Member Countries

  • Albania

    National Representative: Donjeta Zeqa

    Email: donjetazeqa@gmail.com

    Highlights of 2017

    • Distributing brochures and leaflets with information about breast cancer (BC) during International Kidney Day
    • “Support Hope, Fight for Life” awareness raising activity, resulting in an “open letter” on issues faced by women with BC and signed by diplomats and foreign representatives
    • In October, free mammography and informative meetings for women
    • An information activity with participation from World Cup football aspirants
    • Sports and games for Breast Health Day (BHD)
    • An informative meeting at a high school
    • “Donate Hair, Give Hope” campaign
    • Hosting an oncology activity for patients and medical staff in the “Zen Room” for women with BC
    • A “Café Donna” meeting to discuss improving goals and new plans and projects
    • Advocating for access to trastuzumab treatment

    Activities for 2018

    • Publishing a newsletter distributed by Panorama newspaper
    • “Café Donna” meetings with patients
    • BHD and media activities
    • In October, a “Buy a Coffee for a Woman With Breast Cancer” campaign
  • Armenia

    National Representative: Nvard Kocharyan

    Email: nvardkocharyan@gmail.com

    Highlights of 2017

    • In March, a charitable concert “You are Not Alone”
    • In June and November, a screening project in the south
    • In July, “Towards Health”, the first annual scientific conference
    • In September, a “Healthy and Beautiful” walkathon
    • All year long, meetings, media and TV projects, flash mobs and awareness activities

    Activities for 2018

    • In June, “Towards Health”, the second annual scientific conference
    • In July, an open-door charity sale
    • On Sundays in August, morning gymnastics for patients
    • In September, screening projects
    • In October, Pink Month activities, including a “Mother and Child Walkathon”, a theatre performance, a symphony orchestra concert and exhibitions
    • All year long, meetings, media and TV projects, flash mobs and awareness activities
  • Austria

    National Representative: Mona Knotek-Roggenbauer

    Email: info@europadonna.at
    Website: www.europadonna.at

    Highlights of 2017

    • New edition of the ED Austria book Du bist nicht allein (You Are Not Alone)
    • Reissuing the brochure “Initial Information About Breast Cancer”
    • Panel discussions on future health in Austria
    • 4th Austrian Breast Cancer Patients Congress
    • Pink Paddling with Vienna Pink Dragons
    • Participating in international congresses
    • “Motivation on Movement” for BHD
    • Social media activities and public relations
    • An awareness film about metastatic breast cancer (MBC)
    • Mona’s Blog

    Activities for 2018

    • Participation in stakeholder discussions on the future of oncological care in Austria
    • 5th Austrian Breast Cancer Patients Congress
    • Translation of the French MBC brochure
    • New collaborations with other Austrian breast cancer organisations
    • Collaboration with breast care nurses
    • Survey on the rocky path through the Austrian health system
    • Final evaluation of the survey on work and cancer
    • Social media, public relations and Mona’s blog
    • Café Donna
    • Pink Paddling
    • For BHD, a flash mob (dancing in the city)

     

  • Belarus

    National Representative: Palina Soldak

    Email: polinsoldak@mail.ru
    Website: www.europadonna.by

    Highlights of 2017

    • Working with women’s groups in different regions
    • Preparing women for the Eurasia Breast Cancer Advocacy Conference in Kiev in October
    • Distributing MBC treatment materials for women’s advocacy groups
    • Working with school teachers and teenagers to educate them about BC

    Activities for 2018

    • Participation in the Eurasian Screening Conference in May 2018
    • Working with BC screening pilot programmes and promoting ED BC screening standards
    • Working with women’s advocacy groups in Minsk, Grodno and Gomel regions
    • Updating the ED Belarus website

     

  • Belgium

    National Representative: Birgit Carly

    Email: birgit.carly@skynet.be
    Website: www.europadonna.be

    Highlights of 2017

    • In October, BHD activities, a BC campaign in conjunction with the French-speaking section of the Cancer Foundation
    • Attending the ED Pan-European Conference
    • In November, a BC campaign in conjunction with the Dutch-speaking section of the Cancer Foundation, and participation in the ED Advocacy Training Course
    • In December, holding the General Assembly

    Activities for 2018

    • In March, participation in the 11th European Breast Cancer Conference (EBCC11), and the 3rd EORTC Cancer Survivorship Summit in Brussels
    • In April, “Talk and Walk Pink” for awareness about BC prevention
    • In May, a symposium on BC screening in Belgium for the Dutch and French communities held at a hospital in Brussels

     

  • Bulgaria

    National Representative: Mila Nenova

    Email: eudonnabg@abv.bg

    Highlights of 2016

    • Meetings with parliamentarians to present issues concerning BC in Bulgaria and ED activities
    • Meeting with health professionals to promote best practices
    • Participation in the activities of APOS, a patient organisation for different types of cancer
    • Participation in 3 radio shows and in one TV talk show on the main topics of breast health, prevention and breast health in young women

    Activities for 2017

    • Aiming to participate in 3 radio shows and additional radio and TV programmes
    • Activities in cooperation with other cancer organisations
    • For BHD, participation in a national TV morning show, and promoting the BHD video on the ED Bulgaria Facebook page
  • Croatia

    National Representative: Vesna Ramljak

    Email: vesnaramljak@yahoo.com

    Website: www.europadonna.hr

    Highlights of 2017

    • In February, a BC conference
    • In March, Daffodil Day
    • In June, the Women’s Race for ED Croatia
    • In October, the 18th Pink Ribbon Day and BHD
    • In November, a pink rugby match for ED Croatia and a MBC conference “Every Day is Precious”

