Advanced Breast Cancer – Second International Consensus Conference was held 7-9 November 2013 Lisbon, Portugal. Europa Donna served on the Advocacy Committee of this conference organised by ESO. Click here to see the programme.
To access the Second International Consensus Guidelines for Advanced Breast Cancer (ABC2) click here.
Advanced Breast Cancer Third International Consensus Conference (ABC3) will take place in Lisbon, Portugal, on 5-7 November 2015. Europa Donna will serve on the Advocacy Committee of this conference organised by ESO. Click here to see the programme.
Association of Cancer Online Resources: ACOR is a collection of online communications designed to provide timely and accurate information in a supportive environment. http://www.acor.org/
Breast International Group:
The Breast International Group (BIG) is a non-profit organisation for academic breast cancer research groups
from around the world. Founded by leading European breast cancer experts in 1999, BIG now constitutes a network of
55 groups based in Europe, Canada, Latin America, Asia and Australasia. These entities are tied to several
thousand specialised hospitals and research centres worldwide. About 30 clinical trials and several research
programmes are run or are under development under the BIG umbrella at any one time. BIG also works closely with
the US National Cancer Institute and the North American Breast Cancer Group, so that together they act as a
strong integrating force in the breast cancer research arena.
The IMPAKT Breast Cancer Conference was launched in 2009 by the Breast International Group and the European Society
for Medical Oncology, in collaboration with a multidisciplinary alliance of European breast cancer organisations
and patient groups. Taking place every year in May, IMPAKT brings together a unique community of professionals
to facilitate the advancement of a personalised approach to breast cancer management and the implementation of
new discoveries into clinical practice.
CancerWorld is a scientific magazine about all aspects of cancer, published six times a year by the European School of Oncology (ESO). It is available at http://www.cancerworld.org/magazine
Directorate-General for Health and Consumers (European Commission): The European Commission department that covers public health and other consumer protection issues. The Commissioner is John Dalli (Malta) http://ec.europa.eu/dgs/health_consumer/index_en.htm
European Association for Cancer Research: A membership organisation that works to advance cancer research by organising conferences, offering travel fellowships, supporting collaborative research, encouraging young researchers, co-publishing the European Journal of Cancer. www.eacr.org
European Breast Cancer ConferenceThe first of these conferences was held in Florence in 1998 (EBCC1), since when they have been held every two years. The most recent, EBCC8, was held in Vienna in March 2012. These conferences are the main European forum for discussions on research, treatment and care of breast cancer. The conferences are sponsored by the 3 members of the Breast Cancer Working Group (BCWG) – vzw/asbl: EORTC (see below), EUSOMA (see below) and Europa Donna, and organised under the co-ordinating umbrella of the ECCO – the European CanCer Organisation.
European Breast Cancer Network: A Pan-European project funded by the European Union until 2004, the EBCN aimed to improve the quality, effectiveness and efficiency of breast cancer care by applying pan-European expertise in data collection and analysis, development of best practices, training of health professionals and certification of health care services. www.ebcn.org/
Ecancer is the not-for-profit cancer journal of the European Institute of Oncology and educational partner of the European CanCer Organisation. ecancer is completely open access and is free to read, free to publish and free to comment. ecancer provides an interactive approach to cancer communications through video interviews and conference highlights, news, blogs, images and education. Register for free at www.ecancer.eu
EC-JRC : The European Commission Joint Research Centre (JRC), in close collaboration with the European Commission Directorate-General for Health and Food Safety (DG SANTE), experts and stakeholders is coordinating a project entitled the ‘European Commission Initiative on Breast Cancer – ECIBC’. The IHCP, Institute for Health and Consumer Protection – Public Health Policy Support Unit, is carrying out this project. This initiative aims to contribute to improving breast cancer (secondary) prevention and control in Europe by ensuring that essential quality requirements for breast cancer care will be implemented in a patient-centric way and across Member State borders. A voluntary European Quality Assurance Scheme for Breast Cancer Services, based on evidence and underpinned by the legislative framework on accreditation will be developed within the ECIBC project. https://ec.europa.eu/jrc/en/research-topic/public-health. Link to the ECIBC webpage http://ecibc.jrc.ec.europa.eu/
The European CanCer Organisation (ECCO) ECCO “aims at being the driving force in multidisciplinary and multiprofessional oncology”. Its runs conferences and events including a Patient Advocacy/Ethics Track. ECCO also coordinates EBCC, the European Breast Cancer Conference. The 8th edition of EBCC took place on 21-24 March 2012 in Vienna. www.ecco-org.eu
Association of European Cancer Leagues: A non-profit association of national voluntary cancer leagues in Europe. www.europeancancerleagues.org
European Cancer Patients’ Coalition. Founded in 2003, the ECPC is an umbrella organsiation for cancer patients groups in Europe. It represents the interests of all cancer patient groups from the major to the rarer cancers. It has been established to represent the views of cancer patients in the European healthcare debate and to provide a forum for European cancer patients to exchange information and share best practice experiences. www.ecpc-online.org
European Federation of Pharmaceutical Industries and Associations: Through its membership (national pharmaceutical industry associations and pharmaceutical companies), EFPIA aims to represent the views of about 2,000 pharmaceutical companies undertaking research, development and manufacturing of medicinal products for human use in Europe. EFPIA also aims to represent a substantial part of the European generic medicines market. www.efpia.org
European Institute of Oncology: Established in Milan in 1991, the European Institute of Oncology is a comprehensive cancer centre with research laboratories, clinical facilities (since 1994) and more than 200 inpatient beds. Made possible by privatedonors and declared a Research Institute of Public Interest by the Italian government, it is part of the National Health Service, thus accessible by any EU citizen. www.ieo.it
European Journal of Cancer: International comprehensive oncology journal published by Elsevier in London. Official journal of the EORTC, ESO, EACR, FECS and EUSOMA.
