Member Countries

  • Albania

    National Representative: Donjeta Zeqa

    Email: donjetazeqa@gmail.com

    Highlights of 2018

    • Attending ED’s 1st Metastatic Breast Cancer (MBC) Advocacy Training Course
    • For Pink October, a bicycle ride for patients with breast cancer (BC); a meeting with patients and oncologists in QSUT Hospital, Tirana; and a “Donate Hair, Give Hope” campaign
    • Attending the ED BC Advocacy Training Course
    • Different meetings with members of ED Albania

    Activities for 2019

    • Launch of a patient survey
    • A quarterly newsletter (in spring, summer, autumn and winter)
    • Meetings with patients
    • “Caffe Donna”
    • Pink October, including Breast Health Day (BHD)

     

  • Armenia

    National Representative: Nvard Kocharyan

    Email: nvardkocharyan@gmail.com

    Highlights of 2018

    • In June, the annual conference “Towards Health” in Yerevan
    • From July to September: fundraising with open air flash mobs and participation in regional festivals
    • In October, Pink Month activities, including a symphony concert and a walkathon
    • In November, the “Towards Health” conference in Stepanakert
    • Screening projects all over Armenia

    Activities for 2019

    • Screening projects in in the region of Yerevan
    • In June, “Towards Health”, the third annual conference
    • In July, “Pink Party”, a fundraising open-air project in Yerevan
    • From July to September, dancing activities for BC patients
    • In October, Pink Month including a sports day

     

  • Austria

    National Representative: Mona Elzayat

    Email: info@europadonna.at
    Website: www.europadonna.at

    Highlights of 2018

    • 5th Austrian Breast Cancer Patients Congress
    • “Pink Paddling” with Vienna Pink Dragons
    • Panel discussions on the future of health in Austria
    • Attending the European Society for Medical Oncology (ESMO) congress in Munich, Germany
    • Reports on television
    • A flash mob for BHD
    • A promotional film
    • Café Donna
    • Articles in newspapers

    Activities for 2019

    • Holding the 6th Austrian Breast Cancer Patients Congress
    • Hosting the ED Pan-European Conference in Vienna
    • Café Donna
    • Projects for single women with children
    • New design of the ED Austria website
    • MBC website, and a new flyer
    • Fundraising activities

     

  • Belarus

    National Representative: Palina Soldak

    Email: polinsoldak@mail.ru
    Website: www.europadonna.by

    Highlights of 2017

    • Working with women’s groups in different regions
    • Preparing women for the Eurasia Breast Cancer Advocacy Conference in Kiev in October
    • Distributing MBC treatment materials for women’s advocacy groups
    • Working with school teachers and teenagers to educate them about BC

    Activities for 2018

    • Participation in the Eurasian Screening Conference in May 2018
    • Working with BC screening pilot programmes and promoting ED BC screening standards
    • Working with women’s advocacy groups in Minsk, Grodno and Gomel regions
    • Updating the ED Belarus website

     

  • Belgium

    National Representative: Annette Hirsch

    Email: info@europadonna.be
    Website: www.europadonna.be

    Highlights of 2017

    • In October, BHD activities, a BC campaign in conjunction with the French-speaking section of the Cancer Foundation
    • Attending the ED Pan-European Conference
    • In November, a BC campaign in conjunction with the Dutch-speaking section of the Cancer Foundation, and participation in the ED Advocacy Training Course
    • In December, holding the General Assembly

    Activities for 2018

    • In March, participation in the 11th European Breast Cancer Conference (EBCC11), and the 3rd EORTC Cancer Survivorship Summit in Brussels
    • In April, “Talk and Walk Pink” for awareness about BC prevention
    • In May, a symposium on BC screening in Belgium for the Dutch and French communities held at a hospital in Brussels

     

  • Bulgaria

    National Representative: Evgenia Aleksandrova

    Email: adarska@gmail.com

    Highlights of 2016

    • Meetings with parliamentarians to present issues concerning BC in Bulgaria and ED activities
    • Meeting with health professionals to promote best practices
    • Participation in the activities of APOS, a patient organisation for different types of cancer
    • Participation in 3 radio shows and in one TV talk show on the main topics of breast health, prevention and breast health in young women

    Activities for 2017

    • Aiming to participate in 3 radio shows and additional radio and TV programmes
    • Activities in cooperation with other cancer organisations
    • For BHD, participation in a national TV morning show, and promoting the BHD video on the ED Bulgaria Facebook page
  • Croatia

    National Representative: Vesna Ramljak

    Email: vesnaramljak@yahoo.com

    Website: www.europadonna.hr

    Highlights of 2018

    • In March, Daffodil Day
    • In May, a nutrition workshop (Healthy Days in shopping centres in Zagreb)
    • In June, the Women’s Race for ED Croatia
    • In September, the ED Zagreb Pink Run
    • In October, the 19th Pink Ribbon Day and BHD
    • In November, an MBC conference

     

