Member Countries

  • Albania

    National Representative: Donjeta Zeqa

    Email: donjetazeqa@gmail.com

    Highlights of 2019

    • For Breast Health Day (BHD), “Ride for Life”, a bicycle ride to raise awareness about breast cancer (BC)
    • A meeting with patients, oncologists and psychologists to support women with BC
    • A meeting with girls and their mothers to spread the message “Education begins with young girls”
    • An awareness-raising campaign about BC for the employees of a multinational business services company
    • An annual event, “Donate Hair, Give Hope”
    • Publication of the newsletter

    Activities for 2020

    • A series of podcasts focusing on BC topics
    • Providing information and raising awareness through social media (Facebook live and Instagram Live) with medical staff, psychologists, patients, nutritionists and members
    • A solidarity run, “Race for the Cure Albania”
    • BHD
    • Caffe Donna
    • “Let’s Discuss”, a meeting with patients and members
    • The annual event, “Donate Hair, Give Hope”

     

  • Armenia

    National Representative: Nvard Kocharyan

    Email: nvardkocharyan@gmail.com

    Highlights of 2019

    • In spring and autumn, 8 regional screening visits, 5 screening projects in the capital
    • In June, a conference for doctors and later a patient forum, both entitled “Towards health – We Are Against Cancer”
    • In July, an open-door awareness-raising project, “Ribbon Party”
    • Launching a first patient book, “Tips for Preparing for Mammography and Screening”
    • Participating in TV programmes, media meetings, fundraising activities

     

    Activities for 2020

    • In March, holding a fundraising concert, “You Are Not Alone”, to raise awareness
    • Planting trees and opening a garden for cancer patients (postponed because of COVID-19)
    • In September, an international conference and a scientific conference, both entitled “Healthcare and Innovation”, and a patient forum “Towards Health”
    • Holding outdoor and screening activities

     

  • Austria

    National Representative: Mona Elzayat

    Email: info@europadonna.at
    Website: www.europadonna.at

    Highlights of 2019

    • Holding the 6th Austrian Breast Cancer Congress
    • Hosting the 14th ED Pan-European Conference in Vienna
    • “Du bist nicht allein” (You Are Not Alone) campaign
    • An awareness campaign with flashmobs
    • Café Donna, a monthly event
    • Information packages and pillows for BC patients
    • A brochure on metastatic BC (MBC)
    • Social media work and advocacy

     

    Activities for 2020

    • From August on, Café Donna will be a virtual monthly event
    • The 7th Austrian Breast Cancer Congress has been postponed to April 2021 due to COVID-19
    • Virtual meetings and strategic planning
    • A new website
    • Presence on social media, including advocacy
    • ED Austria Advocacy Training, postponed to November 2021
    • A mother and child workshop has been postponed

     

  • Belarus

    National Representative: Palina Soldak

    Email: polinsoldak@mail.ru
    Website: www.europadonna.by

    Highlights of 2017

    • Working with women’s groups in different regions
    • Preparing women for the Eurasia Breast Cancer Advocacy Conference in Kiev in October
    • Distributing MBC treatment materials for women’s advocacy groups
    • Working with school teachers and teenagers to educate them about BC

    Activities for 2018

    • Participation in the Eurasian Screening Conference in May 2018
    • Working with BC screening pilot programmes and promoting ED BC screening standards
    • Working with women’s advocacy groups in Minsk, Grodno and Gomel regions
    • Updating the ED Belarus website

     

  • Belgium

    National Representative: Annette Hirsch

    Email: info@europadonna.be
    Website: www.europadonna.be

    Highlights of 2019

    • Participating in the Pink Walk
    • An activity, “Relais pour la Vie” (Relay for Life)
    • A congress “Pink Monday” about resuming work after BC
    • A social media campaign for BHD
    • Attending the EU Parliament event for “Transforming Breast Cancer Together: The Next 5 Years to Reimagine the Future of Breast Cancer Care in the EU”
    • Participating in the ED Pan-European Conference
    • Speaking at the European Organisation for Research and Treatment of Cancer (EORTC) conference, “What do I need to know? Quality of Life During and After BC”
    • Present at a book-launch, “Breast Cancer: Global Quality Care”
    • Publishing an article online, “Breast Cancer Screening: For Whom And How? What’s New?”
    • Mailing the 2019 newsletter and updating social media

     

    Activities for 2020

    • In February, participating in a conference “Talk & Walk Pink 2020”
    • In February, sponsoring the theatre play “What the luck?” about hereditary BC
    • Pending due to COVID-19: Pink October and 20th Anniversary of ED Belgium

     

  • Bulgaria

    National Representative: Evgenia Aleksandrova

    Email: adarska@gmail.com

    Highlights of 2019

    • In October, a public forum for journalists, “How do we talk about cancer?” for oncology experts, psychologists, social workers and patients. The forum overturned some outdated and harmful notions and attitudes concerning cancer.

    Activities for 2020

    • An online study involving 1,800 patients sharing worries, fears and complications relating to COVID-19. Scientific organisations’ recommendations – World Health Organisation (WHO), American Society of Clinical Oncology (ASCO), European Society for Medical Oncology (ESMO) were shared with patients. The results of the study were shared with the medical community to stimulate the dialogue between doctors and patients.
    • Developing a system of recommendations for cancer patients, in cooperation with the Bulgarian Oncological Scientific Society, through YouTube video appeals by key multidisciplinary specialists and the social media profiles of famous artists, musicians, journalists who support the scientific approach in understanding COVID-19.