European Medicines Agency. Official agency of the European Commission. www.emea.europa.eu
European Network of Cancer Registries is a project supported by the European Union and began in 1989 to track cancer data in Europe. The Network promotes continuous collaboration between cancer registries, defines data collection standards, provides training for cancer registry personnel and regularly disseminates information on incidence and mortality from cancer in the European Union. The ENCR is a source of reliable cancer statistics for Europe. www.encr.com.fr
European Network of Health Promotion Agencies: A network of health agencies of European countries – EU members and non-member states alike – who share information and best practices with the aim of contributing to the policy process on health related issues. www.eurohealthnet.org
The European Oncology Nursing Society is dedicated to developing, enhancing and promoting cancer nursing in Europe through educational, research, and practice-based initiatives. www.cancernurse.eu
European Organisation for Research and Treatment of Cancer: Conducts, develops and coordinates clinical cancer research in Europe. Extensive and comprehensive research in this wide field is often beyond the means of individual European laboratories and hospitals, and can best be accomplished through the multidisciplinary, multinational efforts of basic research scientists and clinicians from the European continent. www.eortc.be See also, EORTC-BCG.
European Patients’ Forum
EPF is the umbrella group of pan-European patient groups active in the field of European public health and health advocacy. EPF was started in January 2003, as a direct response to calls by the European Commission and other EU institutions to have one pan-European patient body to address and consult on issues of interest to patients in the European healthcare debate. Currently 23 Pan-European disease-specific patients’ groups are members of EPF. EUROPA DONNA was a founding member of the EPF. www.eu-patient.eu
European Public Health Alliance:
A network of around 100 non-governmental and not-for-profit organisations across Europe working on health and health-related issues, with the mission of improving the health of European citizens and increasing their participation in EU policy-making. www.epha.org
European Society of Medical Oncology
European professional organization representing medical oncologists. The Society focuses on a multidisciplinary approach to treatment and has expanded to include radiation and surgical oncologists, as well as other healthcare professionals involved in cancer care. ESMO aims to unite physicians, caregivers, and patients in a global alliance committed to combating cancer and ensuring equal access to quality multidisciplinary treatment. ESMO’s biennial Congress is a major European event in the field of cancer research and always a good source of information on the latest developments. www.esmo.org
European School of Oncology
Established in 1982, the European School of Oncology is the oldest non-profit organisation exclusively dedicated to increasing the knowledge of health professionals in cancer care. www.eso.net
EU Health Portal:
the European Commission launched its Health-EU Portal in 2006 – a gateway to “simple and sound” information on many health-related topics, including cancer. It is aimed at citizens, patients, healthcare professionals and scientists alike and is available in most official EU languages.
EUPHIX is the European Public Health Information and Knowledge System, launched in 2008 and funded by DG SANCO within the framework of the European community health programme. EUPHIX brings together public health knowledge from a variety of European projects and other research. It facilitates the sharing of knowledge and good practice between EU countries and serves as an easy-to-use tool for health professionals, policy makers and others. Several European health projects have used EUPHIX as a platform to present their project results. www.euphix.org
EU Clinical Trials Directive
The Clinical Trials Directive (Officially Directive 2001/20/EC of 4 April 2001) relates to the implementation of good clinical practice in the conduct of clinical trials on medicinal products for human use and is a European Union directive that aims to facilitate the internal market in medicinal products within the European Union, while at the same time maintaining an appropriate level of protection for public health. It seeks to simplify and harmonize the administrative provisions governing clinical trials in the European Union by establishing a clear, transparent procedure.