    Activities for 2019

    • In January, a roundtable on side effects of chemotherapy
    • In March, Daffodil Day and a BC Conference
    • Provision of free psychological help for women with breast cancer in the ED Croatia office

     

  • Cyprus

    National Representative: Stella Mastora

    Email: info@europadonna.com.cy

    Website: www.europadonna.com.cy

    Highlights of 2018

    • Annual activities: summer party for women with BC, Pink Silhouette walk, BHD activities, participation in conferences, free psychological support , “Bosom Friends” programme, fundraising fashion show, lectures on BC awareness, solidarity runs and Dragon Boat events, co-organisation of a Cancer Day event, monitoring operation of the Nicosia General Hospital specialist breast unit (SBU), updating ED Cyprus leaflets, press conference for October activities, Christmas and Easter family food packages
    • Participation in steering committee of national screening programme
    • Board membership in the Cyprus Patients’ Organisation representing Cyprus at the European Patient Forum (EPF)
    • Union for International Cancer Control (UICC) grant for MBC project
    • Press conference announcing October activities
    • Meeting with policy makers for insurance schemes for women with BC

    Activities for 2019

    • Annual activities: conference participation, fundraising fashion shows, “Bosom Friends” programme, psychological support, lectures, solidarity runs and dragon boat events, summer party, national screening programme participation, Christmas and Easter family financial support, being board members of Cyprus Patients’ Organisation, co-organisation of a Cancer Day event, monitoring operation of the Nicosia General Hospital (SBU), press conference announcing October activities, publication of newsletter
    • Participation in the National Cancer Strategy
    • Creating awareness of need for shared decision-making
    • Meeting with the National Organisation of Breast Surgeons and the Society of Gynaecologists and Obstetricians
    • Look Good, Feel Good Day activities

     

  • Czech Republic

    National Representative: Marta Kostrovà

    Email: aliance@breastcancer.cz

    Highlights of 2018

    • “You Can Also Do It”, with professional pictures
    • “Closely Watched Breasts”, a campaign covering the Visegrád 4 (Hungary, Poland, Czech Republic and Slovakia)
    • Holding the Annual Conference and participation in international conferences
    • Education on breast health for the hearing-impaired
    • Pink October events organised by Bellis and Invisible Women sections
    • Women Patients’ Voice memorandum – an independent platform

    Activities for 2019

    • Women’s Gathering in Ostrava, a seminar on moving the care of patients in remission from oncologists to primary care
    • Holding an international conference in Prague: Reach to Recovery, with about 100 ED participants from the Czech Republic
    • The continuation of the “Closely Watched Breasts” campaign
    • (Women) Patients’ Voice platform: NGOs helping women patient advocates approach state bodies, health insurance companies, and medical professionals
    • Patients’ Council, an advisory body

     

  • Denmark

    National Representative: Ulla Joenson

    Email: uljoe@brystkraeft.dk

    Highlights of 2018

    • Annual activities: seminars, annual meeting, ED Denmark award, publications and media activities, meetings with other cancer patient groups, local activities
    • A presentation for ED Denmark’s 20th anniversary
    • Launch of a new logo
    • Participating in conferences including the European Breast Cancer Conference (EBCC), ED conferences, a “People’s Meeting” in Bornholm and the Nordic Breast Cancer Conference
    • Participating in a new network of groups for BC patients in the Viborg area
    • Participating in planning a political conference in Christiansborg for October 2019

    Activities for 2019

    • Annual activities: seminars, annual meeting, media activities, meetings with other cancer patient groups, local activities
    • Focus on young women and BC patients with young children
    • Development of patient support tools
    • Starting hereditary BC group
    • Fundraising activities

     

  • Estonia

    National Representative: Maie Egipt

    Email: maie.egipt@cancer.ee 

    Highlights of 2018

    • In May, raising BC awareness
    • A press conference about MBC
    • New MBC awareness clip on TV and Internet
    • Participation by the Estonian Cancer Society in the Pink Ribbon run, along with an awareness campaign, “Roosa Ruulib” (Pink Rules)
    • In October, a BHD press release
    • Radio interviews, articles
    • A tour of the mobile mammography bus around Estonia

    Activities for 2019

    • In May, a social media campaign, “Roosa Ruulib” (Pink Rules) on Facebook
    • In October, BHD, press releases, articles, interviews on TV and radio
    • Early detection and MBC awareness videoclips on TV and Internet
    • The continuation of the Estonian tour of the mobile mammography bus

     

  • Finland

    National Representative: Anu Niemi

    Email: anu.niemi@europadonna.fi 

    Website: www.europadonna.fi

    Highlights of 2018

    • Continuing MBC networking: a weekend for families, including discussion groups for patients, partners and activities for children
    • Wellness and peer support weekend for MBC patients
    • Opening of a peer support phone-line
    • Discussion groups and weekend retreats
    • Lectures providing information on BC and ED Finland in several cities