     

  • Croatia

    National Representative: Vesna Ramljak

    Email: vesnaramljak@yahoo.com

    Website: www.europadonna.hr

    Highlights of 2019

    • In January, a roundtable on the side effects of chemotherapy
    • In February, conference on World Cancer Day
    • In February, provision of free psychological help for women with BC in the ED Croatia office
    • In March, Daffodil Day
    • In April, participating in Patient Association Academy organised by a pharmaceutical company
    • In September, ED Zagreb Pink Run
    • In October, humanitarian bowling, the 20th Pink Ribbon Day, BHD and a conference for pregnant and breastfeeding women, and a conference and public health campaign “Pinkypromiss” (Pink Promise)

     

    Activities for 2020

    • In January, starting a genetic counselling programme for women at risk of BC
    • In February, holding a conference for pregnant and breastfeeding women (the plan is to have 3 conferences in 3 cities in Croatia)
    • In October, Pink Ribbon Day

     

  • Cyprus

    National Representative: Stella Mastora

    Email: info@europadonna.com.cy

    Website: www.europadonna.com.cy

    Highlights of 2019

    • Annual activities: conference participation, fundraising fashion show, “Bosom Friends” programme, psychological support, lectures, solidarity runs, co-organisation of a Cancer Day event, monitoring operation of the Nicosia General Hospital specialist breast unit (SBU), press conference announcing October activities, the Pink Silhouette walk, pink illumination of various landmarks, BHD activities
    • Participation in steering committee of national screening programme
    • Board membership in the Cyprus Patients’ Organisation representing Cyprus at the European Patient Forum (EPF)
    • Post-surgery physiotherapy for patients
    • A meeting with the National Organisation of Gynaecologists
    • A lecture on osteoporosis
    • Presenting a study on Cypriot women living with MBC at a conference funded by the Union for International Cancer Control (UICC)

     

    Activities for 2020

    • Annual activities: co-organisation of a Cancer Day event, a fundraising fashion show, lectures
    • On-line services during lockdown: “Bosom Friends” programme, psychological support for patients and families, post-surgery physiotherapy (self-care tips) for patients
    • Board members of Cyprus Patient’s Organisation representing Cyprus at the EPF
    • BC awareness activities based on COVID-19 regulations

     

  • Czech Republic

    National Representative: Marta Kostrovà

    Email: aliance@breastcancer.cz

    Highlights of 2019

    • Organising a break for young patients and their children to relax in the mountains
    • Exhibition of the Breast Wall at ESMO conference in Barcelona
    • A project, the Breast Wall in Visegrád 4 countries (Hungary, Poland, Czech Republic and Slovakia)
    • The Reach to Recovery International Conference in Prague (about 250 people)
    • Organising a one-week stay for MBC patients and their friends to relax in a spa resort
    • For BHD, “We are Swimming the Breaststroke”
    • The Alliance Annual Conference in Prague

     

    Activities for 2020

    • A week’s relaxing break for MBC patients and their friends
    • Advocacy during COVID-19 situation
    • For BHD, fighting against BC through artivism (artistic representation of MBC)
    • Attending the European Breast Cancer Conference (EBCC) in Barcelona
    • Prevention – planting Sakura trees

     

  • Denmark

    National Representative: Anja Skjoldborg Hansen

    Email: ansk@brystkraeft.dk

    Highlights of 2019

    • Establishing a new vision, “A world where mortality due to breast cancer is non-existent”
    • Signing an extended collaboration agreement with a law firm to ensure that ED Denmark’s members may obtain advice and guidance regarding legislation on insurance and compensation
    • Expanding the member portfolio to include healthy people with gene mutations
    • Reviewing Danish screening guidelines for BC
    • Contributing to a change in legislation regarding compensation rights for cancer patients. Injuries due to a delayed call to cancer screening, caused by resource shortages, are now considered eligible for compensation

     

    Activities for 2020

    • Updating news on ED Denmark’s website
    • A membership campaign targeting people with gene mutations
    • Helping to develop health care tools for joint decision-making

     

     

  • Estonia

    National Representative: Maie Egipt

    Email: maie.egipt@cancer.ee 

    Highlights of 2019

    • In May, a BC social media campaign, “Pink Rules”
    • Special MBC events and an airing of new video on MBC
    • In August, an annual retreat for cancer patients
    • Nationwide cancer patient group meetings
    • In October, a national pink ribbon campaign
    • Commitment to a new Cancer Control Plan event

     

    Activities for 2020

    • Holding development meetings regarding a National Cancer Control Plan
    • In May, a campaign to raise awareness about breast health and cancer prevention
    • A fundraising campaign to buy a 3D mammography machine for the mammography bus
    • In August, a retreat for cancer patients
    • In October, BHD events

     

     