    Activities for 2018

    • In May, nutrition workshops “Healthy Days” in shopping centres in Zagreb
    • In September, the ED Zagreb Pink Run
    • Annual activities: Daffodil Day event; Women’s Race for ED Croatia; Pink Ribbon Day, BHD, and the MBC conference

  • Cyprus

    National Representative: Stella Mastora

    Email: info@europadonna.com.cy

    Website: www.europadonna.com.cy

    Highlights of 2017

    • Annual activities: a summer party for women with BC, Pink Silhouette walk, BHD activities, pink illumination of various landmarks, “Look Good, Feel Good” day activities, participation in conferences abroad, psychological support by an ED Cyprus psychologist, “Bosom Friends” support programme, fund-raising fashion shows, lectures in all towns on BC awareness, participation in solidarity runs, participation in Europe Day events
    • Monitoring the operation of the SBU in Nicosia General Hospital
    • Participation in the steering committee of the national screening programme
    • Co-organising a Cancer Day event
    • Conference on “Breast Cancer Awareness” held every 2 years
    • Board Membership in the Cyprus Patients’ Organisation that represents Cyprus at the European Patient Forum (EPF)
    • Longest knitted scarf event in memory of a member
    • Sponsored seminar on lymphoedema
    • Lectures on the relationship between the breast, body image and art, “The Preventive Power of Food” and “Bereavement and Loss in Children”
    • Meeting with the national organisation of breast surgeons
    • Translation of the oncoplastic breast reconstruction guidelines

    Activities for 2018

    • Annual activities: Pink Silhouette walk, BHD activities, pink illumination of landmarks, conference participation, fund-raising fashion shows, Bosom Friends programme, psychological support, lectures, solidarity runs and dragon boat events, summer party, national screening programme participation, Christmas and Easter family food packages, being board members of Cyprus Patients’ Organisation, participation in the Europe Day events, updating ED Cyprus leaflets
    • Free physiotherapy service offered by ED Cyprus physiotherapist specialising in lymphoedema
    • Participation in the SBU ad hoc committee
    • Press conference at the Presidential Palace announcing October activities
    • Meetings with the Minister of Health on better BC services
    • Meeting with policy makers for insurance schemes for women with BC
  • Czech Republic

    National Representative: Marta Kostrovà

    Email: aliance@breastcancer.cz

    Highlights of 2017

    • “You Can Also Do It” celebration of the 15th anniversary of the organisation
    • “It’s Not Only About Breasts” educational campaign at secondary schools about breast awareness and self-examination
    • “Closely Watched Breasts”, a travelling “Breast Wall” exhibition in local cafés in 30 towns across the country
    • “We are Swimming the Breast Stroke”, as part of BHD in 10 towns
    • Annual conference
    • Various projects, such as “Bellis” for young women with BC and “Invisible Women” for advocacy for MBC patients, with meetings held in the mountains

    Activities for 2018

    • “You Can Also Do it”, this time with pictures taken by a professional
    • “Closely Watched Breasts Campaign” with a mobile exhibition of plaster breast casts, including advice on prevention and the importance of early diagnosis
    • An educational activity on breast health for people with hearing impairment
    • Pink October events organised by Bellis and Invisible Women projects, including charity fashion shows, recovery stays, swimming, and more
    • Participation in conferences and training sessions organised by ED and other NGOs
  • Denmark

    National Representative: Karen Sundbøll

    Email: kaas@brystkraeft.dk

    Highlights of 2017

    • One seminar for women with MBC and 2 on late complications
    • General Assembly and a thematic meeting with expert speakers
    • ED Denmark award for doing something special for BC patients
    • Issuing a magazine 3 times a year, a monthly digital newsletter, an annual report, updating the daily Facebook page and the website
    • 3-4 annual meetings with other cancer patient groups and the National Cancer Organisation, participation in a national medical group on BC medicine
    • Local activities including expert meetings with local medical staff and others, expert presentations on BC, and social activities
    • Participating in ED conferences and training courses
    • Helping to develop a “decision support tool” for professionals and patients to aid communication and patient decision-making
    • Sewing by volunteers of about 3000 heart-shaped pillows for women having BC surgery

    Activities for 2018

    • Annual activities: seminars, expert meeting, ED Denmark award, publications and media activities, meetings with other cancer patient groups, local activities
    • Launching a new logo
    • Providing support to women whose mammogram results did not undergo a second reading as required by Danish law
    • Participating in conferences including EBCC, ED conferences, a Danish “People Meeting” in Bornholm, a discussion meeting focusing on cancer survivors, and the
    • Nordic Breast Cancer Conference
    • A national campaign on “Healthy Lifestyle for Breast Health” using the ED BHD materials

  • Estonia

    National Representative: Maie Egipt

    Email: maie.egipt@cancer.ee 

    Highlights of 2017

    • Successful advocacy for the National Breast Screening Programme to be extended from age 62 to 69 years
    • Launching a new BC social media campaign “Pink Rules”
    • Annual summer retreat for cancer patients
    • Continuing cancer patient group meetings across the country
    • Nation-wide Pink Ribbon campaign

    Activities for 2018

    • A special press conference on MBC in May resulting in articles published in all the major national newspapers, health magazines and broadcast on national TV
    • Producing a new MBC video
    • Taking the “Pink Rules” social media campaign to the 2018 national beauty convention
    • Launching “Ignorance is Not Bliss”, a new breast health awareness campaign via social media and posters
    • Cooperating with an agricultural supply company to make pink silo covers available this summer for purchase by local farmers with proceeds going to BC screening
  • Finland

