EUROPA DONNA Organisation – Board and Staff
The Executive board of EUROPA DONNA is elected by voting National Delegates at a General Assembly and consists of a maximum of nine members, three of whom must be breast cancer survivors.
President: Tanja Spanic (Slovenia)
Tanja Spanic was diagnosed with breast cancer in 2008, when she was 26 years old. A year after her diagnosis, she joined Europa Donna Slovenia. Since then, she has become an active member and a breast cancer advocate, especially for young women with breast cancer. She is currently the President of Europa Donna Slovenia. Tanja has participated in many national and international breast cancer conferences and seminars, and she is a member of several breast cancer working groups and committees. Tanja is also a doctor of veterinary medicine and holds a PhD in neuroscience.
Treasurer: Sema Erdem (Turkey)
Elizabeth Bergsten Nordström (Sweden)
Biba Dodeva (Macedonia)
Paola Mosconi (Italy)
Fiorita Poulakaki (Greece)
Vesna Ramljak (Croatia)
Ellen Verschuur (The Netherlands)
Executive Director and Staff:
Marzia Zambon – Executive Director- Marzia Zambon joined Europa Donna – The European Breast Cancer Coalition in March 2020 as External Affairs Director and was appointed Executive Director in February 2021. Ms. Zambon is responsible for Europa Donna’s advocacy initiatives in the areas of information, education and lobbying. Ms. Zambon represents Europa Donna on the Board of the EBC Council which organises the biennial European Breast Cancer Conferences (EBCC) along with partners EORTC and EUSOMA. She manages Europa Donna’s involvement in research projects and advocates at meetings and information sessions at the European Parliament and is actively involved in projects with the European Commission. In 2020 she conducted a survey across ED’s 47 member countries to assess the current state of breast services in Europe from the patients’ perspective. At the start of the COVID pandemic, she oversaw Europa Donna’s transition to online platforms to carry out the Coalition’s work and has implemented monthly online roundtables to secure regular interaction and support to our fora. Ms. Zambon is a frequent speaker on patient advocacy at international meetings and conferences.
Barbara Klein – Communications Officer
Daniela Pirisi – Events and Administration Officer
Paige Robinson – Development Officer
Susan Knox - Executive Director Emeritus/Senior Policy Advisor – Susan Knox is a two time breast cancer survivor and served as CEO of Europa Donna – The European Breast Cancer Coalition (ED) from 1999 to 2021. During this time, Ms. Knox oversaw the organisation’s dynamic growth throughout Europe and played an important role in the improvement of breast services for women throughout the continent largely by arming breast cancer advocates with evidence-based information and training. As Executive Director Emeritus/Senior Policy Advisor, Ms. Knox continues to represent ED on numerous other projects: BIG and AURORA, MINDACT trial Committees and European Breast Cancer Conferences (EBCC). She also serves on the Guideline Development Group of the ECIBC (European Commission Initiative on Breast Cancer). She speaks on patient advocacy at various international conferences and courses and has written widely on the subject.
Address: Piazza Amendola 3, 20149 Milan, Italy
Tel: +39 02 3659 2280
Fax: +39 02 3659 2284