    Activities for 2019

    • Advocating for equal and sufficient treatment for lymphoedema
    • Participating the Finnish Oncology Nursing Society educational days
    • Continuing discussion groups for BC and MBC patients
    • Training new peer support people to start new groups
    • Art therapy and exercise courses to support rehabilitation after BC

     

  • France

    National Representative: Dominique Debiais

    Email: europadonnafrance@gmail.com

    Website: www.europadonna.fr

    Highlights of 2018

    • Celebrating the 20th anniversary of ED France in all the regional offices
    • Action Plan for MBC based on 5 pillars: awareness, information, access to best treatment, support and data collection
    • In October, observing National MBC Day
    • In November, the annual conference: “Progress on treatments and the management of BC over the last 20 years and gearing towards the future”
    • In December, publishing updated MBC brochures

    Activities for 2019

    • A call for projects for a quality of life award for regional organisations that want to help patients
    • Regional days for patients with MBC
    • Follow-up of the MBC plan
    • Updating the brochure on hereditary BC and genetic risk
    • In November, the annual conference on cancer follow-up
    • In December, publishing updated MBC brochures

     

  • Georgia

    National Representative: Nino Kartvelishvili

    Email: nin_ka@hotmail.com

    Highlights of 2018

    • Achievement of the goal of ED Georgia’s campaign “Target for Life”: appropriate high-quality treatment now available for all-stage HER+ BC throughout the country with a high participation rate
    • Opening of a “Pink Space” in Tbilisi for patient and women advocates – a joint project between ED Georgia and a cosmetics company to raise awareness

    Activities for 2019

    • Attending the MBC conference
    • Attending the ED pan-European conference in Vienna, Austria
    • Different activities for BHD in October, to promote a healthy lifestyle
    • Participation of 2 representatives in the ED Advocacy Training Course
    • Support for patients at the “Pink Space” through advocacy and psychosocial sessions

     

  • Germany

    National Representative: TBC

  • Greece

    National Representative: Elena Kountoura

    Email: europadonnahellas@gmail.com 

    Highlights of 2018

    • For BHD, BC Prevention with the Pasteur Institute with a full-day educational event on BC care and prevention sponsored by Euroclinic Hospital
    • In November, participation at the Athens Classic Marathon with an awareness-raising campaign about healthy lifestyles and BC
    • Attending ED Advocacy Training Course in Milan
    • In December, a General Board meeting

    Activities for 2019

    • In February, a General Board meeting
    • In June, participating in the 16th Volunteer Day in Athens by raising awareness of BC and healthy lifestyles among the public
    • For BHD, participating in the “Race for the Cure” in Athens for BC awareness and fundraising

     

  • Hungary

    National Representative: Judit Lautner

    Email: lautnerjuci@gmail.com

    Highlights of 2018

    • 1st National Art Meeting of Cancer Patients’ Clubs in Tihany
    • The kick-off of the Visegrád 4 project: opening ceremony and conference in Budapest
    • “Closely Watched Breasts” in the Visegrád 4, a breast wall exhibition at the Vígszínház (Comedy Theatre) in Budapest
    • ED Day in Martfű
    • Awareness-raising activities on early diagnosis and prevention of BC, including meetings, presentations, discussions and walks
    • Creating and distributing thousands of copies of a publication describing the organisation and its objectives, via the nation-wide network of 50 clubs and associations, as well as through oncology centres and colleagues

    Activities for 2019

    • Workshops and seminars for patients
    • Public talks about BC prevention
    • Pink October activities
    • Events to promote physical activity
    • Participation in the ED Pan-European conference

     

  • Iceland

    National Representative: Hrefna Ingólfsdottir

    Email: hrefna2908@hotmail.com

    Highlights of 2018

    • “Casting for Recovery” a project started 10 years ago, a fishing trip for BC patients and advocates to share experiences
    • Participating in ED Advocacy Training and 1st MBC Advocacy Training Course in Milan
    • Participating in the Nordic Breast Cancer Conference
    • A Pink Lunch for BHD
    • A Pink Forum focusing on rehabilitation for women diagnosed with BC

    Activities for 2019

    • Seminars for women with BC, including a seminar in the UK, “My pathway”, in collaboration with the Icelandic Cancer Society
    • A 10-year anniversary activity for “Casting for Recovery”, a fishing trip for BC survivors
    • BHD activities
    • Planning a BC Forum
    • Participating in the ED Pan-European Conference in Vienna
    • Participating in the ED Advocacy Training Course in Milan

     

  • Ireland

    National Representative: Deirdre O’Connell

    Email: info@europadonnaireland.ie
    Website: www.europadonnaireland.ie

    Highlights of 2018

    • A seminar, “MBC: Coping Physically and Psychologically”
    • Attending various local cancer workshops and seminars, such as “The patient’s voice in cancer research”
    • Distributing information about BC
    • Developing the MBC Connect private website
    • Representation on the Cancer Patient Advisory Committee, the National Cancer Control Programme and the Psycho-oncology Working Group
    • Information sessions delivered at women’s groups
    • Attending EBCC-11, the ED Advocacy Leader Conference and the MBC Advocacy Training Course