    National Representative: Anu Niemi

    Email: anu.niemi@europadonna.fi 

    Website: www.europadonna.fi

    Highlights of 2017

    • Producing a leaflet with questions to ask during treatment
    • BHD Activities: lecture “Tools for a Healthy Life” and creating a personal health recipe for how to adopt healthy new habits into everyday life
    • Discussion groups in several cities
    • Different theme weekends (art therapy, sport) and recreational activities
    • “Pink Bales” fund-raising campaign

    Activities for 2018

    • Continuing MBC networking: a weekend for families including discussion groups for patients, partners and activities for children
    • Wellness and peer support weekend for MBC patients
    • Opening of a peer support phone-line
    • Discussion groups and weekend retreats
    • Lectures providing information on BC and ED Finland in several cities
  • France

    National Representative: Dominique Debiais

    Email: europadonnafrance@gmail.com

    Website: www.europadonna.fr

    Highlights of 2017

    • Design and launch of the new ED France website
    • Annual conference in Paris, “New Therapeutic Approach From Diagnosis to Treatment”
    • Monthly Café Donna in Paris, Lyon, Bordeaux and Nantes
    • Sports activities in regional offices
    • Supporting Dragon Boat activities with the Paris Dragon Ladies
    • Pink October across France
    • Participating in various scientific committees and advisory boards (National Cancer Institute, scientific organisations, Cancer League)

    Activities for 2018

    • Celebrating the 20th anniversary of ED France in all the regional offices
    • Action Plan in progress for MBC based on 5 pillars: awareness, information, access to best treatment, support and data collection
    • Updating brochures: MBC, hormone therapy, family history
    • New brochure on clinical trials for BC and biosimilars for patients
    • In November, annual conference on progress on treatments and the management of BC over the last 20 years and gearing for the future
  • Georgia

    National Representative: Nino Kartvelishvili

    Email: nin_ka@hotmail.com

    Highlights of 2017

    • Creating short films under one title “I Defeated Breast Cancer” in which BC survivors tell their stories to be aired on national television
    • Holding a joint roundtable with representatives of state institutions, medical doctors, mass media and NGO representatives to discuss ways to solve patients’ problems
    • Working in Azerbaijan to disseminate information about ED
    • Participating in a “Marathon for a Healthy Life” for BHD in Tblisi and Batumi to increase BC awareness and prevention
    • Attending the ED Advocacy Training Course

    Activities for 2018

    • Holding a press conference with participation of representatives of the Ministry of Health to stress the importance of government participation in funding for BC patients, and to discuss other problems needing attention in the future. It was aired on the national TV channel and other independent channels
    • Attending EBCC11
    • Holding an advocacy training course in Azerbaijan
    • In cooperation with partners, offering free examinations for women living the Gori region and visiting the region with physicians
    • Awareness activities in cooperation with a hotel chain that served pink desserts and provided funding for ED Georgia initiatives
    • Attending the ED Advocacy Leader Conference
    • For BHD, taking part in a marathon, participating with physicians to offer free examinations of women of all ages, decorating the main square in Batumi with pink ribbons and holding an information campaign
  • Germany

    National Representative: TBC

  • Greece

    National Representative: Elizabeth Meier

    Email: lizameier85@gmail.com

    Highlights of 2017

    • Speaking at numerous medical conferences and cancer seminars
    • Giving lectures in the Athens medical school training programme about ED Greece’s role in assisting clinical trial researchers in ensuring the protection of cancer patients’ rights
    • Participating as an ED Greece team in the Athens marathon
    • For BHD, an awareness campaign in the centre of Athens, with student volunteers handing out apples and Greek translations of the ED BHD leaflets. Breast nurses and 2 breast surgeons offered advice to women. The Red Cross also assisted
    • Attending the ED Advocacy Training Course
    Activities for 2018
    • Meeting with MPs and the Minister of Health to discuss ED Greece’s help with the BC registry process, and to help the Greek Oncological Society receive reimbursement for BRCA genetic testing
    • Drafted an official request to the President of the Greek Parliament for a BC parliamentary committee and a proposal for issues needing prioritisation. The document contained vital information on issues and solutions in other European countries
    • Holding a board meeting and a General Assembly
    • Attending the ED Advocacy Training Course
  • Hungary

    National Representative: Judit Lautner

    Email: lautnerjuci@gmail.com

    Highlights of 2017

    • Holding EUROPA DONNA Day in Martfű with more than 100 participants and culmination of the health programme with an awareness-raising walk
    • Introduced new country delegate and ED services in an ED Hungary official publication distributed to oncology centres across the country

    Activities for 2018

    • ED Day in Budapest
    • ED programme with neighbouring countries
    • The first nation-wide cultural meeting of cancer patients with 500 participants from 30 cities
    • Creating and distributing thousands of copies of a publication describing the organisation and its objectives via the nation-wide network of 50 clubs and associations, as well as oncology centres and through colleagues

  • Iceland

    National Representative: Hrefna Ingólfsdottir

    Email: hrefna2908@hotmail.com

    Highlights of 2017

    • Monthly “open meetings” for women diagnosed with BC, for discussion and education about therapy, surgery, late side effects of chemotherapy, and benefits of healthy lifestyle
    • “Casting for Recovery,” a fishing activity, for women in rehabilitation after BC treatment