  • Finland

    National Representative: Anu Niemi

    Email: anu.niemi@europadonna.fi 

    Website: www.europadonna.fi

    Highlights of 2019

    • Advocating for equal and sufficient treatment for lymphoedema
    • Participating in the Finnish Oncology Nursing Society educational days
    • Holding discussion groups for BC and MBC patients
    • Art therapy and exercise courses to support rehabilitation after BC
    • A seminar on BHD, “Together for Breast Health”

     

    Activities for 2020

    • A seminar and wellbeing events for BC patients to celebrate ED Finland’s 15-year anniversary
    • Holding new virtual peer support/discussion groups and lectures on various topics, including sexuality, lymphoedema, hope and relationships
    • Getting involved in cancer research programmes as a patient organisation
    • Organising holiday weeks with peer support activities for families with BC or MBC

     

     

  • France

    National Representative: Dominique Debiais

    Email: europadonnafrance@gmail.com

    Website: www.europadonna.fr

    Highlights of 2019

    • A Quality of Life Award for 2 major projects by regional organisations helping patients
    • Setting up 5 regional days for MBC patients
    • Implementing follow-up of the MBC plan with a coalition of other patient organisations
    • Updating the brochure on hereditary BC and genetic risk, and the MBC brochure
    • In October, launching an exhibition on BC from screening to support care
    • In November, annual conference on cancer follow-up

     

    Activities for 2020

    • Due to COVID-19, remodelling activities to a virtual format: launching of a survey on the implications of confinement for the BC patient, launching of Café Donna by Skype, calling patients directly, launching an ED France mobile application
    • Updating the brochure on hormonal treatment
    • Annual conference on BC and patient experts in clinical trials and real-life studies

     

     

  • Georgia

    National Representative: Nino Kartvelishvili

    Email: nin_ka@hotmail.com

    Highlights of 2019

    • Participation in the ED Advocacy Training Course, the ED Pan-European Conference, and the ED MBC conference
    • A roundtable with members of parliament, governmental bodies, doctors, NGOs, mass media and BC patients
    • For BHD, “The Pink Walk”
    • A webinar, “COVID and Oncopatients”, as part of a mutual project with UICC and Tbilisi City Hall
    • A social media activity, the “Pink Ribbon Challenge”
    • Attending the International Experience Exchange with Patient Organisations (IEEPO) conference in Rome
    • Lectures by ED Georgia, the Caucasus Cancer Society H.O.P.E. and the Georgian Young Oncologists
    • Opening of the “Pink Space”, a psychosocial rehabilitation centre for cancer patients

     

    Activities for 2020

    • In October, attending the EBCC conference
    • Participation in the ED Advocacy Training Course
    • Participation in the Breast Cancer in Young Women (BCY 4) conference in Lugano, Switzerland
    • Participation in the San Antonio Breast Cancer Symposium (SABCS)

     

     

  • Germany

    National Representative: TBC

  • Greece

    National Representative: Elena Kountoura

    Email: europadonnahellas@gmail.com 

    Highlights of 2019

    • Participating in the 16th Pan-Hellenic Volunteer Day Conference
    • A letter to the President of the Greek Parliament proposing the establishment of a subcommittee on BC issues under the Committee of the Parliament on Social Affairs
    • Participating in a solidarity run “Race for the Cure”
    • Donating digital mammograms for 15 ED Greece members
    • A meeting with the Minister of Health to provide information about ED Greece and submit proposals for supporting women’s rights using European guidelines
    • Recommending the ED Greece new scientific committee
    • Participating in the Authentic Athens Marathon
    • Lectures delivered at the event on “Gender in Health”, at the European Parliament in Brussels

     

    Activities for 2020

    • A meeting between the ED Greece and the Deputy Mayor of Health for Athens to plan future BC awareness-raising activities
    • Voting at the Board meeting to establish an ED Greece blood bank

     

  • Hungary

    National Representative: Gabriella Robinson

    Email: Gtrukarobinson@gmail.com

    Highlights of 2018

    • 1st National Art Meeting of Cancer Patients’ Clubs in Tihany
    • The kick-off of the Visegrád 4 project: opening ceremony and conference in Budapest
    • “Closely Watched Breasts” in the Visegrád 4, a breast wall exhibition at the Vígszínház (Comedy Theatre) in Budapest
    • ED Day in Martfű
    • Awareness-raising activities on early diagnosis and prevention of BC, including meetings, presentations, discussions and walks
    • Creating and distributing thousands of copies of a publication describing the organisation and its objectives, via the nation-wide network of 50 clubs and associations, as well as through oncology centres and colleagues

    Activities for 2019

    • Workshops and seminars for patients
    • Public talks about BC prevention
    • Pink October activities
    • Events to promote physical activity
    • Participation in the ED Pan-European conference

     

  • Iceland

    National Representative: Hrefna Ingólfsdottir

    Email: hrefna2908@hotmail.com

    Highlights of 2019

    • Organising the 10th “Casting for Recovery”, a fishing trip for BC patients and advocates to share experiences, in collaboration with the Icelandic Cancer Association counselling service
    • In spring and autumn, holding a course “My Way” for women who have been diagnosed with breast cancer and have completed treatment
    • In October, holding a well-attended Pink Symposium entitled “You Are Not Alone” in collaboration with partners. A Resolution was submitted to the Ministry of Health and other authorities to call for shorter waiting times for women being diagnosed with BC
    • Participating in the ED Pan-European Conference in Vienna