    Activities for 2019

    • Continuing involvement in local and European activities
    • Website development
    • Lobbying for the implementation of the National Cancer Strategy for 2017-2026
    • The celebration of the 21st anniversary of the foundation of ED Ireland

     

  • Israel

    National Representative: Miri Ziv

    Email: miriziv@cancer.org.il
    Website: click here

    Highlights of 2018

    • For BC awareness month: a press release and campaigns in the media and on social media; a “Celebrating Life” seminar; sailing on a yacht; partnerships with a major airline and a cosmetics group; a Ferris wheel illuminated in pink; and celebrity fundraiser with participation of a major cosmetics group and clothing company.
    • Media promotion of “Yad Lehachlama®” (Reach to Recovery) with trained volunteer BC survivors supporting newly-diagnosed patients
    • “Preventive GENEration®” programme: awareness of genetic testing for breast and ovarian cancer
    • Year-round seminars, training sessions, conferences and support groups for BC patients and survivors
    • Public information booklets and advertisements
    Activities for 2019
    • A press release on BC in Israel
    • Public service announcements, social media campaigns, annual seminars and support groups, and fundraising campaigns
  • Italy

    National Representative: Rosanna D’Antona

    Email: segreteria@europadonna.it

    Website: www.europadonna.it

    Highlights of 2018

    • Promoting SBUs throughout the regions: a public event in Bologna, a plan for a regional communication campaign in 4 regions
    • Implementing BC screening in the south with a public event in Bari
    • A public event in the Senate asking for the declaration of a national MBC awareness day
    • Training programmes for associations: MBC and returning to work after BC
    • Launching an information portal on BC diagnosis and treatments with links to SBUs and associations, live chat and answers from specialists

    Activities for 2019

    • An advocacy project to obtain psychological support for women with MBC, with a national survey and gathering of signatures
    • An empowering project for caregivers’ associations: 8 sessions in 2 cities with 200 participants
    • Completing the information portal
    • Requesting an MBC National Day: organisation of local events on October 13th, a national conference and political lobbying
  • Kazakhstan

    National Representative: Nagima Plokhikh

    Email: zdorovayaaz@gmail.com

    Website: www.fza.kz

    Highlights for 2016

    • A press lunch on opioid availability to cancer patients
    • A charity event “I Can, You Can” with participation of MPs, the Ministry of Health, journalists and NGOs
    • Awareness-raising activities on early diagnosis and prevention of BC, including meetings, presentations and discussions
    • A 3-month social theatre advocacy project “You Are Not Alone”
    • Visits from European Society of Oncology (ESO) and other experts to ED Kyrgyzstan’s Patient School

    Activities for 2017

    • Advocacy and technical assistance for the development of BC guidelines
    • Facilitating good collaboration between ESO, the Ministry of Health and the National Oncology Centre for training of lab specialists, oncologists, radiographers and others
    • Advocacy for availability and affordability of chemotherapy and hormone therapy
    • Continuing BC awareness raising activities using different tools and approaches
    • Celebrating BHD and Pink October activities
    • Continuing work on palliative care development
  • Kyrgyzstan

    National Representative: Taalaigul Sabyrbekova

    Email: sabyrbekova2011@gmail.com

    Highlights of 2018

    • Holding a roundtable on accessibility of chemotherapy in the Kyrgyz Republic
    • Participation in development of clinical guidelines on BC tertiary-level diagnostics and treatment
    • Participation in update of national essential drug list, adding 15 new World Health Organisation (WHO)-recommended medicines
    • Development of guidance books for MBC patients
    • Holding lectures on early detection of BC for health promotion workers and primary healthcare providers
    • Collecting more than €11,000 at a charity event for purchase of pain relief medicines for palliative care patients, 30% of whom are BC patients

    Activities in 2019

    • In March, organisation of a visit of an ED Luxembourg representative, including meetings with BC patients’ groups in Bishkek
    • Working with health promotion centres for early detection of breast and cervical cancer
    • BC and cervical cancer awareness-raising events in Talas Oblast
    • Annual Pink October events
  • Latvia

    National Representative: Gunita Berke

    Email: europadonna@dzivibaskoks.lv

    Webmail: www.dzivibaskoks.lv

    Highlights of 2018

    • Organising and holding 4 psychosocial rehabilitation programmes for women after BC
    • Creating a voluntary mentors movement for women after BC
    • In October, holding an information campaign “Healthy Commitment Day: how to prevent cancer”
    • Organising self-support groups for BC survivors in 5 regions of Latvia

    Activities for 2019

    • Setting up and opening a day centre for psychosocial support newly diagnosed BC patients in the largest oncology hospital in Latvia
    • Planning and running more than 5 psychosocial rehabilitation programmes for women after BC
    • Organising BC awareness month activities and “Healthy Commitment Month”
  • Lithuania

