, What Does it Mean?” and “Quality of Life After Cancer”
    • In October, a press conference on BC awareness and reality
  • Lithuania

    National Representative: Juventa Sartataviciene

    Email: juventa.sartataviciene@nvi.lt

    Highlights of 2016

    • After a General Assembly, the ED Lithuania association name was changed to the National Association of Breast Diseases (NABD)
    • Meeting with Minister of Health and subsequent correspondence
    • For BHD, a press conference for patients and doctors on the theme “When did you last check your breasts?”
    • In October, participation in events organised by other groups in various cities
    • In December, organising an annual conference, “Will science meet our expectations?”, in collaboration with the National Cancer Institute and Vilnius University
    • Creating a video on breast self-exam in Lithuanian
    • Continuing “The Knot of Life” project with the Vilnius Academy of Art to support women with BC who have lost their hair due to chemotherapy, and involving the presentation of 2 unique publications about headwear at the National Cancer Institute and the Hospital of the Lithuanian University of Health Sciences in Kaunas

    Activities for 2017

    • Continuing advocacy activities
    • Electing a new ED Lithuania president
  • Luxembourg

    National Representative: Mariette Fischbach

    Email: mariettefischbach@yahoo.de

    Highlights of 2016

    • “Serenity and Well-being” conference with workshops on yoga, mindfulness, reflexology and more
    • Participation in the 24-hour Awareness Run “Relais for Life”
    • Participation of 11 women in the “Breithorn” climb inspired by the film “Rope of Solidarity”
    • Presentation of the results of the 2015 survey “Parcours de Femmes”
    • In October, the “Broschtkriibslaf” annual run against BC
    • In October, participation at the “Pink Shoe Day” in Leipzig, Germany, with 450 pairs of pink shoes collected in Luxembourg, one for every new diagnosis per year
    • Cinema Spot “Breast Cancer: Aware-Share-Care”
    • Participation in the ED Advocacy Leader Conference in Milan

    Activities for 2017

    • Celebrating 15 years of ED Luxembourg with a conference and photo competition
    • Fashion show featuring lingerie and wigs
    • Dialogue with hospitals following the results of the 2015 survey
    • “Broschtkriibslaf” annual run
  • Macedonia

    National Representative: Biba Dodeva

    Email: info@borka.org.mk

    Highlights of 2016

    • Organised the biggest campaign in Macedonia for BC awareness “Go Pink Walk and Race For the Cure”
    • The 9th National Breast Cancer Conference in October
    • Organising a project for “resocialisation” of women with BC
    • BHD activities with a small demonstration of BC survivors
    • An SOS line for the BC patients, family and friends
    • Running psychosocial groups twice a month for women with BC

    Activities for 2017

    • Attending the ED Pan-European Conference in October and ED Advocacy Training in November
    • The “Go Pink Walk and Race For the Cure” in autumn with a focus on MBC
    • For BHD, holding a 1-day excursion and picnic at famous national site
  • Malta

    National Representative: Doriette Darmanin

    Email: info@europadonnamalta.org.mt

    Webmail: www.europadonnamalta.org.mt

    Highlights of 2016

    • Elected a new committee
    • Awareness walk and run
    • Motorbike ride
    • Public lecture “Who Cares for the Carer” inspired by Doris Fenech
    • A seminar in Gozo
    • BHD in Malta and Gozo
    • Advocacy course for advocates
    • Annual fund-raising gala

    Activities for 2017

    • Doris Fenech Memorial seminar about MBC
    • Re-establishing the metastatic branch of ED Malta
    • Awareness walks
    • Fashion show
    • BHD activities
    • Annual public lecture
    • Annual fund-raising gala
    • Translation of an MBC book from English to Maltese
  • Moldova

    National Representative: Larisa Sofroni

    Email: sofroni@yandex.ru

  • Monaco

    National Representative: Valérie Barilaro

    Email: valeriebarilaro@gmail.com 

    Webmail: www.ecoutecancerreconfort.org

    Activities for 2016 and 2017

    • Holding monthly “dance and write” workshops where women can work on their bodies, and on self-acceptance, while attaching words to how the body is feeling
    • Organised a conference on “After Cancer”, the role of physical activity during treatments as well as afterwards, plus meditation for rehabilitation
    • Organising a charity evening for the 25th anniversary of the association
    • Maintaining regular communication with the Minister for Health, which led to bringing in a healer to the hospital to help with the side effects of radiotherapy for BC or other cancers
    • Participating every year in “Pink Ribbons of Monaco”
    • Providing free support daily to patients and their caregivers at the hospital and in a care centre
  • The Netherlands