     

    Activities for 2020

    • Planning for the Nordic Breast Cancer Conference to be held in Iceland and postponed until 2021
    • Planning two “Casting for Recovery” outings for 2021

     

     

  • Ireland

    National Representative: Deirdre O’Connell

    Email: info@europadonnaireland.ie
    Website: www.europadonnaireland.ie

    Highlights of 2019

    • Launching a new website
    • An MBC information event, “How You Can Get to Know Your Cancer”
    • A seminar for ED Ireland’s 21st anniversary seminar, “21 Years of Progress in Breast Cancer Research”
    • Ongoing development of the MBC Connect private website
    • Attendance and a stand at various cancer workshops and seminars – Living Well with Cancer, Patient Voice in Cancer Research, etc.
    • Implementation of National Cancer Strategy 2017-2026 – Cancer Patient Advisory Committee, Survivorship Working Group and Psycho-oncology Working Group
    • Appointment to the National Screening Advisory Committee

     

    Activities for 2020

    • In October, an MBC Information event
    • Continued involvement in relevant cancer/BC events
    • Continued participation in National Cancer Control Programme committees and working groups
    • Lobbying for implementation of National Cancer Strategy
    • Other developments dependent on COVID-19

     

     

  • Israel

    National Representative: Miri Ziv

    Email: miriziv@cancer.org.il
    Website: click here

    Highlights of 2019

    • For BC awareness month: a press release and campaigns in the media and social media; BC events and partnerships: a “Celebrating Life” seminar; Pink Yacht Flotilla; Bra Tree Display; a hot-air balloon “Get Checked” campaign; Tel Aviv Municipality building illuminated in pink; a Fighting BC postage stamp; a campaign via the Mobile Mammography Unit
    • Media promotion of “Yad Lehachlama” (Reach to Recovery) with trained volunteer BC survivors supporting newly diagnosed patients
    • Year-round seminars, training sessions, conferences and support groups for BC patients and survivors
    • A Facebook live event
    • Public information booklets and advertisements

     

    Activities for 2020
    • COVID-19 information and support for cancer patients: patients’ questions answered by oncologists, tele-support group, dedicated webpages
    • A press release on BC in Israel
    • Public service announcements, social media campaigns and fundraising events
    • Seminars and support groups
  • Italy

    National Representative: Rosanna D’Antona

    Email: segreteria@europadonna.it

    Website: www.europadonna.it

    Highlights of 2019

    • A national survey and gathering of signatures to obtain psychological support for women with MBC in SBUs
    • An empowerment programme for advocates: 8 sessions, 2 cities, 200 participants
    • A regional information campaign on SBUs
    • MBC National Day: 60 events in 50 cities, advocacy, a national conference
    • A national survey and social campaign regarding the 10 main patients’ requests to improve the quality of SBUs

     

    Activities for 2020

    • A social report to quantify the value of associations’ activities, complementary to national welfare system
    • Enhancing the caregiver’s role through a virtual photographic exhibition and collection of testimonials and requests
    • A survey on the state of the art of SBUs in several regions together with associations, clinicians and institutions
    • Requesting an MBC National Day: social campaign, regional initiatives and a national event
  • Kazakhstan

    National Representative: Nagima Plokhikh

    Email: zdorovayaaz@gmail.com

    Website: www.fza.kz

    Highlights for 2016

    • A press lunch on opioid availability to cancer patients
    • A charity event “I Can, You Can” with participation of MPs, the Ministry of Health, journalists and NGOs
    • Awareness-raising activities on early diagnosis and prevention of BC, including meetings, presentations and discussions
    • A 3-month social theatre advocacy project “You Are Not Alone”
    • Visits from European Society of Oncology (ESO) and other experts to ED Kyrgyzstan’s Patient School

    Activities for 2017

    • Advocacy and technical assistance for the development of BC guidelines
    • Facilitating good collaboration between ESO, the Ministry of Health and the National Oncology Centre for training of lab specialists, oncologists, radiographers and others
    • Advocacy for availability and affordability of chemotherapy and hormone therapy
    • Continuing BC awareness raising activities using different tools and approaches
    • Celebrating BHD and Pink October activities
    • Continuing work on palliative care development
  • Kyrgyzstan

    National Representative: Taalaigul Sabyrbekova

    Email: sabyrbekova2011@gmail.com

    Highlights of 2019

    • Organising the visit of an ED Luxembourg representative, including meetings with BC patients’ groups in Bishkek
    • Working with health promotion centres for early detection of BC and cervical cancer
    • Conducting BC and cervical cancer awareness-raising events in Talas Oblast
    • In October, holding a charity concert for patients at the National Oncology Centre Hall
    • Developing videos on BC and cervical cancer for awareness-raising among the population

    Activities in 2020

    • In February, organising the Congress of Breast Cancer Patients
    • Organising on-line advisory committees with specialists from the European School of Oncology, the Kyrgyz National Centre and the Osh Interregional Oncology Centre
    • Developing new videos on BC issues for awareness-raising among the population
    • Pink October events
  • Latvia