    National Representative: Juventa Sartataviciene

    Email: juventa.sartataviciene@nvi.lt

    Highlights of 2018

    • Breast Day 2018 in Vilnius
    • “And Life Goes On” project
    • The final event of the promotional campaign “1825” for women with MBC
    • Launch of website www.nkla.lt
    • Beginning of a collaboration with the newspaper Oncologist’s Pages and the online medical news portal Oncologist’s Pages

    Activities for 2019

    • Continuation of the project “And Life Goes On”
    • Social action “Crowd Ideas”
    • A solidarity run “St. Magdalena’s Night Run”
    • Annual Conference for the 20th Anniversary of the National Association of Breast Diseases: a Bridge to the Future
    • More active representation of women’s interests in order to shape health policy in Lithuania
  • Luxembourg

    National Representative: Mariette Fischbach

    Email: mariettefischbach@yahoo.de

    Highlights of 2018

    • Support for further development of an e-learning BC platform
    • Annual ED Luxembourg public conference
    • “Broschtkriibslaf”, solidarity run
    • An ED Luxembourg postage stamp
    • Training for physiotherapists
    • Tour of a painting exhibition
    • Financing of 3 movies for campaigns to raise BC awareness

    Activities for 2019

    • Events in local schools to raise BC awareness
    • Co-sponsoring of #WIN event of Luxemburg artist Jacques Schneider
    • “Broschtkriibslaf”, solidarity run
    • A workshop on supportive care during BC treatments
    • A collection of external breast prostheses for ED Kyrgyzstan
  • North Macedonia

    National Representative: Biba Dodeva

    Email: info@borka.org.mk

    Highlights of 2018

    • In October, the 10th Go Pink Walk, the 12th National Breast Cancer Conference, and a demonstration of BC survivors for BHD
    • “Treatment in Your City” caravan
    • Educational lectures in high school for breast awareness
    • Providing an SOS hotline
    • Psychosocial support for BC patients, families and friends through groups

    Activities for 2019

    • Annual activities: the Go Pink Walk, the 13th National Breast Cancer Conference and the Pink Caravan awareness project
    • A Pink Night show with a multi-art exhibition
    • “Treatment in Your City” caravan
    • MBC support groups
    • 1st Balkan Meeting for BC Patients Organisations
    • Implementing a national cancer control plan
  • Malta

    National Representative: Rowena Enriquez

    Email: ricofun10@onvol.net

    Webmail: www.europadonnamalta.org.mt

    Highlights of 2018

    • Providing individual support for patients and funding for sessions with a psychologist
    • Throughout September and October, awareness talks in factories, offices and schools
    • The educational Hilda Schembri Memorial Lecture featuring a patient and a patient’s daughter as speakers
    • Joining forces with other NGOs to raise funds for a mobile biopsy machine
    • A night walk
    • For BHD, walk-in mobile clinics for health check-ups
    • Participating in the ED Advocacy Training Course
    • Forming a new organisational committee

    Activities for 2019

    • Holding World Cancer Day in Valletta
    • In April, approval of the new committee at the Annual General Meeting
    • A meeting between the new committee and the Mater Dei Hospital’s multidisciplinary team to discuss future collaboration
    • In June, the “Look Good Feel Good Fashion Show” with BC survivors as most of the models
    • In September, a barbecue
    • Annual lecture: “Celebrating 30 years of supporting Breast Cancer Patients and Families”
    • A seminar for BHD
  • Moldova

    National Representative: Larisa Sofroni

    Email: sofroni@yandex.ru

  • Monaco

    National Representative: Valérie Barilaro

    Email: valeriebarilaro@gmail.com 

    Webmail: www.ecoutecancerreconfort.org

    Highlights of 2017

    • In October, a conference provided by a gynaecologist specialising in gynaecological problems associated with cancer
    • In November, celebrating 25 years of the organisation with a gala dinner in the presence of Prince Albert and Princess Stephanie
    • In December, inviting patients to a Christmas dinner

    Activities in 2018

    • In January, being invited to the traditional galette des rois (three king’s cake) at a gathering with the Minister of Health
    • In February, speaking at the biannual oncology congress held in Monaco
    • In April, the general assembly
    • In June, participation of patients in a weekend seminar on self-esteem, an outing for patients on a sailboat, a luncheon for patients and members
  • The Netherlands

    National Representative:  Dominique Sprengers

    Email: Sprengers@borstkanker.nl

    Highlights of 2018

    • Creating awareness of the need for shared decision-making
    • Improving and organising care and after-care
    • Gathering opinions about the changes needed in the organisation of BC care
    • Improving evaluation of research proposals
    • Implementing information about online support tools
    • Organising conferences and webinars for patients and patient advocates

    Activities for 2019

    • Helping patients to choose the best treatment for them
    • Improving care and raising awareness for women with MBC
    • Organising a session for nurses about improving supportive care and aftercare
    • Attention to best practice for BC care in hospitals
    • Advocating for better organisation of BC care (eg, expert care)
  • Norway