    Activities for 2018

    • Forming part of a group of specialists invited by Ministry for Health in order to renew the BC screening programme
    • Participating in the Nordic Breast Cancer Conference
    • Participating in the ED Advocacy Leader Conference and in ED Advocacy Training
    • Planning a seminar called “Moving Forward” for women who have finished BC treatment in cooperation with the university hospital and the Icelandic Cancer Society
  • Ireland

    National Representative: Deirdre O’Connell

    Email: info@europadonnaireland.ie
    Website: www.europadonnaireland.ie

    Highlights of 2017

    • Participation in working groups, such as the Patient Forum National Cancer Strategy 2017-2028, National Cancer Control Programme’s psycho-oncology and survivorship groups
    • Distribution of BHD information at University College Dublin and other locations
    • Attendance at “Cancer Trials Ireland Stakeholders’” meetings and “The Patient Voice in Cancer Research” meetings
    • Consultation on research proposals
    • MBC Day Communication issues and living with MBC
    • Development of “MBCConnect”, a private online forum for women with MBC
    • Attendance at 1st ED MBC Conference and ABC in Lisbon
    • ED Ireland stand at various conferences and meetings

    Activities for 2018

    • Celebrating 20th Anniversary of ED Ireland
    • Annual activities: ongoing involvement in working groups and research groups
    • MBC event in October
    • Updating website
    • Campaign for implementation of Cancer Strategy, especially in relation to psycho-oncology services
  • Israel

    National Representative: Miri Ziv

    Email: miriziv@cancer.org.il
    Website: click here

    Highlights of 2017

    • World Health Organisation 2012 statistics released: Israel leads in compliance and survival rates; compliance bridged between Jewish and Arab women
    • Specialist breast units (SBU) established with ED Israel assistance; accreditation supported by Israel National Council of Oncology
    • Support groups, public information booklets and advertising, social media campaigns
    • Disseminating ED materials via the website and Facebook
    • For BC awareness month: press release, annual seminar, public building illuminated in pink, pink lingerie collection, bras art exhibit, photos of women with BC and survivors, sailing and motorcycling events in collaboration with different companies, organisations and individuals
    Activities for 2018
    • A press release on BC in Israel
    • Public service announcements, social media campaigns, annual seminars and support groups
    • Awaiting implementation of specialist breast unit accreditation
  • Italy

    National Representative: Rosanna D’Antona

    Email: segreteria@europadonna.it

    Website: www.europadonna.it

    Highlights of 2017

    • Promotion of the SBU law with public events in Venice, Rome and Bari
    • Implementation of BC screening in the south with events in Chieti, Abruzzo
    • Two videos with patients and medical associations asking public authorities to implement SBUs in all regions
    • Meeting with parliamentarians to request SBU implementation
    • Training programme on MBC for associations
    • National survey about women’s knowledge of SBUs

    Activities for 2018

    • Promotion of the SBU law with public events in Bologna and Milan
    • Implementation of BC screening in the south with events in Bari
    • Public event in the Senate asking for a National MBC Awareness Day
    • Training programmes for associations on MBC and getting back to work after BC
    • Information portal on BC diagnosis and treatments with links to Breast Units and Associations, a live chat and answers from specialists
  • Kazakhstan

    National Representative: Nagima Plokhikh

    Email: zdorovayaaz@gmail.com

    Website: www.fza.kz

    Highlights for 2016

    • A press lunch on opioid availability to cancer patients
    • A charity event “I Can, You Can” with participation of MPs, the Ministry of Health, journalists and NGOs
    • Awareness-raising activities on early diagnosis and prevention of BC, including meetings, presentations and discussions
    • A 3-month social theatre advocacy project “You Are Not Alone”
    • Visits from European Society of Oncology (ESO) and other experts to ED Kyrgyzstan’s Patient School

    Activities for 2017

    • Advocacy and technical assistance for the development of BC guidelines
    • Facilitating good collaboration between ESO, the Ministry of Health and the National Oncology Centre for training of lab specialists, oncologists, radiographers and others
    • Advocacy for availability and affordability of chemotherapy and hormone therapy
    • Continuing BC awareness raising activities using different tools and approaches
    • Celebrating BHD and Pink October activities
    • Continuing work on palliative care development
  • Kyrgyzstan

    National Representative: Taalaigul Sabyrbekova

    Email: sabyrbekova2011@gmail.com

    Highlights of 2017

    • Running breast health videos in Kyrgyz and Russian languages on 15 minibus routes
    • Decorating a trolleybus with the pink ribbon theme and providing passengers with access to BC prevention information in Bishkek
    • A lecture on breast and cervical cancer prevention for staff of the First National TV channel
    • For Pink October, a “Plant a Tree – Change the World!” campaign where ED Kyrgyzstan staff together with BC patients and volunteers planted trees near the breast centre and Department for Children at the National Oncology Centre
    • Participating in the ED BC Advocacy Training Course

    Activities in 2018

    • Visiting patients at the National Oncology Centre breast centre
    • A roundtable on access to chemotherapy
    • Lectures on palliative care for medical workers of Kochkor district of Naryn Oblast and Balykchy city
    • Lectures by oncologist members of ED Kyrgyzstan followed by consultations with patients and their families on relevant issues
    • Pink October events
  • Latvia

    National Representative: Gunita Berke

    Email: europadonna@dzivibaskoks.lv

    Webmail: www.dzivibaskoks.lv

    Highlights of 2017

    • A “Pink Ribbon messengers” movement across Latvia with widespread distribution and exchange of pink ribbon stickers, including to the media, at the Parliament, the Cabinet and the Riga City Council
    • A photo exhibition “We Are Here To Inspire You” in cooperation with “Dzivibas Koks” Liepaja Department to encourage those diagnosed to reassess their lives and improve their quality of life
    • Psychosocial rehabilitation programmes throughout the year