    National Representative: Gunita Berke

    Email: europadonna@dzivibaskoks.lv

    Webmail: www.dzivibaskoks.lv

    Highlights of 2019

    • Organising and holding psychosocial rehabilitation programmes for women after BC
    • Opening a day centre for psychosocial support of newly diagnosed BC patients in the largest oncology hospital in Latvia
    • Developing voluntary mentors’ movement for women after BC, with training and supervision for mentors
    • Organising various activities for BC awareness month and ED Latvia’s “Open Day” on 15th October
    • Publishing booklets on psychosocial support for patients, their relatives, colleagues and children

     

    Activities for 2020

    • Adapting to the COVID-19 situation and looking for ways to continue to support BC patients and their relatives
    • Planning and running special psychosocial rehabilitation programmes for women after BC
    • Developing the voluntary mentors’ movement for women after BC
    • Developing regional activities and self-support groups
    • Organising activities for BC awareness month in October
  • Lithuania

    National Representative: Juventa Sartataviciene

    Email: juventa.sartataviciene@nvi.lt

    Highlights of 2019

    • In March, participation in the traditional Health Fair with lectures
    • In May, the ED General Assembly with participation by the Parliamentary Speaker Irena Degutienė
    • Attending the ED MBC conference and the ED Pan-European conference
    • For BHD, an interview with the public, “Don’t Be Afraid, Check In Tomorrow”, with doctors from the National Cancer Institute
    • A national project, “Crowd Ideas”, to find out what is missing for BC patients in Lithuania, with the Parliamentary Speaker Irena Degutienė as Ambassador
    • A solidarity run “The Magdalena Night Run”
    • “And Life Goes On” project, to spread information about BC

    Activities for 2020

    • In October, a virtual General Assembly
    • BHD on 15th October
    • Continuation of the project “And Life Goes On” when the situation regarding COVID-19 allows
  • Luxembourg

    National Representative: Mariette Fischbach

    Email: mariettefischbach@yahoo.de

    Highlights of 2019

    • Teaching lessons and testimonies at nursing schools
    • Co-sponsoring of #WIN event of Luxembourg artist Jacques Schneider
    • “Broschtkriibslaf” (Race Against Breast Cancer) solidarity run
    • Discovery Day at the National Service for Post-Oncology Rehabilitation
    • Collection and distribution of external breast protheses in collaboration with ED Kyrgyzstan
    • A public conference, “Better Results Through Holistic Treatment”
    • Events to raise awareness about BC in schools and in the workplace

     

    Activities for 2020

    • A weekend of brainstorming by ED Luxembourg committee members
    • Designing a new website
    • Flyers and publications about radiotherapy and BC, as well as about physiotherapy and BC
    • In autumn, various small-scale events to raise awareness in place of the annual BC run which was cancelled due to COVID-19
  • North Macedonia

    National Representative: Biba Dodeva

    Email: info@borka.org.mk

    Highlights of 2019

    • In October, the Go Pink Walk (Race for the Cure)
    • 12th National Breast Cancer Conference
    • 1st Balkan meeting for BC patient organisations
    • Psychosocial support groups
    • A help-line for patients and their families
    • Attending the ED Advocacy Training Course
    • Breast awareness training in high schools

    Activities for 2020

    • Annual activities: the Go Pink Walk, the 13th National Breast Cancer Conference, 2nd Balkan meeting for BC patient organisations, the help-line for patients and their families
    • BC events in 14 cities
    • Activities to support cancer patients during the COVID-19 pandemic situation, with distribution of therapies across the country
    • Online groups for psychosocial assistance and support for cancer patients
    • Several meetings with the Minister of Health to solve the problems that cancer patients experience due to COVID-19
  • Malta

    National Representative: Rowena Enriquez

    Email: ricofun10@onvol.net

    Webmail: www.europadonnamalta.org.mt

    Highlights of 2019

    • In June, a fashion show with BC survivors and children of BC survivors as models
    • Awareness-raising talks in schools and businesses
    • Hilda Schembri Memorial Lecture with special guest Mona Elzayat
    • Celebration of 30-year anniversary of BC support group in Malta, including a gala dinner
    • A translation of information leaflets from English to Maltese for a surgeon
    • Participating in the ED Advocacy Training Course and attending the ED Pan-European Conference
    • Attending the 5th Advanced Breast Cancer conference (ABC5) in Lisbon

    Activities for 2020

    • Organising of online meeting to maintain contact with members during COVID-19 pandemic
    • Referring patients for counselling when necessary
    • Celebration of World Cancer Day with the national cancer platform NGO that includes other cancer NGOs
  • Moldova

    National Representative: Larisa Sofroni

    Email: sofroni@yandex.ru

  • Monaco

    National Representative: Valérie Barilaro

    Email: valeriebarilaro@gmail.com 

    Webmail: www.ecoutecancerreconfort.org

    Highlights of 2017

    • In October, a conference provided by a gynaecologist specialising in gynaecological problems associated with cancer
    • In November, celebrating 25 years of the organisation with a gala dinner in the presence of Prince Albert and Princess Stephanie
    • In December, inviting patients to a Christmas dinner