    National Representative: Anette Nordby Strømnes

    Email: post@brystkreftforeningen.no

    Highlights of 2018

    • In October 2018, a Pink Ribbon campaign raising €3.7 million
    • Teaming up with the native Sámi people, meeting the Sámi president and recruiting the first Sámi BC advocate
    • Training for BC advocates
    • Organising a networking meeting for people with MBC
    • Participating in the ED MBC Advocacy Training Course

    Activities for 2019

    • Translating information materials and handouts to the Sámi language
    • Organising the first ED Norway networking meeting for individuals with the BRCA gene mutation
    • Training 109 advocates and reaching a total of 208 advocates across the country
    • Taking the first steps to set up regional networks for men with BC

  • Poland

    National Representative: Dorota Czudowska

    Email: polskieforum@europadonna.org.pl

    Webmail: www.europadonna.org.pl

    Highlights of 2018

    • In winter and spring, fundraising activities
    • In March, participation in EBCC
    • In July, a General Assembly
    • In October, BHD campaign, press conferences, popular science conferences, organisation and funding of mammography and ultrasound examinations for women under 50 and over 70, promotion of ED goals in fitness clubs
    • In November, participation in the ED Advocacy Training Course

    Activities for 2019

    • In January, a meeting of the First Lady with women with BC
    • In spring, fundraising for ED activities
    • In March, a conference on women in medicine, the ED Poland delegates’ conference and election of the board
    • In May, the official signing of the National Oncology Strategy, including SBUs
    • In October, BHD campaign and participation in the ED Pan-European Conference
    • In November, participation in the ED Advocacy Training Course and a conference
  • Portugal

    National Representative: Isilda Pegado

    Email: europadonna@ligacontracancro.pt

    Highlights of 2018

    • Supporting the BC screening programme
    • Psycho-oncology consultations for women with MBC
    • Representation on the National Health Council
    • Legal support for women with BC
    • Grant for BC research
    • Awareness campaign for BC screening, with public figures (“Look at them, Look for them”)
    • “Pink Wave Movement” to encourage BC prevention and early diagnosis, including a “pink wave” on the street, at work, online, in public transport, and in buildings
    • Women’s race against breast cancer
    • Digital campaign for BHD
    • Fundraising campaign to support the fight against BC
    • A campaign with a cosmetic company to raise funds and awareness of BC in order to purchase 3 direct digital mammography units

    Activities for 2019

    • Medical expert support for cancer patients on medical boards
    • Petition for the rights of cancer patients
    • ED Portugal workshop
    • Attending the ED Pan-European Conference
  • Romania

    National Representative: Mihaela Geoana

    Email: fundatiarenasterea@gmail.com

    Highlights of 2018

    • Annual activities: 4th “Happy Run” with over 3000 participants, mobile diagnostic unit campaign providing 785 mammograms and 1,544 Pap tests, “Brave Cut” Campaign, pink illumination event
    • Forming ASPO (Association of Oncology Patient Support), an ED Romania patients’ group that aims to promote early detection and improve the quality of life of patients with BC, other oncological diseases or chronic diseases
    • Roundtables at the Romanian Parliament presenting the study “Inequalities and discrepancies in the management of MBC in Romania” and forming a working group for MBC
    • “Pink Touch – A Manicure for Life”, breast awareness campaign
    • “Adolescence in Pink”, BC prevention campaign in high schools

    Activities in 2019

    • Annual activities: 5th “Happy Run” with a target of over 3500 participants, mobile diagnostic unit campaign, “Brave Cut” Campaign, pink illumination event, “Adolescence in Pink”, BC prevention campaign in high schools
    • Supporting ASPO activities
    • Advocacy activities and events stressing the need for a national breast cancer screening programme
  • Russia

    National Representative: Oksana Moldovanova

    Email: moldovanova@nwhcf.ru

    Highlights of 2017

    • Running the patient session within the Big Breast Cancer Conference
    • Carrying out an educational programme for 23 cancer counsellors
    • Awarding grants for cancer counsellors in 3 regions
    • Сo-organising a patient session within the 3rd White Night International Cancer Forum
    • Donating breast prostheses and bras for underprivileged patients at local cancer centres
    • Taking part in a mammography screening pilot programme in Moscow
    • Participating in ED conferences and courses
    • For BHD, taking part in 2 business conferences for women to promote BC prevention and screening

    Activities for 2018

    • Launching the first ever in Russia Charity Breast Cancer Support Centre in Moscow where all BC support services are free of charge for survivors and their families
    • Participating conferences: EBCC11, the 4th White Night International Cancer Forum, ED conferences and courses
    • Donating medical equipment
    • A 2-day educational programme for radiologists on BC screening and diagnosis of bone diseases
    • For BHD, public talks about BC prevention, distribution of information materials and launching a new Breast Cancer Navigator website
  • Serbia