    Activities for 2018

    • A conference on the multidisciplinary nature and importance of rehabilitation of cancer patients in promoting treatment and quality of life, the situation in Latvia, experience and perspectives
    • A mentor campaign “You Are Not Alone, We Can Help You” with a 2-day mentor training session and public awareness
    • Strengthening the regional support umbrella divisions and setting up new ones
    • Creating a “Patient Rights Guide”
    • Psychosocial rehabilitation programmes
  • Lithuania

    National Representative: Juventa Sartataviciene

    Email: juventa.sartataviciene@nvi.lt

    Highlights of 2017

    • Organising the annual conference in collaboration with the National Cancer Institute of Lithuania with a focus on disseminating information about breast reconstruction, quality of life after treatment, and living with MBC
    • Participating in a debate with policymakers on breast implants for BC patients and the reimbursement process
    • The “1825″ promotional campaign, including video creation, and focusing on living with MBC
    • An interview to the media and public on the use of cool caps during chemotherapy
    • Participating in events organised by other BC groups
    • Collaborating in the publication of the newspaper Oncologist Pages and the online medical news portal Oncologist’s Pages with news of scientific research on BC, diagnosis and treatment, living with BC and quality of life

    Activities for 2018

    • Organising a “Breast Day” in Vilnius in cooperation with the Oncological Association
  • Luxembourg

    National Representative: Mariette Fischbach

    Email: mariettefischbach@yahoo.de

    Highlights of 2017

    • In January and February, dialogue with hospitals and decision-makers following the results of the 2015 survey
    • In March, a fashion show of lingerie and wigs and participation at the 24-hour “Awareness Run Relay for Life”
    • In June, celebrating 15 years ED Luxembourg with a conference and painting exhibition
    • In September, a photo competition
    • In October, “Broschtkriibslaf”, the annual run against BC, and an awareness event at a women’s tattoo convention
    • In November, participation in the ED Advocacy Training Course in Milan, and a Zumba Marathon in Luxembourg

    Activities for 2018

    • Support for development of an e-learning platform on BC
    • Annual Awareness and Education Conference and “Broschtkriibslaf”
    • An “ED Luxembourg” postage stamp
    • Training for physiotherapists
    • Painting exhibition goes on tour
  • Macedonia

    National Representative: Biba Dodeva

    Email: info@borka.org.mk

    Highlights of 2017

    • The 10th National Breast Cancer Conference dedicated to MBC treatment challenges
    • Educational training sessions for BC patients in 6 cities, plus 2 MBC sessions for the Albanian population and the Macedonian population
    • The 9th annual “Go Pink Walk” with 2000 participants
    • Attending the ED MBC Conference, ABC4, and the ED Pan-European Conference
    • Psychosocial support for patients and their families through individual and group sessions, visits to patients at the oncology and radiotherapy clinic, maintaining an SOS hot line, and donation of wigs
    • Patient advocacy within the health system and government institutions
    • 3 short videos from cancer survivors
    • Making the first book, When Cancer Returns, for metastatic cancer patients
    • A fund-raising handball game

    Activities for 2018

    • Annual activities: the 10th Go Pink Walk, the 11th National Breast Cancer Conference, and continuing advocacy initiatives
    • “Finding Inner Courage – Living with MBC, A Life-Changing Diagnosis” project
    • Pink Caravan awareness project
    • Lectures on breast reconstruction
    • A “Pink Bazaar”
    • Producing the “Book of Hope”, inspirational and supportive messages from Go Pink Walk participants
  • Malta

    National Representative: Doriette Darmanin

    Email: info@europadonnamalta.org.mt

    Webmail: www.europadonnamalta.org.mt

    Highlights of 2017

    • Doris Fenech Memorial seminar about MBC
    • Re-establishing the metastatic branch of ED Malta
    • Awareness walks
    • Fashion show
    • BHD activities
    • Annual public lecture
    • Annual fund-raising gala
    • Translation of an MBC book from English to Maltese

    Activities for 2018

    • Giving patients individual support and covering the cost of 12 counselling sessions with a psychologist
    • Providing a €50 voucher for wig or scarves from a renowned hairstylist who in turn matches the discount
    • Throughout September and October, awareness talks in factories, offices and schools
    • The educational Hilda Schembri Memorial Lecture with this year’s theme “What About Me?” addressing patients’ families, with a patient and a patient’s daughter as speakers
    • Joining forces with other NGOs in October to raise awareness and funds to buy the latest mobile biopsy machine
    • A night walk
    • For BHD, “Doctors in the City” where surgeons in walk-in mobile clinics provide check-ups
    • Participating in the ED Advocacy Training Course
  • Moldova

    National Representative: Larisa Sofroni

    Email: sofroni@yandex.ru

  • Monaco

    National Representative: Valérie Barilaro

    Email: valeriebarilaro@gmail.com 

    Webmail: www.ecoutecancerreconfort.org

    Highlights of 2017

    • In October, a conference provided by a gynaecologist specialising in gynaecological problems associated with cancer
    • In November, celebrating 25 years of the organisation with a gala dinner in the presence of Prince Albert and Princess Stephanie
    • In December, inviting patients to a Christmas dinner

    Activities in 2018

    • In January, being invited to the traditional galette des rois (three king’s cake) at a gathering with the Minister of Health
    • In February, speaking at the biannual oncology congress held in Monaco
    • In April, the general assembly
    • In June, participation of patients in a weekend seminar on self-esteem, an outing for patients on a sailboat, a luncheon for patients and members
  • The Netherlands