    Activities in 2018

    • In January, being invited to the traditional galette des rois (three king’s cake) at a gathering with the Minister of Health
    • In February, speaking at the biannual oncology congress held in Monaco
    • In April, the general assembly
    • In June, participation of patients in a weekend seminar on self-esteem, an outing for patients on a sailboat, a luncheon for patients and members
  • The Netherlands

    National Representative:  Dominique Sprengers

    Email: Sprengers@borstkanker.nl

    Highlights of 2019

    • Helping patients to choose the best treatment for them
    • Improving care and raising awareness for women with MBC
    • Organising a session for nurses about improving supportive care and aftercare
    • Drawing attention to best practice in BC care in hospitals
    • Advocacy for better organisation of BC care (eg, expert care)

    Activities for 2020

    • Improving and distributing information about BC care from the patient’s perspective
    • Encouraging precision medicine
    • Helping patients to choose the best treatment for them and implementing shared decision making
    • Improving care and information for women with MBC
    • More awareness and better care for people with hereditary BC
  • Norway

    National Representative: Tove Aae

    Email: post@brystkreftforeningen.no

    Highlights of 2019

    • A Pink Ribbon campaign raising €3.2 million
    • Providing training for BC advocates and peers
    • Organising a network meetings for people with the BRCA mutation, for women with MBC, and for young BC patients
    • Participating in the ED MBC Advocacy Conference and the Pan-European Conference in Vienna
    • Participating in “Reach to Recovery” in Prague
    • Collaborating in a meeting with ED Czech Republic

    Activities for 2020

    • Information and advocacy via webinars
    • A Pink Ribbon Campaign
    • Peer-to-peer work
    • Producing an informative film about MBC
    • Launching two educational films – #sjekk333 and Breast Cancer Sexuality

     

  • Poland

    National Representative: Dorota Czudowska

    Email: polskieforum@europadonna.org.pl

    Webmail: www.europadonna.org.pl

    Highlights of 2019

    • In March, the XXII ED Poland Congress of Delegates. President and Board elections.
    • In May, participating in the inauguration of the national oncological strategy, including SBUs
    • In October for the BHD campaign: press conferences, “Health Marches”, financing of mammography testing for women under 50 and over 70, a Zumba marathon
    • Participating in the 14th ED Pan-European conference
    • In November, celebrating ED Poland’s 25th anniversary: a scientific conference, a poster exhibition, a concert workshop (screening, genetic research, psycho-oncology)
    • Attending the ED Advocacy Training Course in Milan

    Activities for 2020

    • From January to March, fundraising for ED activities
    • In September, XXIII ED Poland Congress of Delegates
    • Participating in EBCC
    • BHD campaign
    • In November, participating in the ED Advocacy Training Course
  • Portugal

    National Representative: Isilda Pegado

    Email: europadonna@ligacontracancro.pt

    Highlights of 2019

    • Annual activities: BC screening programme, two research grants for BC, representation on the National Health Council, legal support, fundraising campaigns to support fight against BC, women’s race against BC
    • Expert medical support for oncological patients on medical boards
    • Participating in the International Centre for Parliamentary Studies (iCPS) Breast Cancer Europe Roundtable 2019
    • Participating in the BC patient forum of a major pharmaceutical company
    • A BC awareness-raising campaign, “Innovation for Life”
    • Pink October activities
    • Campaign with a cosmetics company to raise awareness for BC and funds for another direct digital mammography unit

    Activities for 2020

    • Annual activities: BC screening programme, two research grants for BC, representation on the National Health Council, legal support, fundraising campaigns to support fight against BC
    • Petition for the rights of cancer patients
    • Launching the 4th edition of the Cancer Patients’ Rights Guide
  • Romania

    National Representative: Mihaela Geoana

    Email: fundatiarenasterea@gmail.com

    Highlights of 2019

    • Annual activities: 5th “Happy Run” with over 4100 participants, wig donation “Brave Cut” Campaign, pink illumination event, “Adolescence in Pink”, a breast health awareness campaign in schools
    • Supporting activities by ASPO (Association of Oncological Patient Support) promoting early detection and improving the quality of life of patients with BC and other oncological or chronic diseases
    • Roundtables at the Romanian Parliament presenting the results of the study from a project to close the survival-rate gap between European countries
    • Participating in the ED Pan-European Conference

    Activities in 2020

    • Annual activities: 6th “Happy Run”, “Brave Cut” Campaign, pink illumination event, “Adolescence in Pink”, a breast health awareness campaign in schools
    • A mobile diagnostic campaign for breast and cervical cancer
    • A COVID-19 prevention kit for oncological patients undergoing hospital treatment during the pandemic
    • Supporting activities by ASPO (psychological support groups and art therapy)
    • Advocacy activities and events stressing the necessity of a national BC screening programme
  • Russia

    National Representative: Oksana Moldovanova

    Email: moldovanova@nwhcf.ru

    Highlights of 2019

    • Providing support for BC patients, families and friends through the first charity Breast Support Centre “Together”
    • Participating in the ED MBC Advocacy Conference, ED Pan-European Conference and the ED Advocacy Training Course
    • Donating medical equipment for BC screening to a medical centre
    • Conducting training for clinical oncologists and radiologists involved in BC treatment
    • For BHD: public talks “All About Breast Health” for working women; an Open Day “My First Mammograms” in mammography units