    National Representative: Stanislava Otasevic

    Email: europa.donna.serbia@outlook.com

    Highlights of 2018

    • Creation, publication and distribution of information on BC prevention, MBC and pregnancy after BC at various local and national events
    • Educational activities in 6 Serbian towns
    • Production/dissemination of educational materials
    • Workshops and public discussions, both for the general public and medical professionals
    • Participation in a national campaign, “Cancer is Curable”
    • Advocacy initiatives targeting media, professionals, and authorities
    • Submission of initiatives to the relevant authorities for reimbursement of equipment and medication

    Activities for 2019

    • National BC Day event: “Prevention as priority”
    • Advocacy activities for approval/reimbursement of innovative medication
    • Creation of a model for psychosocial support for patients and their families
    • Pink October activities
    • Workshops on BC, MBC and pregnancy after BC
    • Further cooperation with authorities, media and general public
    • Enlargement of ED Serbia membership
    • Participation in international events
    • Fundraising

  • Slovakia

    National Representative: Alena Kallayova

    Email: akallayova@gmail.com

    Highlights of 2018

    • Expanding a platform supporting the implementation of organised mammography screening
    • Campaign “Come to mammography, I’ve already been”, throughout the year
    • In June, “Run for Healthy Breasts”, a solidarity run
    • From September 2018 to January 2019, an exhibition of paintings by BC survivors

    Activities for 2019

    • Continued expansion of the platform supporting the implementation of organised mammography screening
    • Annual activities: “Come to mammography, I’ve already been” campaign, “Run for Healthy Breasts”
    • Public lectures
    • Exhibition of paintings by BC survivors (inauguration on 15 October)
  • Slovenia

    National Representative:  Tanja Spanić

    Email: tanja.europadonna@gmail.com

    Highlights of 2018

    • Annual activities: publication of 4 issues of ED News (85,000 copies per issue), patient counselling, “Running and Walking for Hope” in 7 locations, 2-day seminar for ED Slovenia members
    • Support groups for BC patients and relatives
    • Special patient groups (young, metastatic, gynaecological cancers)
    • Lectures throughout Slovenia
    • October activities: press conference, visiting Parliament, sports events, local awareness-raising local campaigns
    • International collaborations

    Activities for 2019

    • Annual activities: publication of 4 issues of ED News (85,000 copies per issue), patient counselling, support groups for BC patients and relatives, special patient groups, “Running and Walking for Hope” in 7 locations, 2-day seminar for ED Slovenia members, lectures throughout Slovenia, international collaborations
    • Patient’s diary for newly diagnosed patients and an edition for MBC
    • October activities: press conference, visiting Parliament, professional athletes collaborations, local awareness campaigns
  • Spain

    National Representative: Carmen Boronat Jiménez

    Email: cboronat@icab.es

    Website: www.fecma.org

    Highlights of 2018

    • Presenting a study on the information needs and health care expectations of BC patients
    • ED Spain Universidad Menéndez Pelayo summer course for specialists and women with BC, covering the challenge of maintaining sustainability of the public health system with a focus on clinical research and innovation
    • On BHD, a press conference to present the BC Manifesto and awareness campaigns on early detection and for fundraising
    • Participation in the National Health System Cancer Strategy as a member of the follow-up and evaluation committee
    • Psychological support for women with BC and their families
    • Physiotherapy for lymphoedema

    Activities for 2019

    • Summer course at Universidad Menéndez Pelayo on patient advocacy and sustainability of the public health system and attention to survivorship
    • BHD awareness campaign and presentation of the 2018 Manifesto
    • Advocacy activities and participation in the National Cancer Strategy
    • Support in developing an app to assist women undergoing chemotherapy
    • Fundraising for clinical trials
  • Sweden

    National Representative: Marit Jenset

    Email: marit.jenset@bro.se 

    Website: www.bro.se

    Highlights of 2018

    • Hosting 4 roundtable discussions during the political week in July with a focus on unequal care and slow drug introduction for MBC patients
    • Continuing the advocacy campaign for women with MBC
    • Extending and covering expenses for MBC rehab weeks, including a partner week

    Activities for 2019

    • In February, for World Cancer Day participation in a programme on national TV addressing taboos about BC in immigrant communities
    • Launching a report and film about rehabilitation and MBC
    • In October, launching a BC report on risk factors and development of the screening programme
    • Hosting roundtable discussions with politicians with a focus on unequal care and slow drug introduction for MBC patients
    • Organising and covering expenses for MBC rehab weeks, including partner weekends
  • Switzerland

    National Representative: Donatella Corbat

    Email: info@europadonnna.ch

    Webmail: www.europadonna.ch

    Highlights of 2018

    • Workshops and seminars for cancer patients
    • Swiss women’s run in Bern and a run in Büren with “Breast Friends Forever”
    • Regular “Tavola Rosa” meetings for patients
    • Yoga event for young women with BC
    • Co-operation in the publication of a guide for MBC patients
    • Attendance at different conferences