    National Representative:  Dominique Sprengers

    Email: Sprengers@borstkanker.nl

    Highlights of 2017

    • Implementing “B Optimum” with 10 goals for optimal BC care by discussing it with medical professionals and other stakeholders
    • One conference for new patients and one about MBC
    • Setting up an expert group for patients with MBC
    • A special edition of B magazine about MBC
    • Implementing “Time Out Moments” and shared decision-making in hospitals
    • Creation of an inventory with online support tools for patients
    • Scientific research: setting up the BC research agenda

    Activities for 2018

    • Creating awareness of the need for shared decision-making
    • Improving and organising care and after-care
    • Opinions about the changes needed in the organisation of BC care
    • Improving evaluation of research proposals
    • Implementing information about online support tools
    • Organising conferences and webinars for patients and patient advocates
  • Norway

    National Representative: Anette Nordby Strømnes

    Email: post@brystkreftforeningen.no

    Highlights of 2017

    • A national conference with professional topics and networking
    • Continuing to create awareness about MBC
    • Continuing advocacy on topics of cancer treatment and care
    • Weekend gatherings for women under 45 and for women diagnosed with metastatic cancer
    • Supporting research environments
    • Local activities such as exercise groups, social gatherings and meetings on professional topics
    • Supportive care visits and telephone calls

    Activities for 2018

    • Annual activities: weekend gatherings, supporting research, local activities, supportive care visits and telephone calls, peer support, advocacy on topics of cancer treatment and care, creating awareness about MBC
    • Increasing awareness of supportive care after treatment, including family members

  • Poland

    National Representative: Dorota Czudowska

    Email: polskieforum@europadonna.org.pl

    Webmail: www.europadonna.org.pl

    Highlights of 2017

    • In June, General Assembly and conferences on effective treatment of BC and the role of ED in improving the access to BC prevention and treatment
    • In October, BHD in 5 cities and in the Parliament with posters, brochures, lectures, scientific and press conferences, pink ribbon marches and a Zumba marathon
    • In November, a conference about BC and lecture on how to talk about BC with politicians, and participation in the ED Advocacy Training Course

    Activities for 2018

    • In the spring, participation in EBCC11 and fund-raising activities
    • In July, a General Assembly in Legnica
    • In September, participation in the ED BC Advocacy Leader Conference
    • In October, BHD campaign
    • In November, participation in the ED Advocacy Training Course
  • Portugal

    National Representative: Isilda Pegado

    Email: europadonna@ligacontracancro.pt

    Highlights of 2017

    • Campaign to raise funds and awareness for BC to allow the purchase of 3 direct digital mammography units
    • A BC research grant
    • The participation of 3 Portuguese Olympic canoeing athletes in the BC awareness campaign in national and international competitions
    • Digital campaign for BHD
    • “Pink Wave Movement” to encourage BC prevention and early diagnosis: pink wave on the street, at work, in the digital world, in transport systems, in buildings
    • BC awareness campaign at all the Portuguese Football Championship matches, with BC survivors and key messages in the games
    • BC screening programme advocacy
    • Psycho-oncology consultations for women with MBC

    Activities for 2018

    • Extending the BC screening programme to Lisbon and Setubal,
    • Consultations for women with MBC
    • BHD digital campaign
    • “Pink Wave Movement”
    • A fund-raising campaign
  • Romania

    National Representative: Mihaela Geoana

    Email: fundatiarenasterea@gmail.com

    Highlights of 2017

    • The third “Happy Run” with 2700 participants, including 100 BC survivors
    • Roundtables at the European Parliament and the Romanian Parliament presenting the studies “Female Oncologic Diseases in Romania” and “The Costs and Burden of BC in Romania”, advocating for prevention and early diagnosis of gynaecological and breast cancer
    • Mobile diagnostic unit campaign provided 590 mammograms and 1163 Pap tests
    • “Brave Cut”, offering natural hair wigs to cancer patients
    • Pink illumination of the Globalworth Tower and Sky Tower in Bucharest

    Activities in 2018

    • Annual activities: 3rd “Happy Run” with 3000 participants, mobile diagnostic unit campaign providing 197 mammograms and 387 Pap tests, “Brave Cut” campaign, pink illumination event
    • “Pink Touch – a Manicure for Life” breast self-exam and awareness campaign
    • “Adolescence in Pink” BC prevention campaign in high schools
  • Russia

    National Representative: Oksana Moldovanova

    Email: moldovanova@nwhcf.ru

    Highlights of 2017

    • Running the patient session within the Big Breast Cancer Conference
    • Carrying out an educational programme for 23 cancer counsellors
    • Awarding grants for cancer counsellors in 3 regions
    • Сo-organising a patient session within the 3rd White Night International Cancer Forum
    • Donating breast prostheses and bras for underprivileged patients at local cancer centres
    • Taking part in a mammography screening pilot programme in Moscow
    • Participating in ED conferences and courses
    • For BHD, taking part in 2 business conferences for women to promote BC prevention and screening

    Activities for 2018

    • Launching the first ever in Russia Charity Breast Cancer Support Centre in Moscow where all BC support services are free of charge for survivors and their families
    • Participating conferences: EBCC11, the 4th White Night International Cancer Forum, ED conferences and courses
    • Donating medical equipment
    • A 2-day educational programme for radiologists on BC screening and diagnosis of bone diseases
    • For BHD, public talks about BC prevention, distribution of information materials and launching a new Breast Cancer Navigator website
  • Serbia