    Activities for 2020

    • Providing regular support for women with BC, families and friends in Russia and Russian speakers abroad
    • Conducting a session for cancer NGOs within the White Night International Cancer Forum
    • Participating in EBCC12 and attending the ED Advocacy Training Course
    • Developing an educational programme for oncologists and training for radiologists
    • For BHD: public talks “All About Breast Health” for working women; an Open Day “My First Mammograms” in mammography units
  • Serbia

    National Representative: Mirjana Brankovic-Magic

    Email: europa.donna.serbia@outlook.com

    Highlights of 2019

    • Founding a Patients’ Academy, with BC survivors as students, teachers from the Oncology Institute and certification at the end of the course. The aim is to enable BC survivors to educate women on BC all over the country.
    • In February, participation by ED Serbia representatives in media training for patients’ associations
    • Planning finances and content for 2020
    • Annual meeting of ED Serbia
    • Four lectures on BC prevention

    Activities for 2020

    • Contacts with Ministry of Health to support activities for education of BC survivors at the Patients’ Academy
    • Foundation of psychosocial mobile units in medical institutions
    • Accreditation and provision of five training sessions
    • Advocacy for new drugs and devices on the so-called “positive list”

  • Slovakia

    National Representative: Alena Kallayova

    Email: akallayova@gmail.com

    Highlights of 2019

    • October to December, an exhibition of art by BC survivors, in Bratislava
    • In October for BHD, a press conference of the Ministry of Health and a celebration of the initiation of BC screening in Slovakia
    • In June, “Race for Healthy Breasts”, a solidarity run and educational activity on BC prevention

    Activities for 2020

    • In June, “Race for Healthy Breasts”, a solidarity run and educational activity on BC prevention. This year online.
    • From May to October, online support for BHD through sport
    • From May to October, online presentation of healthy eating
    • In October, evaluation of the best mammography screening unit and evaluation of the participants of BHD activities
    • Support for mammography screening and women’s education, with printing and distribution of educational materials
  • Slovenia

    National Representative:  Tanja Spanić

    Email: tanja.europadonna@gmail.com

    Highlights of 2019

    • Annual activities: publication of 4 issues of ED News (85,000 copies per issue), patient counselling, “Running and Walking for Hope” in 9 locations, 2-day seminar for ED Slovenia members
    • Psychosocial support for patients and relatives, including children
    • Special patient groups (young, metastatic, gynaecological cancers)
    • Lectures throughout Slovenia
    • October activities: a press conference, visiting Parliament, sports events, 25 local awareness-raising campaigns

    Activities for 2020

    • Annual activities: publication of 4 issues of ED News (85,000 copies per issue), patient counselling, 2-day seminar for ED Slovenia members
    • A Patient’s Diary, for newly diagnosed patients
    • Psychosocial support for patients and relatives, including children
    • Special patient groups (young, metastatic, gynaecological caners)
    • Lectures throughout Slovenia
    • October activities: a press conference, visiting Parliament, collaboration with professional athletes, local awareness-raising campaigns
  • Spain

    National Representative: Carmen Boronat Jiménez

    Email: cboronat@icab.es

    Website: www.fecma.org

    Highlights of 2019

    • ED Spain summer course for specialists and women with BC, covering the challenge of maintaining the public health system’s sustainability, focusing on clinical research and innovation
    • A BHD press conference to present the 2019 Manifesto, awareness campaigns on early detection and fundraising
    • Active involvement in the National Health System Cancer Strategy as a member of the follow-up and evaluation committee
    • Coordination and support for local organisations’ activities
    • Support for women with BC and their families
    • Physiotherapy for lymphoedema

    Activities for 2020

    • Summer course on patient advocacy, the sustainability of the public health system and attention to survivorship
    • A BHD awareness campaign on early detection and the presentation of the 2020 Manifesto
    • Advocacy activities and participation in the National Cancer Strategy
    • Support for women with BC and their families.
    • Physiotherapy for lymphoedema
    • Fundraising for clinical trials
  • Sweden

    National Representative: Marit Jenset

    Email: marit.jenset@bro.se 

    Website: www.bro.se

    Highlights of 2019

    • In February, for World Cancer Day, participating in a programme on national TV addressing taboos about BC in immigrant communities
    • Launching a report and film about rehabilitation and MBC
    • In October, launching a BC report on risk factors and development of the screening programme
    • Hosting round table discussions with politicians with a focus on unequal care and slow drug introduction for MBC patients.
    • Rehab-weeks and partner-weekends, funded by ED Sweden

    Activities for 2020

    • Campaign on patients’ rights
    • BC campaign in different languages (Arabic, English, Persian, Somali and Turkish)
    • Information campaign on BC and COVID-19
    • Member survey and press release on a working life after BC
    • In October, a BC report about the lack of radiologists and the development of artificial intelligence (AI)
    • Rehab-weeks and partner-weekends, funded by ED Sweden
  • Switzerland

    National Representative: Donatella Corbat

    Email: info@europadonnna.ch

    Webmail: www.europadonna.ch

    Highlights of 2019

    • Starting up a sport group Fit & Fun
    • In March, “Simply the Breast”, the first Swiss public conference for BC patients and their relatives, with a wide-ranging programme of lectures, workshops, yoga and music
    • Participating in different solidarity runs with ED shirts for BC survivors and Breast Friends
    • Building new “Tavola Rosa” meetings for patients in different towns
    • Attending different conferences