    National Representative:  Dominique Sprengers

    Email: Sprengers@borstkanker.nl

    Highlights of 2016

    • Partnering with Dutch screening organisation and advocating for state of the art for the national screening programme
    • Making “Monitor Breast Cancer” with criteria for optimal care available for all patients in 90 hospitals
    • Implementing “B bewust, B awareness”, a web-based tool with 12 theme checklists to help patients make informed treatment choices, now in 20 hospitals
    • Creating “B optimum” in cooperation with medical professionals to set 10 goals for optimal BC care
    • Conference on BRCA and other hereditary BCs with 600 attendees
    • Three magazines, one special edition to raise awareness of late effects of treatment
    • Successful advocacy at the Dutch Institute of Healthcare (which advises the Minister of Health) for reimbursement of lipofilling

    Activities for 2017

    • Project comparing the treatment option tools for MBC to help patients choose a tailored treatment
    • Working group about the late effects of treatment and to prevent overtreatment
    • Implementing “B Optimum” by discussing it with medical professionals and other stakeholders
    • Educating the 300 active members of “BVN Academy” to provide them with tools for patient advocacy
    • One conference for new patients and one about MBC
    • A special edition of “B” magazine about MBC
  • Norway

    National Representative: Anette Nordby Strømnes

    Email: post@brystkreftforeningen.no

    Highlights of 2016

    • Increasing awareness of hereditary BC and MBC
    • Continuing advocacy related to cancer treatment and care
    • Weekend gatherings for women under 40, those diagnosed with metastatic cancer, with hereditary BC, and those diagnosed 3-5 years ago
    • Supporting research environments
    • Local activities including exercise groups, social gatherings and meetings on professional topics
    • Supportive care visits and telephone calls

    Activities for 2017

    • A national conference featuring professional topics and networking
    • Increasing awareness of supportive care after treatment
    • Weekend gatherings for women under 45 and for women diagnosed with MBC
    • Annual activities: supporting research environments; local activities such as exercise groups, social gatherings and meetings; supportive care; continuing advocacy for
    • cancer treatment and care

  • Poland

    National Representative: Dorota Czudowska

    Email: polskieforum@europadonna.org.pl

    Webmail: www.europadonna.org.pl

    Highlights of 2016

    • Participating in EBCC10 and the ED Advocacy Leader Conference
    • In April, the GA and a conference “Diagnosis and Treatment of Breast Cancer” in Piła
    • In August, gathering of the regional ED Poland presidents in the Parliament in Warsaw
    • For BHD: a conference and workshops, a “March to Health” and zumba marathon, a Pink Ribbon March; lectures about BC in schools and free mammography

    Activities for 2017

    • In May, BC lectures in schools and participation in SBU opening in Wrocław
    • In June, GA in Nowy Sącz and a conference “Effective Treatment of Breast Cancer” and “Role of ED in improving the access to prevention and treatment of BC”
    • For the BHD campaign, a press conference at the Parliament
    • Participation in the ED Pan European Conference and the Advocacy Training Course
  • Portugal

    National Representative: Isilda Pegado

    Email: europadonna@ligacontracancro.pt

    Highlights of 2016

    • Petition “For Equity in Access to Screening, Diagnosis and Treatment of Women with BC” with 27,505 signatures was delivered to the Vice-President of the National Assembly
    • on the World Day Against Cancer and resulted in the unanimous approval of 2 draft resolutions
    • Campaign with a cosmetic company to raise funds and awareness for BC to enable the purchase of 3 direct digital mammography units
    • Digital campaign for BHD
    • “Pink Wave Movement” to encourage BC prevention and early diagnosis: pink wave on the street, at work, in the digital world, in transports, in buildings
    • BC screening programme advocacy
    • Psycho-oncology consultations aimed at women with MBC

    Activities for 2017

    • Continuation of activities: BC screening programme, psychooncology consultations for women with MBC, BHD digital campaign, “Pink Wave Movement”, fund-raising campaign
  • Romania

    National Representative: Mihaela Geoana

    Email: fundatiarenasterea@gmail.com

    Highlights of 2016

    • The 2nd “Happy Run” with 2500 participants, including 150 BC survivors
    • Launch of the Coalition for Women’s Health, a partnership of patients, authorities, etc. to implement screening programmes and access to adequate treatment for breast and cervical cancers
    • Mobile diagnostic unit campaign provided 1191 mammograms and 1681 Pap tests
    • “Brave Cut”, offering natural hair wigs to cancer patients
    • Pink illumination of the Romanian National Museum of Art