    National Representative: Stanislava Otasevic

    Email: europa.donna.serbia@outlook.com

    Highlights of 2017

    • Official registration of ED Serbia and setting up the organisation
    • Promotion of ED Serbia at local and national levels
    • Working towards increasing membership
    • Establishing relationship/cooperation with relevant professional and government institutions
    • Pink October activities (campaigns, public events)
    • Attending national, regional and ED events

    Activities for 2018

    • Negotiation with authorities, including the Ministry of Health and a network of women parliamentarians and others in order to improve and carry out activities
    • Identification of priority needs of women survivors
    • Workshops and public discussion as part of Pink October activities
    • Attending EBCC, ED Advocacy Leader Conference, ED MBC Advocacy Training Course, and ED Advocacy Training Course
    • Advocacy initiatives (public, professionals, authorities) for improvement of BC prevention, diagnosis, treatment, rehabilitation, and psychological support

  • Slovakia

    National Representative: Alena Kallayova

    Email: akallayova@gmail.com

    Highlights of 2017

    • Creation of a platform supporting the implementation of organised mammography screening (association of NGOs and professional organisations)
    • Co-operation with the Ministry of Health in the preparation of mammography screening conditions
    • Lectures for the public on BC prevention and healthy lifestyles
    • Training women waiting for BC screening
    • “We Are Awesome IV” exhibition of paintings by survivors and their family members
    • BHD organised by this platform (3500 participants)

    Activities for 2018

    • Expanding a platform supporting the implementation of organised mammography screening
    • Lectures, awards for mammography departments working according to European standards
    • Public education on cancer prevention and healthy lifestyle (on TV, radio and other media)
    • Cooperation with the Ministry of Health in the implementation of mammography screening
    • “Go to Mammography, I Have Already Been” campaign
    • BHD in Bratislava
  • Slovenia

    National Representative:  Tanja Spanić

    Email: tanja.europadonna@gmail.com

    Highlights of 2017

    • Publication of 3 issues of ED News (100,000 copies)
    • Patient counselling (personal, via phone and emails)
    • Emphasis on psychosocial support and holistic rehabilitation
    • 30 lectures throughout Slovenia
    • 2-day seminar for members of ED Slovenia with 230 participants
    • Intensive workshops for 14 volunteers about support for failing health
    • “Running and Walking for Hope” in 6 locations
    • October activities: press conference, visiting Parliament, humanitarian football match with the national team, humanitarian concert, dance performance, handball and basketball matches, fund-raising campaigns
    • Hosting the ED Pan-European Conference

    Activities for 2018

    • Annual activities: publication of 4 issues of ED News (90,000 copies), patient counselling, “Running and Walking for Hope” in 6 locations, 2-day seminar for ED Slovenia members
    • Emphasis on psychosocial support and holistic rehabilitation as active members of a working group at the Ministry of Health
    • Physical activities – “Pink Challenge” including 12 hikes
    • Support groups for relatives of BC patients and a weekend camp for children
    • Discussion with experts about BC and ovarian cancer
    • Main October activities: press conference, visiting Parliament, awareness campaign involving local municipalities
  • Spain

    National Representative: Carmen Boronat Jiménez

    Email: cboronat@icab.es

    Website: www.fecma.org

    Highlights of 2017

    • Presenting a study on the information needs and health care expectations of BC patients
    • ED Spain Universidad Menéndez Pelayo summer course for specialists and women with BC covering the challenge of maintaining sustainability of the public health system with a focus on clinical research and innovation
    • On BHD, a press conference to present the Manifesto and an awareness campaign on early detection and for fund-raising
    • Participating in the National Health System Cancer Strategy as a member of the follow-up and evaluation committee
    • Psychological support for women with BC and their families
    • Physiotherapy for lymphoedema

    Activities for 2018

    • Summer course at Universidad Menéndez Pelayo with a focus on survivorship
    • Advocacy activities and participation in the National Cancer Strategy
    • Support in developing an app to assist women undergoing chemotherapy
    • Participation as a support group in the Dragon Boat Race
    • BHD campaign and presentation of the 2018 Manifesto
  • Sweden

    National Representative: Marit Jenset

    Email: marit.jenset@bro.se 

    Website: www.bro.se

    Highlights of 2017

    • Presenting a report on introduction of new drugs approved within the EU at seminars at the yearly political week with the aim of shortening introduction time and providing equal access. This led to debates in the media
    • Increasing the number of rehab weeks for MBC patients and weekends for young women, with expenses covered by ED Sweden
    • Meeting with the government on 2 occasions about equal access and quality care
    • Starting a new advocacy and peer support training programme
    • Founding a quality assurance programme in pathology, with debates in the media

    Activities for 2018

    • Hosting 4 roundtables at the political week in July with a focus on unequal care and slow drug introduction for MBC patients
    • Continuing the advocacy campaign for women with MBC
    • Extending and covering expenses for MBC rehab weeks to include a partner week
  • Switzerland

    National Representative: Donatella Corbat

    Email: info@europadonnna.ch

    Webmail: www.europadonna.ch

    Highlights of 2017

    • Workshops and seminars for patients
    • Launch of an app for children, “The magic tree”, in French and German
    • Literature contest in Southern Switzerland
    • Participation in the 24-hour race “Relay for Life”
    • BHD in Southern Switzerland
    • Regular meetings for patients
    • Participation in a health fair
    • Attendance at different conferences