    Activities for 2020

    • Collaborating in the development of an inspirational patient booklet, providing advice on nutrition (recipes), sport (exercises) and mindfulness, especially for MBC patients
    • Speaking at the board of directors of a health insurance company
    • Participating as a patient in a multi-stakeholder conference
    • Tavola Rosa meetings via video conference during COVID-19
  • Tajikistan

    National Representative:  Firuza Abdullaeva

    Email: avesto97@mail.ru

    Highlights of 2019

    • Meetings with MBC patient groups
    • A roundtable on access of women with MBC to basic services with participation by government representatives, the National Oncology Centre and patient groups
    • Meeting with the government to discuss financing of screening programmes for women from low-income families
    • Starting a hotline for MBC patients and holding information campaigns for patients, family members and support groups
    • Media presence and creation of a Facebook page
    • Organisation of a project on palliative care at the home care level
    • For Pink October, workshops for MBC patients and a seminar on BC prevention and early detection
    • Meetings with a mammography specialist
    • A meeting with the Vice-speaker of Parliament about MBC patients’ access to chemotherapy
    • Organising focus groups for MBC patients and families on palliative care and chemotherapy

    Activities for 2020

    • Campaigns to improve access to treatment for cancer patients
    • A roundtable on the accessibility to palliative care at home, and patients’ rights to health and access to opioid analgesics
    • Prevention of COVID-19 among BC patients and a COVID-19 BC patients’ hotline
    • Humanitarian aid for oncology hospitals and BC patient groups (part of the USAID Food for Peace project)
    • Collaboration with Americares for the supply of cancer medications
    • Developing recommendations on organising palliative care at a home-care level in Tajik and Russian
    • In October, BHD activities
  • Turkey

    National Representative: Violet Aroyo

    Email: violetaroyo@hotmail.com

    Highlights of 2019

    • Screening programme for immigrant women
    • Providing psycho-oncological support for patients with advanced BC
    • Bazaars
    • Seminars
    Activities for 2020
    • Providing transportation support for patients receiving treatment during the pandemic
    • Providing online support to women undergoing treatment
    • Different online meetings for patients
  • UK

    National Representative: Margaret Spittle

    Email: edukforum@gmail.com

    Highlights of 2019

    • ED UK Reception hosted by the Lord Mayor of Westminster, featuring a lecture on the history of BC through art
    • Participation in OPTIMA meeting on collaboration with research nurses and how to increase trial recruitment
    • Marketplace Event: breast team informing the public about cancer screening, BC signs and symptoms
    • Assistance in panel discussion on biosimilars, and speaking to nurses about CDK4/6 inhibitors
    • Speaking at the Nurses’ Forum on quality of life for patients and healthcare professionals
    • Breast Check Clinics for “Check4Cancer” delivered by a breast care specialist nurse
    • “Casting for Recovery UK”, fly fishing weekends for BC survivors

    Activities for 2020

    • Meeting with the Cross-Party Group on Cancer, a debate with the Cabinet Secretary
    • A lecture in Scotland on leadership in cancer nursing for oncology nurses
    • BC patient workshops covering menopause, reproductive health and intimacy
    • An invitation to ED UK Deputy Chair Dr Harmer to become a Medical Advisory Group Member for Charity CoppaFeel!
    • Contribution to global peer navigator programme content for MBC
    • Organisation by ED UK of a virtual meeting on cancer including BC talks
    • Participation in the Imperial College Women’s Network event
  • Ukraine

    National Representative: Galina Maistruk

    Email: maistruk@rhr.org.ua

    Highlights of 2019

    • Holding the fifth BHD event at the Ukrainian Parliament with parliamentarians and cabinet ministers taking part. ED Ukraine representatives and MPs raised awareness of the importance of BC prevention and screening in an event with media presence
    • Donating a mammography unit to the Sumy Regional Cancer Centre, purchased with funds raised in cooperation with a cosmetics company
    • Rehabilitation programmes for BC survivors focusing on quality of life after treatment, prevention and treatment of lymphoedema and psychological support
    • Running a national BC hotline providing information services and counselling
    • Participating in the ED Pan-European conference

    Activities for 2020

    • A national BC information campaign on social media about early detection and reducing risk
    • In October, a Pink Breakfast for media representatives
    • A BHD event in Parliament
    • Supporting the national breast health hotline
  • Uzbekistan

    National Representative: Shakhnoza Umarova

    Email: eduzbekistan@mail.ru

    Highlights of 2019

    • In March, a tea party for International Women’s Day with doctors and BC survivors
    • Seminars on raising awareness of BC in Tashkent and regions
    • A “Pink October” celebration with BC survivors
    • Psychological training sessions for BC survivors and patients

    Activities for 2020

    • Organising interactive meetings for BC patients and survivors to exchange experiences, knowledge and “their way through” stories
    • Meetings with mass media on how to write and inform about BC and other women’s cancers
    • In October, a Pink Gala
    • Organising series of meetings with Uzbek oncologists on promoting the EU guidelines for quality assurance in BC screening and diagnosis