    Activities for 2019

    • Starting the Fit & Run sports group
    • In March, “Simply the Breast”, the first Swiss public conference for BC patients and their relatives, with a wide-ranging programme of lectures, workshops, yoga and music
    • Participation in different solidarity runs with ED shirts for BC survivors and Breast Friends
    • New “Tavola Rosa” meetings for patients, in different towns
    • Attendance at different conferences
  • Tajikistan

    National Representative:  Firuza Abdullaeva

    Email: avesto97@mail.ru

    Highlights of 2018

    • Annual activities: workshops on breast awareness, an MBC information campaign, a forum and meetings for patients’ groups, research on access to treatment and medical services, recommendations for MBC patients
    • A roundtable with parliamentarians, the Committee on Women and Family Affairs, the National Centre for Treatment of Cancer and patient groups on access of MBC patients to basic services
    • Meeting with the International Atomic Energy Agency to discuss access to safe radiotherapy equipment
    • A training seminar for the media on problems of MBC patients
    • Newspaper articles, TV and radio programmes
    • Development of a website, Facebook page and hotline
    • Pink October activities: workshops for MBC patients, sports events, a seminar for primary level specialists on the philosophy of screening, information on physical and technical aspects of mammography
    • Meetings with a mammography specialist on the ED Short Guide to the European guidelines
    • Reprinting of Russian version of the ED Short Guide to the European Guidelines
    • Meeting with Minister of Finance of Tajikistan on availability of chemotherapy to MBC patients

    Activities for 2019

    • Seminars for patient groups on MBC treatment, chemotherapy, and on healthy lifestyles
    • Submitting a project proposal to the Soros Foundation on palliative care for BC patients in primary health care and at home
    • Submitting a project proposal to UICC\SPARC to continue work at patient-group level
    • In February, for World Cancer Day, an invitation to receive breast and cervical cancer screening in health centres
    • Fundraising for BC treatment and palliative care at home
    • Pink October activity: distribution of booklets with recommendations for MBC patients
  • Turkey

    National Representative: Violet Aroyo

    Email: violetaroyo@hotmail.com

    Highlights of 2018

    • Development of a European-funded screening programme

    Activities for 2019

    • The implementation of a European-funded screening programme
    • Campaigns to raise awareness and funds, including charity sales and meetings
    • Seminars on breast health and quality of life
    • Training sessions for nurses specialising in breast care and oncology
    • Campaigns to offer psychological support to MBC patients
  • UK

    National Representative: Margaret Spittle

    Email: edukforum@gmail.com

    Highlights of 2018

    • Imperial College Women’s Network event on wellbeing at work
    • Parliamentary Reception in House of Lords, raising ED UK profile among influential women in City of London
    • Welcome in Trafalgar Square of the Round the World Cycling Tour of BC survivors
    • BHD displays, awareness talks and presentations, messages on Twitter
    • Participation in video for breast awareness and screening
    • Breast health presentation at a BC charity boxing event
    • Chairing a session at the Royal Society conference on BC treatment
    • Annual attendance at Britain Against Cancer Conference

    Activities for 2019

    • ED UK Reception hosted by the Lord Mayor of Westminster and featuring a lecture on the history of BC
    • Participation in OPTIMA meeting on collaboration with research nurses and how to increase trial recruitment
    • Marketplace Event: breast team informing the public about cancer screening, BC signs and symptoms
    • Assistance in panel discussion on biosimilars, and speaking to nurses about CDK4/6 inhibitors
    • Speaking at Nurses Forum on quality of life for patients and healthcare professionals
  • Ukraine

    National Representative: Galina Maistruk

    Email: maistruk@rhr.org.ua

    Highlights of 2018

    • Holding the fourth BHD event at the Ukrainian Parliament with parliamentarians and cabinet ministers taking part. ED Ukraine representatives and MPs raised awareness of the importance of BC prevention and screening in an event with media presence
    • Collaborating with a cosmetics company’s social programme to increase access to screening, particularly for women in rural areas
    • Rehabilitation programmes for BC survivors focussing on prevention and treatment of lymphoedema and psychological support
    • Regular support of the BC hotline
    • Creation of a Facebook group “Way to Recovery”

    Activities for 2019

    • Donating a mammography unit to the Sumy Regional Cancer Centre, purchased with funds raised in cooperation with a cosmetics company
    • A national information campaign on early detection of BC
    • BHD in October
  • Uzbekistan

    National Representative: Shakhnoza Umarova

    Email: eduzbekistan@mail.ru

    Highlights of 2018

    • In March and April, BC awareness campaigns in oncology clinics in the Tashkent region
    • From April to August, psychological training sessions for BC survivors
    • In July, raising BC awareness among young girls in the Ferghana region
    • Pink October events for BC survivors throughout the month

    Activities for 2019

    • In March, International Women’s Day tea party with doctors and survivors
    • Seminars on raising BC awareness in Tashkent and regions
    • Opening and registering a local BC NGO
    • “Pink October” celebration with BC survivors at the Tashkent City Oncology Clinic
    • In November, a press conference on BC activities in Uzbekistan