    Activities for 2018

    • Workshops and seminars for patients
    • 32nd Swiss Women’s Run in Bern
    • Regular “Tavola Rosa” meetings for patients
    • Yoga event for young women with BC
    • Co-operation in the publication of a guide for MBC patients
    • Attendance at different conferences
  • Tajikistan

    National Representative:  Firuza Abdullaeva

    Email: avesto97@mail.ru

    Highlights of 2017

    • Monitoring and evaluation of activities carried out by primary care physicians
    • Training for healthy lifestyle specialists on prevention and early detection
    • Meetings with women leaders on advocacy for women’s health and BC prevention
    • “Healthy Nutrition and Physical Activity for BC Prevention” in 3 regions
    • Translation to Russian and Tajik languages and distribution of the 20 Years of ED video
    • Developing a video “In Memory of Women Who Died of BC”
    • A roundtable “Fighting BC”, with the participation of the Ministry of Health, oncologists, journalists, patient groups
    • Workshops on breast self-examination and a BC information campaign
    • A joint activity between health centres to offer free breast examination for health workers and vulnerable groups with 1400 participants
    • BHD Forum for patient groups
    • Awareness-raising activities via the media and information materials
    • A project proposal to the Union Internationale Contre le Cancer (UICC) for 2018
    • Research on MBC patients’ access to chemotherapy for 2016-2017

    Activities for 2018

    • Annual activities: workshops on breast self-examination, a MBC information campaign, a forum for patients’ groups, research on access to treatment and medical services, recommendations for patients with MBC
    • Received grant support from UICC for an MBC project
    • Developing a website, Facebook page and hotline
    • Providing breast prostheses
    • Training in palliative care
    • Meeting with the Ministry of Finance to discuss the quality of mammography, radiation and diagnosis equipment and access to chemotherapy and with the Deputy Minister of Health to discuss access to chemotherapy
    • Meeting with the Vice-President of the Academy of Sciences to discuss MBC and acquisition of modern equipment for radiation therapy and with the Agency for Nuclear Safety to discuss access to safe radiotherapy equipment
    • Roundtable with parliamentarians, patient groups and journalists on access to treatment for MBC with a Resolution sent to the parliament, ministries and departments
    • A training seminar for the media on problems of patients with MBC
    • Seminars for patients groups on healthy lifestyles and increased self-esteem
  • Turkey

    National Representative: Violet Aroyo

    Email: violetaroyo@hotmail.com

    Highlights of 2017

    • Starting a training programme for breast care nurses with Acibadem Hospital and Senaturk
    • Attending more than 5 bazaars for fund-raising
    • Starting a screening programme for immigrant women
    • Working on the European Patients Academy on Therapeutic Innovation (EUPATI) implementation
    • Collaborating on a Patients’ Rights Platform

    Activities for 2018

    • Monthly seminars
    • Seminars and activities with the Patients’ Rights Platform
    • In October, the bi-annual Istanbul International Breast Cancer Conference (IIBCC)
    • Starting in October, training sessions for breast care nurses to be held 4 times a year
  • UK

    National Representative: Margaret Spittle

    Email: edukforum@gmail.com

    Highlights of 2017

    • ED UK Annual Symposium “Breast Cancer: Living With and Beyond” on risk assessment and survivorship
    • Talk to advocacy charity “Against Breast Cancer”, researching secondary BC challenges
    • A stand addressing post-mastectomy radiotherapy and reconstruction at the seminar on hot topics at the 10th Royal Marsden Hospital BC Meeting
    • BHD displays, awareness talks and presentations
    • Nursing Matters: “Breast Cancer 2025 ‒ Where Will We Be”, connecting experiences in BC
    • Facebook and Twitter reach/re-tweets: 65,374
    • Attendance at Britain Against Cancer Conference to discuss the future of cancer care

    Activities for 2018

    • Imperial College Women’s Network event on wellbeing in the workplace
    • Prestigious Parliamentary Reception in the House of Lords, to raise ED UK profile among influential women in the City of London
    • Promotional activities for BC survivor cycling Europe
    • Stand on management of lymphoedema and menopausal symptoms at the 11th Royal Marsden Hospital BC Meeting
  • Ukraine

    National Representative: Galina Maistruk

    Email: maistruk@rhr.org.ua

    Highlights of 2017

    • Holding the third BHD event at the Ukrainian Parliament with parliamentarians and cabinet ministers taking part. ED Ukraine representatives and 10 women MPs raised awareness of the need for BC prevention and screening at an event for the media
    • For Pink October, a nation-wide information campaign devoted to BC early diagnosis and prevention measures
    • A 3-km “Pink Run” held in conjunction with the Kiev City Marathon, and to raise funds for mammography equipment
    • Regular support of BC hotline

    Activities for 2018

    • BHD campaign
    • Advocacy and information event in the Ukrainian Parliament
    • Pink Marathon 2018
    • Press event in October
  • Uzbekistan

    National Representative: Shakhnoza Umarova

    Email: eduzbekistan@mail.ru

    Highlights of 2017

    • In March, International Women’s Day tea party with oncologists and survivors
    • In April, seminars for graduate oncology students on raising BC awareness at Tashkent Medical Academy
    • “Pink October” celebration with BC survivors at the Tashkent City Oncology Clinic
    • New Year’s Eve celebration with BC survivors at the Tashkent City Oncology Clinic

    Activities for 2018

    • In April and May, psychological training sessions for BC survivors
    • BC awareness campaigns in oncology clinics in Tashkent region
    • In July, raising BC awareness among young girls in Ferghana region
    • Pink October events throughout the month