    Activities for 2017

    • Roundtable at the European Parliament and the Romanian Parliament to present the study “Female Oncologic Diseases in Romania” and advocate for prevention and early diagnosis
    • of gynaecological and breast cancers
    • Annual activities: 3rd “Happy Run”, mobile diagnostic unit campaign for breast and cervical cancer, pink illumination event
  • Russia

    National Representative: Oksana Moldovanova

    Email: moldovanova@nwhcf.ru

    Highlights of 2016

    • Initiated and provided support for the local BC programme launch in the Belgorod region
    • Provided financial support for implementing mammography screening standardisation workshops for radiologists
    • Held the first public forum in favour of local BC programme in Chuvash Republic
    • Donated breast prostheses and bras to 115 underprivileged patients in 3 regions
    • Published the first national “Breast Cancer Manual” for newly diagnosed women
    • Supported rehabilitation groups in Kursk region
    • Took part in international and national cancer conferences
    • Managed the international internship for medical professionals at Munster University Hospital to promote learning from mammography screening experience in Germany
    • Supported the opening of a BC screening reference centre in Kursk region
    • Took part in ED Advocacy Leader Conference and Advocacy Training
    • Managed public lectures “All about Breast Health for Women Workers” within the BHD and Pink Ribbon campaigns

    Activities for 2017

    • Organising a patient session within the BIG Breast Cancer Conference
    • Organising the training programme for 23 cancer counsellors from 3 regions
    • Providing grants for cancer counsellors to hold therapy groups for BC patients
    • Providing information support for public cancer centres on mammography screening
    • Organising a patient session within the 3rd White Night International Cancer Forum
    • Establishing a Breast Cancer Support Centre #Together in Moscow
    • Annual activities: donating breast prostheses and bras; participating in ED conferences;
    • BHD 2017 and Pink October activities
  • Serbia

    National Representative: Stanislava Otasevic

    Email: europa.donna.serbia@outlook.com

    Highlights of 2016

    • Establishing a Serbia BC Forum and negotiating membership in ED
    • Strategic planning

    Activities for 2017

    • Official registration of the organisation Serbian Forum as ED Serbia
    • Setting up the organisation (creating a website, email, social media sites)
    • Regional meeting with ED National Representatives from Croatia and Slovenia
    • Announcement of the ED existence in Serbia to authorities, professionals, BC NGOs, women’s organisations and the general public
    • Fund-raising campaigns
    • Working towards increasing membership (organisations, individuals, etc.)
    • Establishing cooperation with relevant medical and government institutions
    • Pink October activities (campaigns, public events)
    • Attending ED events

  • Slovakia

    National Representative: Alena Kallayova

    Email: akallayova@gmail.com

    Highlights of 2016

    • Creation of a platform supporting the implementation of organised mammography screening (association of NGOs and professional organisations)
    • BHD organised by this platform (3000 participants)
    • Co-operation with the Ministry of Health in the preparation of mammography screening conditions
    • Lectures for the public on the BC prevention and healthy lifestyle
    • Training women waiting for BC screening
    • Interviews with parliamentarians, ministries and EU parliamentarians on the need for mammography screening

    Activities for 2017

    • Expanding a platform supporting the implementation of organised mammography screening
    • BHD in Bratislava
    • Lectures, awards for mammography departments working according to European standards
    • Public awareness campaigns on cancer prevention and healthy lifestyle (on TV, radio and other media)
    • Cooperation with the Ministry of Health in the implementation of mammography screening
    • Interviews with parliamentarians and EU parliamentarians
  • Slovenia

    National Representative:  Tanja Spanić

    Email: tanja.europadonna@gmail.com

    Highlights of 2016

    • Publication of 4 issues of ED News (129,000 copies each)
    • 39 lectures about BC throughout Slovenia
    • Counselling: by telephone, personally, e-mail, visiting patients at hospital
    • Support group for young BC patients
    • 2-day seminar for ED members with more than 200 attendees
    • “Running and Walking for Hope” in 4 cities
    • Participation in ED Advocacy Leader Conference and in Advocacy Training
    • Participation at ESMO, IEPPO, ESO Masterclass
    • In October, a major campaign in 3 cities with the slogan “Lovely Day” and an “awareness dance”

    Activities for 2017

    • Annual activities: publishing 3 issues of ED News (101,000 copies), patient counselling (personal, via phone and email), lectures, “Running and Walking for Hope” in 4 cities
    • Emphasis on psychosocial support and holistic rehabilitation
    • 2-day seminar for ED members (physical activity and treatments)
    • 2-day intensive seminar for active members on advocacy
    • October activities: press conference, intergenerational connections between elementary schools and women with BC
    • Photo exhibitions around Slovenia for awareness
    • Hosting the ED Pan-European conference in October
  • Spain