EU Clinical Trials Register
The EU Clinical Trials Register allows the user to search for information on clinical trials in EU member states and the EEA area.
EUnetHTA is a network of 34 government appointed organisations which aim to be focused on scientific cooperation on Health Technology Assessment (HTA) in Europe, working together to help develop reliable, timely, transparent and transferable information to contribute to to HTAs in European countries.
European Reference Organisation for Quality Assured Breast Screening and Diagnostic Services: A non-profit pan European organisation aimed at providing support and advice at the local, regional and national level to ensure that equally high standards of quality are met at breast cancer screening centres throughout Europe. www.euref.org
Europa Uomo is the European advocacy movement for the fight against prostate cancer. Europa Uomo’s objective is to increase awareness of prostate cancer in Europe. Europa Uomo is a European coalition of patients supporting groups for prostate diseases in general and prostate cancer in particular. www.europa-uomo.org
European Society of Breast Cancer Specialists: EUSOMA aims to improve breast cancer care in Europe and the world; its mission is to define “gold standards” in the management of breast diseases, favouring a rapid transfer of knowledge from research centres to clinical practice and encouraging health professionals to provide breast patients with the best possible care. www.eusoma.org
International Association of Cancer Registries: A professional membership organisation that supports the activity of cancer registries worldwide. It is primarily for population-based registries, which collect information on the occurrence and outcome of cancer in defined population groups. It is one of the organisations that helped found the EACR (above). www.iacr.com.fr
International Association of Research on Cancer: IARC is part of the World Health Organization. IARC’s mission is to coordinate and conduct research on the causes of human cancer, the mechanisms of carcinogenesis, and to develop scientific strategies for cancer control. The Agency is involved in both epidemiological and laboratory research and disseminates scientific information through publications, meetings, courses, and fellowships. www.iarc.fr
Improving Care and Knowledge through Translation Research: IMPAKT was launched in 2009 by the Breast International Group and the European Society for Medical Oncology, in collaboration with a multidisciplinary alliance of European breast cancer organizations and patient groups and is an annual conference. IMPAKT 2012 will take place 3-5 May http://www.esmo.org/events/breast-2012-impakt.html
Mindact is the first project to be launched under Transbig (see below) and is a large, molecular-based adjuvant trial for node negative or up to 2 node positive early breast cancer patients. MINDACT is an EORTC-coordinated study that will use microarray technology to look at a patient’s genes, classifying these early stage breast cancer patients into high and low risk of distant relapse and compare this assessment to what is currently used in clinical practice, which takes into consideration traditional clinicopathological factors.
National Cancer Institute (US):
The U.S. Government’s principal agency for cancer research and training, NCI conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. www.nci.nih.gov
National Surgical Adjuvant Breast and Bowel Project:
An American clinical trials cooperative group supported by the National Cancer Institute (NCI). The NSABP was one of the first organizations to undertake large-scale studies in the prevention of breast cancer, and the Breast Cancer Prevention Trial (BCPT), which included more than 13,000 women at increased risk for breast cancer, demonstrated the value of the drug Tamoxifen in reducing the incidence of the disease in this population. A second prevention trial, the Study of Tamoxifen and Raloxifene (STAR), compares the effect of these two drugs in reducing the incidence of breast cancer. www.nsabp.pitt.edu
Siog is the International Society of Geriatric Oncology and was founded in 2000 as a professional association. The goal of SIOG is to foster the development of health professionals in the field of geriatric oncology, in order to optimize treatment of older adults with cancer. It promotes efforts in training, research, policy and care to support this mission. SIOG is a multidisciplinary society, including physicians in the fields of oncology and geriatrics, and allied health professionals. www.siog.org
TRANSBIG is a translational research consortium to complement BIG’s clinical research network. Involving basic scientists, physicians, patient advocacy groups, cancer societies and industry, TRANSBIG facilitates close interaction between biology, technology and clinical practice, while also providing and educational / training component. Fully committed to international translational research, with the critical link to well conducted, multicentric and prospective clinical research led by BIG, TRANSBIG will allow for discoveries in the laboratory to be quickly transferred to the clinical management and treatment of patients.
International Union Against Cancer: Promotes the campaign against cancer throughout the world by advancing knowledge in research, prevention, early detection and patient care. www.uicc.org
World Health Organisation: www.who.int/en
WHO Clinical Trials Registry
WHO International Clinical Trials Registry Plaftorm (ICTRP) The mission of the WHO International Clinical Trials Registry Platform is to ensure that a complete view of research is accessible to all those involved in health care decision making. This will improve research transparency and will ultimately strengthen the validity and value of the scientific evidence base. www.who.int/ictrp/en/