    National Representative: Carmen Boronat Jiménez

    Email: cboronat@icab.es

    Website: www.fecma.org

    Highlights of 2016

    • Presenting a study on the information needs and health care expectations of BC patients
    • ED Spain Universidad Menéndez Pelayo summer course for specialists and women with BC covering the challenge of maintaining sustainability of the public health system with a focus on clinical research and innovation
    • On BHD, a press conference to present the Manifesto and an awareness campaign on early detection and for fund-raising
    • Participating in the National Health System Cancer Strategy as a member of the follow-up and evaluation committee
    • Psychological support for women with BC and their families
    • Physiotherapy for lymphoedema

    Activities for 2017

    • In June, attending the ED MBC Advocacy Conference
    • Summer course at Universidad Menéndez Pelayo with a focus on survivorship
    • On BHD, a media campaign about early detection and to present the 2017 Manifesto
    • Advocacy activities and participation in the National Cancer Strategy
    • Support in developing an app to assist women undergoing chemotherapy
  • Sweden

    National Representative: Marit Jenset

    Email: marit.jenset@bro.se 

    Website: www.bro.se

    Highlights of 2016

    • As a result of an ED Sweden report on mammography submitted in 2015, the Parliament decided that mammography screening would be free starting in July 2016
    • Based on an ED Sweden report, the Swedish Breast Cancer Group decided to join a UK trial for evidence to extend the age range for mammography screening in Sweden from 40-79 or 80 years of age (currently 40-74 years)
    • Presentation of pilot programme as a result of seminars and articles about MBC patients being included in the BC registry

    Activities for 2017

    • Presenting a report on introduction of new drugs approved within EU at seminars during the political week in July with the aim of shortening introduction time and achieving equal access
    • Increasing and the number of rehabilitation weeks for MBC patients, and financially supporting weekends for young women
    • Meeting with the government on 2 occasions to discuss equal access and quality care
    • Starting a new advocacy training programme in the autumn, as well as further training
  • Switzerland

    National Representative: Donatella Corbat

    Email: sekretariat@europadonna.ch

    Webmail: www.europadonna.ch

    Highlights of 2016

    • Celebration of 10 years ED Southern Switzerland
    • Participating in the 30th Swiss women’s run in Bern
    • European Ladies on the Road, biker event in Locarno in favour of ED Switzerland
    • BHD media campaign in Southern Switzerland
    • Keynote presentation at the BCY-3 (Breast cancer in young women) in Lugano
    • Publishing translated documents from a MBC campaign on the website
    • During October, Pink illumination in Southern Switzerland
    • Creating a new ED Switzerland flyer
    • “Young Women with Breast Cancer” group activities
    • Active participation in different conferences in Switzerland and abroad

    Activities for 2017

    • Workshops and seminars for patients
    • Launch of an app for children “The magic tree”
    • Literature contest
    • Participation in the “Relay for Life”
    • Regular meetings for patients
    • Attendance at different conferences
  • Tajikistan

    National Representative:  Firuza Abdullaeva

    Email: avesto97@mail.ru

    Highlights of 2016

    • A BC advocacy information campaign
    • Workshops and training on breast awareness in 3 regions, where in June, health centres also provided free breast exams for more than 1000 health workers and women, and to 5200 women in October
    • Participating in EBCC
    • Roundtable on treatment adherence
    • Practical training with exercises for BC prevention at a fitness centre
    • Monitoring and evaluation of activities carried out by primary care physicians (PCPs)
    • Annual early diagnosis fund-raising campaigns for women in one region and a city
    • BHD activities with US Embassy employees with funds going for Breast Cancer Advocacy
    • Participating in a BC march and a BHD marathon in the USA
    • Training on breast clinical exam for 700 PCPs in 3 regions
    • Training for healthy lifestyle specialists on prevention and early detection
    • Activities for BHD, International Children’s Day and Breastfeeding Week
    • Meetings with women leaders on advocacy for women’s health and BC prevention

    Activities for 2017

    • A BC advocacy roundtable with representatives of the National Cancer Centre, USAID and other international organisations and patient groups
    • Study assessing the situation of the provision of mammography equipment
    • A BC prevention marathon
    • “Healthy nutrition and physical activity for BC prevention” in 3 regions
    • Meeting with parliament representatives about access to mammography screening
    • Annual Pink Ribbon gala dinner and BHD activities
    • Women’s health campaign with free breast exam performed in 14 cities
    • A roundtable with National Cancer Centre representatives on developing the cancer registry
    • Meetings with patient groups
  • Turkey

    National Representative: Violet Aroyo

    Email: violetaroyo@hotmail.com

    Highlights of 2016

    • Acting as main stakeholder of the bi-annual Istanbul International Breast Cancer Conference (IIBCC) in charge of the patient advocacy programme and co-chairing the scientific programme
    • Working on BC nurse training and speciality in collaboration with Marmara University BC nurses and coordinators
    • Monthly training seminars on BC and femininity, BC and yoga, and women’s health topics
    • Working with refugees to create BC awareness and for immigrant women to have an initial screening free of charge by a group of health care professionals at a breast unit
    • Participating in ED Advocacy Training
    • Participating in the annual International Women of Istanbul Christmas Bazaar with the traditional calendar, handicrafts and gift items provided by ED members

    Activities for 2017

    • Preparing for the next IIBCC in October 2018
    • Continuing working on capacity building and fund-raising activities
    • Working on extending and expanding ED Turkey coverage nationally and internationally by developing joint projects on the BC nursing speciality
    • Working on European Patients Academy on Therapeutic Innovation (EUPATI) implementation in Turkey starting with a pilot project to be extended until 2018
  • UK

    National Representative: Margaret Spittle

    Email: edukforum@gmail.com

    Highlights of 2016

    • Advised TV soap “EastEnders” on a MBC storyline
    • Presentation to Soroptimists in London
    • Lecture to pharma representatives about SBUs and breast nurses
    • Distribution of ED materials at Pink Ribbon Magazine Breast Cancer Forum
    • Stand at an educational meeting at Royal Marsden Hospital on new and controversial breast care management, led by eminent professors
    • Exhibition stand at a hospital with breast health care leaflets promoting healthy living, visited by Prince Charles
    • Breast Awareness Afternoon with Imperial College Healthcare, with information for women with learning disabilities, a talk on breast awareness and screening and interviews for TV news
    • Attendance at Parliamentary Group on Breast Cancer reception, reporting on an inquiry into geographical inequalities, hosted by the shadow minister for public health and NHS national cancer director
    • Britain Against Cancer Conference “Urgent Issues in Cancer Care”

    Activities for 2017

    • ED UK Annual Symposium “Breast Cancer: Living With and Beyond” on risk assessment and survivorship
    • Talk to advocacy charity “Against Breast Cancer”, researching secondary BC challenges
    • 10th Royal Marsden Meeting with a stand at a seminar on hot topics in BC
    • BHD displays, awareness talks and presentations
    • BC session with Imperial College Women’s Network
  • Ukraine

    National Representative: Galina Maistruk

    Email: maistruk@rhr.org.ua

    Highlights of 2016

    • Held the 5th School of Mammography 4-day training course with 48 Ukrainian breast radiologists in attendance
    • Initiated and developed by ED Ukraine specialists, the concept of the new state programme “Reproductive Health of the Nation” for the period of 2017-2021, including a section on BC prevention, was approved by the Ministry of Health and the Health Committee of Ukrainian Parliament
    • Participation as keynote speaker in “Pink Breakfast” special event for Pink October
    • Organised rehabilitation programmes for BC survivors at a health resort
    • Initiated and supported 9 sessions of a “Health School” educational programme as monthly meetings for BC survivors and various health care practitioners
    • Regular support of BC hotline

    Activities for 2017

    • A joint press conference to announce the launch of a small grant programme to support 5 municipal oncological centres for implementation of early BC diagnosis and screening programmes
    • BHD at the parliament featuring an information fair with banners, and distribution of BC information and pink ribbons to MPs
    • Annual activities: comprehensive rehabilitation programme for BC survivors; production and distribution of information materials for women; 9 sessions of “Health School” designed for BC survivors
  • Uzbekistan

    National Representative: Shakhnoza Umarova

    Email: eduzbekistan@mail.ru

    Highlights of 2016

    • In January, a New Year celebration with BC survivors at the Tashkent City Oncology Clinic
    • In March, an International Women’s Day tea party with oncologists and survivors
    • In September, the ED Advocacy Leader Conference in Milan
    • The Pink October charity gala

    Activities for 2017

    • In April, seminars for graduate oncology students on raising BC awareness at Tashkent Medical Academy
    • Attending the ED Pan-European conference in Ljubljana
    • “Pink October” celebration with BC survivors at the Tashkent City Oncology Clinic